FeaturedWill you take our In America survey and help others understand the true impact of NMO?The In America survey is now closed. To better understand the patient experience and realities of NMO, we are fielding our NMO In America survey. By taking this anonymous survey...Reactions 0 reactions Comments0 repliesAwareness
FeaturedMy NMO Diagnosis Has Changed My LifeMy life changed in November 2022, when I consulted for numbness of the right upper limp. After a series of Tests, I was told I had transverse myelitis and further...Reactions 0 reactions Comments14 replies
Active todayHave you experienced neuropathic itch?Neuropathic itch is a fairly common symptom of people impacted by neurological health conditions, like NMOSD. Is this something you or a loved one has experienced? If so, what helped?...Reactions 0 reactions Comments0 repliesAwarenessSymptomsTips & Advice
Active yesterdayNMOSD and Misdiagnosis Being misdiagnosed can be painful and frustrating. Were you misdiagnosed before you were diagnosed with NMOSD?...Reactions 0 reactions Comments14 repliesDiagnosisNewly DiagnosedMental Health
Active 2 days agoNMO and alopecia Is anyone battling with hairloss since their diagnosis of NMO. My hair is suffering terribly. I'm not sure whether it's the NMO or side effects from medications and treatment. I...Reactions 0 reactions Comments18 repliesDiagnosis
The Rare Disease effectHaving a rare disease is not something that everyone can understand. Oftentimes, the majority of people who don't understand how life changes after having a rare diagnosis diagnosis, back away...Reactions 0 reactions Comments8 repliesMental HealthFriends & FamilyRelationships & Friendships
Advice for someone who is newly diagnosed with NMOWhat do you wish someone had told you when you were first diagnosed? Share your tips and insights with new community members in the comments 💚...Reactions 0 reactions Comments3 repliesTips & AdviceDiagnosis
Mental Health Hi Fam! What are some struggles you have with your mental health and how do you cope? Personally I’ve been struggling with depression, and something that helps me get out...Reactions 0 reactions Comments1 repliesCopingMental Health
Your diagnosis in one wordHi NMO fam, If you could describe your diagnosis in one word, what would it be?...Reactions 0 reactions Comments34 repliesDiagnosis
FeaturedPLEX / Infusion AdviceHi! Do you have any advice for anyone who is scheduled to receive their first infusion treatment? ...Reactions 0 reactions Comments8 repliesPlasma ExchangeTreatment & MedicationTips & Advice
FeaturedWhat was your first symptom?What was your first symptom of NMO?...Reactions 0 reactions Comments31 repliesSymptoms
How long will the arm seizures last? I was diagnosed with MO September 2023. I’ve not progressed to the point where my arms are doing the seizing thing that makes a little difficult and moving a little...Reactions 0 reactions Comments0 replies