Patients Know What WorksOften times when we are diagnosed with a rare disease, we have first been misdiagnosed with multiple other diseases. There are times when patients are put on so many different... By Teaira-DanielsBookmark for later
Living with NMOSD SpasmsAs if living with NMOSD isn't challenging enough, there is always that one thing that's worthy of a full conversation. You know that one thing that's so bothersome that you... By Shekita GreenBookmark for later
To Eat or Not to Eat with NMOTo eat or not to eat because of NMO lethargy should NEVER be a question. Whether one feels too exhausted to think of something to eat or too tired to... By Marlene AustinBookmark for later
Patients Know What WorksOften times when we are diagnosed with a rare disease, we have first been misdiagnosed with multiple other diseases. There are times when patients are put on so many different... By Teaira-DanielsBookmark for later
Living with NMOSD SpasmsAs if living with NMOSD isn't challenging enough, there is always that one thing that's worthy of a full conversation. You know that one thing that's so bothersome that you... By Shekita GreenBookmark for later
To Eat or Not to Eat with NMOTo eat or not to eat because of NMO lethargy should NEVER be a question. Whether one feels too exhausted to think of something to eat or too tired to... By Marlene AustinBookmark for later
Patients Know What WorksOften times when we are diagnosed with a rare disease, we have first been misdiagnosed with multiple other diseases. There are times when patients are put on so many different... By Teaira-DanielsBookmark for later
Living with NMOSD SpasmsAs if living with NMOSD isn't challenging enough, there is always that one thing that's worthy of a full conversation. You know that one thing that's so bothersome that you... By Shekita GreenBookmark for later
To Eat or Not to Eat with NMOTo eat or not to eat because of NMO lethargy should NEVER be a question. Whether one feels too exhausted to think of something to eat or too tired to... By Marlene AustinBookmark for later
What Is In My Infusion Bag?In this video, I share what is in my infusion bag. ... By Haleemah SarwarBookmark for later Reactions 0 reactions Comments0 comments
A Kidney Infection or Something Else?As we all know, when we're on treatment that suppresses our immune system, we will be at risk of catching infections more frequently. Because of this, the month of June... By Haleemah SarwarBookmark for later Reactions 0 reactions Comments5 comments
Realizing and Attempting to AdaptI am currently 21 and as of right now I have had knowledge of my disease for two years. Doctors believe I’ve had it for over 10 years but never...Bookmark for later Reactions 0 reactions Comments0 comments
Constant headaches that don’t go awayI got diagnosed early this year I’ve now started getting headaches all over and sometimes shooting pains on side of my head. Has anyone else experienced this or anything similar. ...Bookmark for later Reactions 0 reactions Comments8 replies
