Patients Know What WorksOften times when we are diagnosed with a rare disease, we have first been misdiagnosed with multiple other diseases. There are times...reactions2comments
To Eat or Not to Eat with NMOTo eat or not to eat because of NMO lethargy should NEVER be a question. Whether one feels too exhausted to think...reactionscomments
A Kidney Infection or Something Else?As we all know, when we're on treatment that suppresses our immune system, we will be at risk of catching infections more...reactions9comments
My Daughter's Diagnosis Prepared Me for MineBeing diagnosed with NMO has been quite the journey for me. It took 3 years after I initially began getting sick to...reactions5comments
Let’s Talk Doctors and Advocating for YourselfHow many times have you gone to the doctor with a complaint, only to be told there is nothing wrong? I’m sure...reactionscomments
Special Assistance When Traveling“The Air Carrier Access Act (ACAA) is a law that makes it illegal for airlines to discriminate against passengers because of their...reactions2comments
My First Trip After My NMO AttackI'd spent 7 months recovering from my first attack. It’s been two months since I've been off steroids and I had finally...reactions4comments
Nursing Homes, Rehab Centers, and an Accurate DiagnosisAfter spending three months in the hospital, I was discharged and sent to a nursing home. Thank God I was only there...reactionscomments
My Long Journey to a Diagnosis: Part 1I have grown to love sharing my journey. At first becoming paralyzed was a hard pill to swallow. I could not believe...reactionscomments
Post-Surgery: Bye-Bye Spasms?Editor's note: In a previous article, Aldelly discussed having surgery to install a baclofen pump to help treat spasms. To read that...reactionscomments
Post-Infusion Nerve Pain and Back on SteroidsI had my first infusion in January. I was so happy to start a preventative treatment so I could finally get off...reactions9comments
My storyHello, I was diagnosed in 2016 and I'm from Slovenia 🇸🇮. It noticed my right hand was numb I began to have...reactions3comments
Take the Health and Media Habits Survey!The Media Habits Survey is now closed. Thank you for your interest! Managing a chronic condition is not easy and can be...reactionscomments
AcceptanceLooking back on the day I was diagnosed with NMO, I realize it was all a whirlwind of emotions and pain, both...reactionscomments
Hali's Journey with NMOSD Part 3Editor's note: This article is part of a multi-part series. To read part one, click here, and to read part two, click...reactions2comments
Living with NMOSD for 40 yearsHi, I have NMOSD. Am 56 and live near Toronto, Ontario in Canada. I was diagnosed with MS in 1979 at age...reactions6comments
My Personal NMO JourneyMy story starts back in July of 2018. I was working at the local hospital as a Patient Advocate (loved my job)...reactions1comment
My Journey with NMO Part 5: Realizing I Had a ProblemEditor's note: To read part four of Dan's story, click on this link. This was the year that things would shape up...reactionscomments
My Journey With NMO Part 3: When It Gets DarkI was on top of the world and was really growing as a person. I thought I beat the fear I was...reactionscomments
Bad Experiences with Medical CareBeing a person of color in the United States, particularly a black woman, I'm very familiar with being treated differently. It's unfortunate, but...reactions3comments
