My Rituxan ExperienceI want to share a piece of my journey with you, a journey that has been significantly altered by one little bottle of Rituxan. That bottle might not look like...reactionscomments
Embracing Change With Neuromyelitis OpticaI've certainly had my share of unexpected twists and turns since my diagnosis with neuromyelitis optica (NMO). This autoimmune disorder shook up my life plans, forcing me to adapt to...reactions2comments
From Misdiagnosis to DiagnosisGetting a diagnosis for a mysterious ailment can feel like searching for a needle in a haystack. It's frustrating, disheartening, and sometimes downright infuriating. My journey to an accurate diagnosis...reactions2comments
Trust Your Voice: Understanding Medical Gaslighting and NMOImagine going to the doctor for help, but they don't take your symptoms seriously or tell you it's all in your head. This is called medical gaslighting. It can make...reactionscomments
Finding Balance: Navigating Toxic Positivity and Neuromyelitis OpticaLife is a beautiful journey filled with ups and downs. It's natural for us to experience a wide range of emotions as we go through life. However, society's focus on...reactionscomments
My Lowest Point With NMO, and How a Four-Legged-Friend Saved MeWhen I tell people about my condition, they expect that my lowest point must have been in hospital after my first neuromyelitis optica (NMO) attack. I was paralysed from the...reactionscomments
Being Present with Neuromyelitis OpticaSince my Neuromyelitis Optica (NMO) diagnosis in 2014, I find it hard to strike the right balance between enjoying a bit of reflection and spending too much time with my...reactionscomments
My NMO Travel Blog ExperienceI was working in management for a charity organization in 2014 when I had my first Neuromyelitis Optica attack. I haven’t been able to work conventionally since. That's due to...reactionscomments
My NMO Relapses Are Slow BurnersMy first neuromyelitis-optica attack seemed to happen rapidly and dramatically. Although I had known something was wrong for months, it was only 48 hours from realizing I couldn’t pee to...reactionscomments
My NMO Diagnosis StoryI knew something was wrong for a couple of months. I kept making appointments with my doctor to discuss new symptoms that were appearing daily. First, it was searing hot...reactions1comment
What Is It Like Supporting Someone With NMO? I Interview My Caregiver!My wife is also my caregiver. It’s a fine balancing act between our romantic relationship and the practical support I need due to my Neuromyelitis Optica (NMO). We’d only been...reactions1comment
My Wheelchair Is My FreedomNot everyone diagnosed with neuromyelitis optica, or NMO, will need to use a wheelchair. However, some people do become full-time wheelchair users, and some people, like me, might use a...reactionscomments
Traveling with NMO: My Top 5 TipsLiving with neuromyelitis optica (NMO) doesn’t mean you have to say no to adventure. It just takes a little more planning. As a Scotland-based disability travel blogger, I’m a big...reactionscomments
