Aldelly Vasquez

Photo portrait of Neuromyelitis Optica community advocate Aldelly Vasquez.My name is Aldelly and I’m fabulously living with neuromyelitis optica (Devic’s disease). A rare demyelinating inflammatory disease that has changed my world. I’m in my early 30’s, a mother of two young active boys, a proud daughter of immigrant parents, a sister and so much more. I graduated from Salem State University (major in Spanish Professionalism, minor in Social Work). I'm also a certified translator and public notary for the state of MA.

My diagnosis journey hasn’t been easy and is one of the main reasons why I advocate for patient rights. I started experiencing symptoms in 2013 with a limp in my walk, fatigue, migraines and bladder issues. It took me 3 years to get a diagnosis with neuromyelitis optica,2016.

With building frustration, I decided to make a YouTube video on how I was diagnosis and my journey to date. With that came an outpouring of support from family, friends and strangers, especially in the online community. After that I started dabbling with creating YouTube videos, advocating heavily on Instagram to building my own website. I feel as though my advocacy presence online has helped many people on their nmo journey .

In addition to my blog, I’m active on Instagram, Facebook, YouTube and Twitter, where I share nmo information (including how I manage my symptoms, treatment experiences, and what daily life is like with the condition), with the nmo community and share information about products that have helped me manage nmo symptoms. I have spoken about nmo on several podcasts, including “The Autoimm[you]ne Podcast,” “A Moment for Mom,” “Spastic Chatter,” and “Wind and Cloud.” This past NMO Awareness Month, I partnered with Genentech on a sponsored article that was placed in ~1K news outlets across the country, highlighting my journey with NMO, experience and how I found a community through social media. I also participated on Rare Diseases Day by sharing my story and painting my hands in honor of the day.

I plan to continue my work and sharing my experiences with nmo on this new journey.

Find me:

Instagram: fab_nmo
Facebook: FAB NMO
Youtube : FabNMO
Twitter: Fab NMO

Click here to read all of Aldelly’s articles on

By providing your email address, you are agreeing to our privacy policy. We never sell or share your email address.