My Daughter's Diagnosis Prepared Me for MineBeing diagnosed with NMO has been quite the journey for me. It took 3 years after I initially began getting sick to...reactions5comments
Let’s Talk Doctors and Advocating for YourselfHow many times have you gone to the doctor with a complaint, only to be told there is nothing wrong? I’m sure...reactionscomments
Special Assistance When Traveling“The Air Carrier Access Act (ACAA) is a law that makes it illegal for airlines to discriminate against passengers because of their...reactions2comments
My First Trip After My NMO AttackI'd spent 7 months recovering from my first attack. It’s been two months since I've been off steroids and I had finally...reactions4comments
Nursing Homes, Rehab Centers, and an Accurate DiagnosisAfter spending three months in the hospital, I was discharged and sent to a nursing home. Thank God I was only there...reactionscomments
My Long Journey to a Diagnosis: Part 1I have grown to love sharing my journey. At first becoming paralyzed was a hard pill to swallow. I could not believe...reactionscomments
Post-Surgery: Bye-Bye Spasms?Editor's note: In a previous article, Aldelly discussed having surgery to install a baclofen pump to help treat spasms. To read that...reactionscomments
Post-Infusion Nerve Pain and Back on SteroidsI had my first infusion in January. I was so happy to start a preventative treatment so I could finally get off...reactions9comments
My storyHello, I was diagnosed in 2016 and I'm from Slovenia 🇸🇮. It noticed my right hand was numb I began to have...reactions3comments
Take the Health and Media Habits Survey!The Media Habits Survey is now closed. Thank you for your interest! Managing a chronic condition is not easy and can be...reactionscomments
AcceptanceLooking back on the day I was diagnosed with NMO, I realize it was all a whirlwind of emotions and pain, both...reactionscomments
Hali's Journey with NMOSD Part 3Editor's note: This article is part of a multi-part series. To read part one, click here, and to read part two, click...reactions2comments
Living with NMOSD for 40 yearsHi, I have NMOSD. Am 56 and live near Toronto, Ontario in Canada. I was diagnosed with MS in 1979 at age...reactions6comments
My Personal NMO JourneyMy story starts back in July of 2018. I was working at the local hospital as a Patient Advocate (loved my job)...reactions1comment
My Journey with NMO Part 5: Realizing I Had a ProblemEditor's note: To read part four of Dan's story, click on this link. This was the year that things would shape up...reactionscomments
My Journey With NMO Part 3: When It Gets DarkI was on top of the world and was really growing as a person. I thought I beat the fear I was...reactionscomments
Bad Experiences with Medical CareBeing a person of color in the United States, particularly a black woman, I'm very familiar with being treated differently. It's unfortunate, but...reactions3comments
Dealing with Loss after NMOThere are a ton of things that I was attached to before I had an NMO attack. I was a person who...reactionscomments
Social Media and Chronic IllnessI'm an 80s baby. You know, the era of cool kids? Kidding. I remember when my dad came home with clunky equipment...reactionscomments
Pandemic. Moving. And a Diagnosis.It's March 2020, my friend wins a trip to Mexico. Her husband can’t go, so I’m next in line! We get off...reactions2comments
