You Don't Look SickI was traveling when a wave of NMOSD spasms hit me. I was standing when this happened, and I politely asked one of the passengers who was sitting in the... By Kshirja Singh3 min readBookmark for later
Living With A Suprapubic Catheter and NMODeciding to get a suprapubic catheter for a wheelchair-bound person like myself, with my neurogenic bladder with severe UTIs, was a no-brainer. I had been dealing with a severe and... By Aldelly V.2 min readBookmark for later
Financial Struggles with NMOSDI was watching an interview and this lady said, “If you have money you can afford to fall sick." And I could not agree more with this statement. I mean,... By Kshirja Singh3 min readBookmark for later
You Don't Look SickI was traveling when a wave of NMOSD spasms hit me. I was standing when this happened, and I politely asked one of the passengers who was sitting in the... By Kshirja Singh3 min readBookmark for later
Living With A Suprapubic Catheter and NMODeciding to get a suprapubic catheter for a wheelchair-bound person like myself, with my neurogenic bladder with severe UTIs, was a no-brainer. I had been dealing with a severe and... By Aldelly V.2 min readBookmark for later
Financial Struggles with NMOSDI was watching an interview and this lady said, “If you have money you can afford to fall sick." And I could not agree more with this statement. I mean,... By Kshirja Singh3 min readBookmark for later
You Don't Look SickI was traveling when a wave of NMOSD spasms hit me. I was standing when this happened, and I politely asked one of the passengers who was sitting in the... By Kshirja Singh3 min readBookmark for later
Living With A Suprapubic Catheter and NMODeciding to get a suprapubic catheter for a wheelchair-bound person like myself, with my neurogenic bladder with severe UTIs, was a no-brainer. I had been dealing with a severe and... By Aldelly V.2 min readBookmark for later
Financial Struggles with NMOSDI was watching an interview and this lady said, “If you have money you can afford to fall sick." And I could not agree more with this statement. I mean,... By Kshirja Singh3 min readBookmark for later
My Neurogenic BladderOne of my very first symptoms before getting diagnosed with NMO was having problems with my bladder. After experiencing many embarrassing moments with my bladder, getting pelvic floor therapy, and... By Aldelly V.2 min readBookmark for laterReactions0reactionsComments0 comments
How Being A Carer With NMO Changed MeMy mum is a carer. She has been a carer for around 4 years. She was also my carer during my NMO attack and recovery. She is a wonderful woman,... By Haleemah Sarwar2 min readBookmark for laterReactions0reactionsComments0 comments
Recent NMO diagnosisLast year July 2023 I started vomiting uncontrollably. I wasn't able to keep anything down, even drinking smoothies or shakes proved to be difficult. I eventually visited a local doctor's...Bookmark for laterReactions0reactionsComments1 comments
Will you take our In America survey and help others understand the true impact of NMO?The In America survey is now closed. To better understand the patient experience and realities of NMO, we are fielding our NMO In America survey. By taking this anonymous survey...Bookmark for laterReactions0reactionsComments0 replies
