Active 3 days agoNMO and alopecia Is anyone battling with hairloss since their diagnosis of NMO. My hair is suffering terribly. I'm not sure whether it's the NMO or side effects from medications and treatment. I...Reactions 0 reactions Comments17 repliesDiagnosis
Advice for someone who is newly diagnosed with NMOWhat do you wish someone had told you when you were first diagnosed? Share your tips and insights with new community members in the comments 💚...Reactions 0 reactions Comments3 repliesTips & AdviceDiagnosis
Your diagnosis in one wordHi NMO fam, If you could describe your diagnosis in one word, what would it be?...Reactions 0 reactions Comments34 repliesDiagnosis
FeaturedHow old were you when diagnosed with NMO?Curious, how old were you when you were originally diagnosed? ...Reactions 0 reactions Comments28 repliesDiagnosisSymptoms
NMOSD and Misdiagnosis Being misdiagnosed can be painful and frustrating. Were you misdiagnosed before you were diagnosed with NMOSD?...Reactions 0 reactions Comments13 repliesDiagnosisNewly DiagnosedMental Health
Having a severe first attack I have had only one attack, but it was major. I was wondering how many people out there had a real bad first onset of this disease. My first attack...Reactions 0 reactions Comments1 repliesDiagnosisAwareness
Neuro OpticaBeen diagnosed with: Optic Neurits, torturous version n left eye& somethings wrapped bg with your left eye.All by Optlamoligists. Now I’ve just been told that I don’t have any of...Reactions 0 reactions Comments2 repliesDiagnosis
Need help. I am new to this community NMO has been there with me for years now. I’ve coped up with this condition and trying to lead a normal life. But sometimes i feel so alone as no...Reactions 0 reactions Comments4 repliesCopingDiagnosis
Does focal seizure have any relation to nmo?I am recently facing it and my brain mri also shows...Reactions 0 reactions Comments0 repliesDiagnosis
My story of NMOI am glad to be part of this family. I had been looking for a community like this since I was diagnosed with Neuromylitis optica in November 2022. I am...Reactions 0 reactions Comments7 repliesCopingDiagnosis