Preparing for My First Day of UniversityCOVID-19 hit the world in 2020. The whole of Scotland went into lockdown. All schools shut down. The two-week lockdown ended up lasting for months. That meant my last year...Reactions0reactionsComments0 comments
The First MRI After My AttackI was referred for an MRI of my brain and neck after a little NMO scare in February of this year. I may have had a relapse. I experienced migraines...Reactions0reactionsComments2 comments
Tips For The Newly DiagnosedIt was the fourth week of September, almost three weeks of being stuck in a hospital room alone and in pain. The doctor told me to call my parents to...Reactions0reactionsComments1 comments
It's Okay To FeelIt's okay to have a bad day, and it's okay to have a bad week. You don't need to beat yourself up for having a hard time or not feeling...Reactions0reactionsComments7 comments
My Appointment With The NeuroThis was my first in-person appointment in Glasgow with my neurologist after going off steroids and starting Rituximab. He's an MS specialist - not an NMOSD specialist. My hospital has...Reactions0reactionsComments3 comments
The Anxiety That Comes With My NMOLiving with a chronic illness like NMO, I have loads of thoughts crossing my mind daily. Only those who suffer from similar conditions can understand the toll that this stress...Reactions0reactionsComments3 comments
Symptoms in winter Hey guys! Is anyone flaring because of the weather? what do you do to prevent this?...Reactions0reactionsComments5 repliesSymptoms
One Day, One Full Rituximab InfusionI had my first complete rituximab infusion for NMO on the 26th of July, the day before my 20th birthday. Finally, after having to postpone it twice due to catching...Reactions0reactionsComments0 comments
My 4 NMO TriggersWe all have things that may trigger our NMO symptoms in our day-to-day lives. Triggers are different for everyone. As for me, I have many triggers which I never expected...Reactions0reactionsComments3 comments
My Life Is Finally Falling Into PlaceLast year, it felt like my life was falling apart, and nothing would feel the same ever again. When I found out about my diagnosis, I wanted the ground to...Reactions0reactionsComments8 comments
My NMO AnniversaryA year filled with constant ups and downs. Learning to live life as someone with a long-term illness wasn’t straightforward. When I first received the news that I had Neuromyelitis...Reactions0reactionsComments4 comments
A Kidney Infection After COVIDI was sent home the same day. I was relieved as I hate staying in hospitals. I was told by an NMO specialist I would be liable for the COVID-19...Reactions0reactionsComments0 comments
Neuromyelitis Optica and the Neuropathic ItchOne of the most troublesome symptoms of my NMOSD is neuropathic pruritis or neuropathic itch. It occurs due to damage to neurons of the peripheral or central nervous system. I...Reactions0reactionsComments7 comments
Graduating College With NMOI am a legal student. I studied Legal Services in college. I graduated in year 1 of Legal Services with an A, but this was before my health went downhill...Reactions0reactionsComments4 comments
Pain Medications: A Process Of Trial And ErrorThe first pain medication I took for my nerve pain, even before my diagnosis, was Duloxetine. It helped calm down the burning pain I had, but at the time, I...Reactions0reactionsComments0 comments
How I Learned to Cope With My NMO DiagnosisI have tried to cope with living with a long-term illness in many different ways since my diagnosis of NMOSD. When I was first diagnosed, I had no idea what...Reactions0reactionsComments2 comments
Life On PrednisolonePrednisolone is a steroid medication used to reduce inflammation. It is used for many inflammatory conditions, just as it is used for those with NMOSD. I should be grateful that...Reactions0reactionsComments0 comments
Life After My NMO DiagnosisSince being diagnosed with NMOSD, I feel like a completely different person. My outlook on life has changed. Health wasn't something I took seriously. My focus on life was just...Reactions0reactionsComments0 comments
What Is In My Infusion Bag?In this video, I share what is in my infusion bag. ...Reactions0reactionsComments2 comments
A Kidney Infection or Something Else?As we all know, when we're on treatment that suppresses our immune system, we will be at risk of catching infections more frequently. Because of this, the month of June...Reactions0reactionsComments9 comments
