16 years misdiagnosed with MS
Hello, I'm Brittany!
I was first diagnosed with Relapsing Remitting Multiple Sclerosis when I was 15 and have been dealing with the trials and tribulations that come along with it. I was only in high school and it was 2007 at the time.
NMOSD Misdiagnosis
I never knew anything about NMOSD only Optic Neuritis. I've gone through many different treatments and never felt any better like I've seen other people have and never questioned it. Then about 14 years later I move to FL to help my grandmother who was diagnosed with stage 0 Breast Cancer and she was healed after a mastectomy and we parted ways. I was left alone with my boyfriend and pregnant with nowhere to go. Luckily things came through at the right time although after my pregnancy, I was declining badly.
Sever symptoms, worsening
I was always falling, I was super weak everywhere and didn't feel like my treatment was working. My Neurologist at the time said I could be progressing to Secondary Progressive MS but never did any tests and later left my hospital. After a few months I found a new Neurologist and she immediately had me get MRI's and blood tests done. Low and behold I tested positive for AQP4 and they said MS was misdiagnosed on 07/24, which is common. I was depressed and stressed out, not sure of what to do with this diagnosis and I'm caring for a 1 year old.
Currently needing help
Currently, I'm not doing very well. I'll soon have an ambulatory wheelchair. I cannot get much done without my significant other and its very stressful. I just started Enspryng and restarted physical therapy but I'm still struggling. I can't do as much as I used to but I still try, at least. I'll always be a very positive person, I just wish I had my independence back. I'll keep fighting and staying strong for my family.
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