Financial Struggles with NMOSDI was watching an interview and this lady said, “If you have money you can afford to fall sick." And I could not agree more with this statement. I mean,... By Kshirja Singh4 min readBookmark for later
My Spinal Tap ProcedureI laid on a flatbed in a curled baby fetal position and was told by the anesthesiologist to try and stay still as he prepped my back for a spinal... By Aldelly V.3 min readBookmark for later
Navigation and Accessibility: NMOSD ObstaclesNMOSD came as a real eye-opener for me holistically. I used to see specially-abled people walk by, unaware of the challenges they must face in a zillion ways. Now I... By Kshirja Singh4 min readBookmark for later
Financial Struggles with NMOSDI was watching an interview and this lady said, “If you have money you can afford to fall sick." And I could not agree more with this statement. I mean,... By Kshirja Singh4 min readBookmark for later
My Spinal Tap ProcedureI laid on a flatbed in a curled baby fetal position and was told by the anesthesiologist to try and stay still as he prepped my back for a spinal... By Aldelly V.3 min readBookmark for later
Navigation and Accessibility: NMOSD ObstaclesNMOSD came as a real eye-opener for me holistically. I used to see specially-abled people walk by, unaware of the challenges they must face in a zillion ways. Now I... By Kshirja Singh4 min readBookmark for later
Financial Struggles with NMOSDI was watching an interview and this lady said, “If you have money you can afford to fall sick." And I could not agree more with this statement. I mean,... By Kshirja Singh4 min readBookmark for later
My Spinal Tap ProcedureI laid on a flatbed in a curled baby fetal position and was told by the anesthesiologist to try and stay still as he prepped my back for a spinal... By Aldelly V.3 min readBookmark for later
Navigation and Accessibility: NMOSD ObstaclesNMOSD came as a real eye-opener for me holistically. I used to see specially-abled people walk by, unaware of the challenges they must face in a zillion ways. Now I... By Kshirja Singh4 min readBookmark for later
Is NMO Causing My Thyroid Issues?Writing has been a huge help over the last few years with NMO. It's been a great way to share my personal experience with a disease that many know nothing... By Dan Marino3 min readBookmark for laterReactions0reactionsComments0 comments
Support One Another: Relationships With NMOSDLiving with neuromyelitis optica spectrum disorder (NMOSD) comes with challenges, both physical and emotional. One major challenge of living with a rare disease is finding a "new normal" when it... By Neuromyelitis-Optica.net Team1 min readBookmark for laterReactions0reactionsComments0 comments
Recent NMO diagnosisLast year July 2023 I started vomiting uncontrollably. I wasn't able to keep anything down, even drinking smoothies or shakes proved to be difficult. I eventually visited a local doctor's...Bookmark for laterReactions0reactionsComments0 comments
Will you take our In America survey and help others understand the true impact of NMO?The In America survey is now closed. To better understand the patient experience and realities of NMO, we are fielding our NMO In America survey. By taking this anonymous survey...Bookmark for laterReactions0reactionsComments0 replies
