Living with NMOSD for 40 yearsHi, I have NMOSD. Am 56 and live near Toronto, Ontario in Canada. I was diagnosed with MS in 1979 at age 14. That was revised to NMOSD in 2018...reactions6comments
My History with NMO so Far Part 1Everyone's NMO journey can be extremely different or be very similar. From what I've seen since joining this amazing site is that my case is different. I feel that so...reactionscomments
The NMO Learning CurveThere is a seemingly never-ending learning curve that goes hand in hand with an NMO diagnosis. One of the most difficult aspects of living with NMO has been the process...reactionscomments
The Holiday Blues: Living With a Chronic Illness Like NMOWe've gotten past Thanksgiving and Christmas is just right around the corner. This is a time to gather with family and friends, enjoy the moment, and embrace the fun times...reactionscomments
Let's Talk NMO Attacks and Hospitalizations Part 2We asked three of our neuromyelitis-optica.net advocates, Mo Jones, Chelsey Tucker, and Aldelly Vasquez to describe their recent experiences with hospitalization due to NMO attacks, also known as relapses. This...reactionscomments
Pandemic. Moving. And a Diagnosis.It's March 2020, my friend wins a trip to Mexico. Her husband can’t go, so I’m next in line! We get off the plane in Mexico to multiple texts telling...reactions2comments
My NMO Journey and Why I'm ThankfulWhy am I here? What is my purpose? Why me? Why THIS disease? What did I do wrong? What can I possibly offer this world to still be here? Why?...reactions1comment
The 411 on Working From HomeThe COVID-19 pandemic undeniably changed the way that much of the world works. For decades, those who worked in offices did their work entirely from those offices, with the exception...reactionscomments
Baby Boomer Men, Meds, and the MoonEditor’s Note: This article was originally shared by our sister site, skincancer.net, and was written by Scott Matheny. Our parents and grandparents stormed the beaches of Normandy and helped put...reactionscomments
The Initial DiagnosisSo, you've been diagnosed with NMOSD. What do you do now? I was diagnosed with NMOSD in the middle of a pandemic. Looking back to that moment, my neurologist said...reactionscomments
Three Legal Documents Caregivers NeedAs a caregiver, you may be in charge of a partner, parent, or grandparent who lives with NMO. Some may experience drastic life changes when living with NMO, such as...reactionscomments
Voting with a Health Condition: What to KnowVoting is a fundamental American right, but it has special meaning for people with disabilities or health conditions like NMO. Until federal laws like the Americans with Disabilities Act (ADA)...reactionscomments
Test Your Knowledge about NMO!How much do you know about NMO? We're about to find out! Answer the six questions below and then see how you did.0-1: Maybe it’s time to brush up on...reactionscomments
My Personal NMO JourneyMy story starts back in July of 2018. I was working at the local hospital as a Patient Advocate (loved my job). I started with a “pulled muscle” type of...reactions1comment
Become a Neuromyelitis-Optica.net Advocate!Would you like to share your experience with the NMO community and help others who are also living with this diagnosis? Whether you live with NMO yourself or are a...reactionscomments
Disability BenefitsWhen you have a long-term (chronic) medical condition like NMO, there may be times when you are not able to work. This can seriously impact your finances and your family’s...reactionscomments
Applying for Social Security Disability BenefitsLiving with a long-term (chronic) health condition like NMO may make working impossible at some point. The symptoms from your condition can impact your ability to get your job done...reactionscomments
Steroids: The Good, The Bad, and The UglyIf you or someone you love has NMO, you are probably familiar with corticosteroids like prednisone, solu-medrol, and many more. Prescribed in very high doses during an attack, steroids work...reactionscomments
The Dreaded NMO PainI was first diagnosed with NMO in February 2020. It took 7 years for me to get to this point after being misdiagnosed in 2013. During that time, I was...reactions6comments
Things I Wish I Knew When I Was First DiagnosedBeing diagnosed with neuromyelitis optica can be scary, but staying optimistic is key. I remember feeling shocked, lost, alone, scared, with too many emotions ran through my veins. No one...reactionscomments
