It's Okay To FeelIt's okay to have a bad day, and it's okay to have a bad week. You don't need to beat yourself up for having a hard time or not feeling... By Haleemah Sarwar3 min readBookmark for laterReactions 0 reactions Comments7 comments
My Appointment With The NeuroThis was my first in-person appointment in Glasgow with my neurologist after going off steroids and starting Rituximab. He's an MS specialist - not an NMOSD specialist. My hospital has... By Haleemah Sarwar4 min readBookmark for laterReactions 0 reactions Comments3 comments
The Anxiety That Comes With My NMOLiving with a chronic illness like NMO, I have loads of thoughts crossing my mind daily. Only those who suffer from similar conditions can understand the toll that this stress... By Haleemah Sarwar3 min readBookmark for laterReactions 0 reactions Comments3 comments
Symptoms in winter Hey guys! Is anyone flaring because of the weather? what do you do to prevent this?...Reactions 0 reactions Comments5 repliesSymptoms
One Day, One Full Rituximab InfusionI had my first complete rituximab infusion for NMO on the 26th of July, the day before my 20th birthday. Finally, after having to postpone it twice due to catching... By Haleemah Sarwar2 min readBookmark for laterReactions 0 reactions Comments0 comments
My 4 NMO TriggersWe all have things that may trigger our NMO symptoms in our day-to-day lives. Triggers are different for everyone. As for me, I have many triggers which I never expected... By Haleemah Sarwar2 min readBookmark for laterReactions 0 reactions Comments3 comments
My Life Is Finally Falling Into PlaceLast year, it felt like my life was falling apart, and nothing would feel the same ever again. When I found out about my diagnosis, I wanted the ground to... By Haleemah Sarwar4 min readBookmark for laterReactions 0 reactions Comments8 comments
My NMO AnniversaryA year filled with constant ups and downs. Learning to live life as someone with a long-term illness wasn’t straightforward. When I first received the news that I had Neuromyelitis... By Haleemah Sarwar6 min readBookmark for laterReactions 0 reactions Comments4 comments
A Kidney Infection After COVIDI was sent home the same day. I was relieved as I hate staying in hospitals. I was told by an NMO specialist I would be liable for the COVID-19... By Haleemah Sarwar2 min readBookmark for laterReactions 0 reactions Comments0 comments
Neuromyelitis Optica and the Neuropathic ItchOne of the most troublesome symptoms of my NMOSD is neuropathic pruritis or neuropathic itch. It occurs due to damage to neurons of the peripheral or central nervous system. I... By Haleemah Sarwar2 min readBookmark for laterReactions 0 reactions Comments7 comments
Graduating College With NMOI am a legal student. I studied Legal Services in college. I graduated in year 1 of Legal Services with an A, but this was before my health went downhill... By Haleemah Sarwar3 min readBookmark for laterReactions 0 reactions Comments4 comments
Pain Medications: A Process Of Trial And ErrorThe first pain medication I took for my nerve pain, even before my diagnosis, was Duloxetine. It helped calm down the burning pain I had, but at the time, I... By Haleemah Sarwar2 min readBookmark for laterReactions 0 reactions Comments0 comments
How I Learned to Cope With My NMO DiagnosisI have tried to cope with living with a long-term illness in many different ways since my diagnosis of NMOSD. When I was first diagnosed, I had no idea what... By Haleemah Sarwar3 min readBookmark for laterReactions 0 reactions Comments2 comments
Life On PrednisolonePrednisolone is a steroid medication used to reduce inflammation. It is used for many inflammatory conditions, just as it is used for those with NMOSD. I should be grateful that... By Haleemah Sarwar2 min readBookmark for laterReactions 0 reactions Comments0 comments
Life After My NMO DiagnosisSince being diagnosed with NMOSD, I feel like a completely different person. My outlook on life has changed. Health wasn't something I took seriously. My focus on life was just... By Haleemah Sarwar3 min readBookmark for laterReactions 0 reactions Comments0 comments
What Is In My Infusion Bag?In this video, I share what is in my infusion bag. ... By Haleemah Sarwar1 min readBookmark for laterReactions 0 reactions Comments2 comments
A Kidney Infection or Something Else?As we all know, when we're on treatment that suppresses our immune system, we will be at risk of catching infections more frequently. Because of this, the month of June... By Haleemah Sarwar3 min readBookmark for laterReactions 0 reactions Comments9 comments
Traveling With NMO: TipsFor those who have live with NMOSD for awhile, or for those who have been recently diagnosed, it can be hard to adjust to traveling long distances. Along with long... By Haleemah Sarwar3 min readBookmark for laterReactions 0 reactions Comments0 comments
Visiting the NMO ClinicThe hospital in my city does not have a NMO specialist, NMO nurses or an NMO team. My neurologist is an MS specialist but is still very supportive when it... By Haleemah Sarwar2 min readBookmark for laterReactions 0 reactions Comments0 comments
Dealing With Brain Fog as a StudentBeing a student alone is very difficult. On top of that, having a chronic illness and extreme brain fog makes things even more complicated. From what I can remember, even... By Haleemah Sarwar2 min readBookmark for laterReactions 0 reactions Comments4 comments