Life

Last updated: December 2022

Hi. In 2019 I got diagnosed with transverse myelitis. My legs were not moving at all. I went to the er they drain 2 1/2 liters of fluid out of my body. I was almost septic 7. I was in the hospital for 5 days. When I was there they give me steroids for five days. My legs started moving but I was having spasms. They transferred me to a rehabilitation place. I was doing therapy and I was there for a month. In the last few days when I started taking a couple of steps. Thank god my upper body was strong.

Back to the hospital

From there I lived with my parents for 4 months. While I was there I was getting therapy at the house and long story short I was walking in 9 months by one year of the diagnosis I was back to normal, But that’s when Covid happen in 2020. I was being careful. I wore my mask everywhere. I was good until this year in June of 2022. It flared up. I started dragging one leg then the other one and then I was done and couldn’t move them. Here I go again, hospital.

A new diagnosis

This time they diagnosed me with NMO. It's under the same umbrella of transverse myelitis, I have been back and forth between hospital and rehab since June until now. Well, they did a transfusion of Plasmapheresis treatment. They do 5 rounds of Plasmapheresis. I have gotten 3 sets of 5 rounds. Finally, 3 sets of one work. My legs are moving a little bit. I’m still fighting it. Still doing therapy. I get spasms here and there. But over I’m doing ok. Lived by one day at a time. Hope this story helps.

 

Share Your NMO Story Today

Help others feel a little less alone

Share My Story

By providing your email address, you are agreeing to our privacy policy.

More on this topic

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The Neuromyelitis-Optica.net team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.

Join the conversation

Please read our rules before commenting.

Community Poll

Have you taken our In America Survey yet?