I’m sorry you’re feeling frustrated. Is there something in particular that’s making you feel that way? Thinking of you, Julie (team member)
Natz101
loss of independence. Have to depend on others to go bed and for meals. Sometimes put on clothes.
Walking is a challenge.
Julie.Byers
losing so much of your independence can be very challenging and frustrating, we understand. Many others in the community have voiced similar feelings, you’re not alone. I thought this article may resonate with you, and possibly offer some helpful suggestions https://neuromyelitis-optica.net/assistive-devices. Please reach out to the community anytime. We’re here to support you💙. Sending positive thoughts and wishes, Julie (team member)