Traveling With NMO: TipsFor those who have live with NMOSD for awhile, or for those who have been recently diagnosed, it can be hard to adjust to traveling long distances. Along with long...Reactions0reactionsComments0 comments
Visiting the NMO ClinicThe hospital in my city does not have a NMO specialist, NMO nurses or an NMO team. My neurologist is an MS specialist but is still very supportive when it...Reactions0reactionsComments0 comments
Dealing With Brain Fog as a StudentBeing a student alone is very difficult. On top of that, having a chronic illness and extreme brain fog makes things even more complicated. From what I can remember, even...Reactions0reactionsComments4 comments
My First Trip After My NMO AttackI'd spent 7 months recovering from my first attack. It’s been two months since I've been off steroids and I had finally gained the tiniest bit of confidence back. I...Reactions0reactionsComments4 comments
My First Ramadan with NMOSD: My Experience with FastingRamadan is the ninth month of the Islamic year and is considered very special within the Muslim community. During this month, Muslims fast from dawn to dusk, which is known...Reactions0reactionsComments0 comments
Post-Infusion Nerve Pain and Back on SteroidsI had my first infusion in January. I was so happy to start a preventative treatment so I could finally get off steroids. The steroids had horrible side effects including...Reactions0reactionsComments9 comments
My Experience with RituximabI received a letter in the mail stating I was approved for Rituximab for NMO and the date I was to receive my first dose. It was in January, and...Reactions0reactionsComments6 comments
A Letter to MyselfThings will drastically change in the following years. You will go through many experiences you never imagined you would. These experiences will shape the type of person you are when...Reactions0reactionsComments0 comments
Hali's Journey with NMOSD Part 4: A Proper DiagnosisEditor's note: This article is part of a multi-part series. To read part one, click here, to read part two, click here, and to read part three, click here. I...Reactions0reactionsComments0 comments
Hali's Journey with NMOSD Part 3Editor's note: This article is part of a multi-part series. To read part one, click here, and to read part two, click here. The first week in the hospital was...Reactions0reactionsComments2 comments
Hali's Journey with NMOSD Part 2: Feeling Afraid, Losing HopeEditor's note: This article is part of a multi-part series. To read part one, please follow this link. Mentally, I was exhausted. I was only 19, I loved my life...Reactions0reactionsComments0 comments
Hali's Journey with NMOSD Part 1: No Relief, No AnswersI had just turned 19 two weeks earlier and was working as a soft playworker at my new childcare job. On the 9th of August 2021, unexpectedly I developed a...Reactions0reactionsComments0 comments