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Read conversations, start a discussion, and connect with others about neuromyelitis optica.

Intimacy with NMOSD

How has NMOSD impacted your ability to be intimate? Share here and help others:...

Art with NMOSD

Many people diagnosed with NMOSD decide to start painting or doing other crafts. There are multiple reasons for this, we would like to hear from you. Do you make art?...

Just diagnosed at 70 years old. Is anyone like me out there?

I was just diagnosed yesterday. I really didn’t think I had it so it was a shock. I read most people get it in their thirties and forties. My symptoms...

Advocating for yourself

The road to an NMOSD diagnosis can be a long and frustrating one. So many people are dismissed by medical professionals, only to be told that their symptoms are all...

What about caregiving?

Caregiving can be challenging, esspecially with a condition as difficult and rare as NMOSD. What has your experience been like caregiving for NMOSD? What are your needs, as a caregiver?...

Triggers for worsening symptoms?

What triggers have you noticed for worsening or new symptoms? Did any occur after injury, or Covid, or prior to next 6 month infusion?...

NMO

I’ve recently been diagnosed with NMO. I’ve been paying critical illness insurance for years. MS is covered but my claim has been rejected as NMO is not listed. Can anyone...

Featured

PLEX / Infusion Advice

Hi! Do you have any advice for anyone who is scheduled to receive their first infusion treatment? ...

Vacationing with NMOSD?

NMOSD can create some obstacles in our day-to-day lives; everyone needs a vacation. How does having NMOSD affect your ability to take a vacation? What do you do to make...

Accessibility and NMOSD

For those with NMO, getting around can be particularly challenging. Since being diagnosed have you struggled with accessibility in your NMOSD journey? What has helped to make this part of...

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