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Read conversations, start a discussion, and connect with others about neuromyelitis optica.

Dizziness, light headed

Does anyone experience dizziness or light headedness? For me it feels like all the blood is rushing from my head or a...

What keeps you comfortable with NMOSD?

Staying comfortable with NMOSD isn't always easy. Especially in the fall and winter months. What helps you stay comfortable?...

Is your partner also your caregiver ?

Often the roles are mesh together & its forgotten that before they became your caregiver they were your partner. How do you...

Having a severe first attack

I have had only one attack, but it was major. I was wondering how many people out there had a real bad...

Have you felt abnormal sensations?

Sometimes NMOSD can cause odd and unusual experiences, like burning, tingling and itching. Have you experienced any odd sensations from NMOSD?...

"Living with NMO and feeling alone – has anyone been through this?"

Hi everyone, I’m from India and I’ve been living with Neuromyelitis Optica (NMO) for the past 3 years. About 2 years ago...

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The Eyeball Headache

Hi NMOSD fam!! Let’s talk about the eyeball headache! That intense pain in the back of your eye that’s so deep and...

Recovery from attacks

What methods have helped you to recover from attacks?...

NMO Chronic Pain

How are you coping with NMO pain? Any tricks you may want to share to alleviate the symptoms?...

Fatigue

Does anyone else suffer with extreme fatigue? My brain wants to do stuff but physically I am exhausted. Some days I sleep...

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