Newly diagnosed: How probable are subsequent attacksHey everyone! My awesome wife, who is 32 years old, recently received two significant pieces of news: she is pregnant with our second child; but...she has lost most of her...Reactions 0 reactions Comments0 replies
Accessibility and NMOSDFor those with NMO, getting around can be particularly challenging. Since being diagnosed have you struggled with accessibility in your NMOSD journey? What has helped to make this part of...Reactions 0 reactions Comments1 repliesAssistive DevicesCopingTips & Advice
How has NMOSD changed your life? NMOSD can have unpredictable impacts on how we live our lives. What are some ways that NMOSD has impacted your life? What has changed for you?...Reactions 0 reactions Comments1 repliesAwarenessCopingTips & Advice
Are you a parent with NMOSD? Many people with NMOSD are parents or have been parents to a child with NMO. How does NMOSD affect the way we parent?...Reactions 0 reactions Comments2 replies
I am having problems with sexual activity I'm having a problem with maintaining sexual activity due to NMO despite taking some pills which were recommended by my GP....Reactions 0 reactions Comments1 replies
Recovery from attacksWhat methods have helped you to recover from attacks?...Reactions 0 reactions Comments7 replies
What are the best preventative treatments for NMO?Hello everyone, I've been recently diagnosed with NMO. I'm in Canada. I've been discussing treatments options with my neurologist. He says Soliris/Ultomiris is the best, but it is quite expensive...Reactions 0 reactions Comments0 replies
Have you gone to physical therapy for NMOSD? People with neuromyelitis optica spectrum disorder can often experience a loss of mobility. For some, they attend physical therapy to try and regain mobility. Have you had experience with physical...Reactions 0 reactions Comments2 replies
FeaturedWhat has NMO taught you?This forum is a space for individuals to share their experiences and insights gained from living with NMO. Whether you have been recently diagnosed or have been living with NMO...Reactions 0 reactions Comments5 repliesCoping
Holistic and Alternative medicine Hi NMO Fam, I have tried many things other than medication in the past 4.5 years. I found for myself I had better pain management with alternative therapies. What are...Reactions 0 reactions Comments21 repliesMedical MarijuanaDiet & NutritionExercise