Lisa McDaniel’s awareness of rare disease began in 2007, after the onset of Neuromyelitis Optica Spectrum Disorder (NMOSD) in her 5 year old son, Collin. She learned what it took to be a “Rare Mom” and fought for her son’s life. After Collin’s death in 2012, Lisa switched gears and went to work for the Guthy-Jackson Charitable Foundation (GJCF), where she serves as the Director of Patient Advocacy. She uses her extensive caregiver experience to help other patients and families living with NMOSD. Read more.
