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My journey with NMO

Around October 2018, I had this terrible headache for a week. Nothing would help it, two doctor visits and nothing. Eventually, it went away after 7 days, and life seemed normal. Twice on different occasions afterward my legs buckled once while walking and the other while standing. I still didn't pay any attention to it.

In February 2019, I started feeling this numbness in my left leg I still didn't go to the doctor. Big mistake, that turned in to the my legs buckling and slow walking. I went to the ER and was placed in the hospital, this was the start of my 30 days in there.

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Being misdiagnosed

I was given a series of tests, first diagnosed transverse myelitis. Three days of steroids. Two weeks of Plasmapheresis (Plasma Exchange) every other day. I was paralyzed chest down and only had feeling in patches all over in the lower half of my body. I wasn't in any pain but was having spasms. I spent a week in rehab to learn to walk. Sent home in April 2019 in a wheelchair. Continued to do therapy at home.

Being diagnosed with NMO

30 days after hospital discharge, and I was diagnosed with NMO. They told me that I was misdiagnose the first time. I started taking more steps, then I advanced to walker and started water therapy. Five months later, in August 2019 relapsed in the hospital for 7 days. Started rituximab, been on this treatment up til this present time. Started out every 4 months, in December 2022 I started every 6 months. I only take this and vitamins (b12, magnesium, d3, potassium, zinc, and probiotics every 3 months for 30 days).

It's been 4 years and I'm living one day at a time with this condition. And bringing awareness to all. God has been truly good to me. I'm walking, I have my days but I push through.

Hello, community!

2 years after diagnosis and recovery

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.

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