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Friendships/Relationships With NMO

Hi NMO fam!
Today I wanted to open up the conversation about how NMO has affected your relationships/friendships.
Personally for me, my diagnosis was a lot for people to deal with. So ultimately I “lost” a lot of best friends and struggled to find partners who understand what I go through.

Has anyone else struggled with this? And how do you learn to keep on moving?

Can’t wait to hear the responses!

  1. NMOSD showed me who my true friends are & who aren’t. I lost people so close to me that I thought i’d spend my life with. It’s sad but I took it as a blessing because my diagnosis got rid of those who were fake around me.

    1. me too... I didn't hear from some friends until I put a post on Facebook saying I'd been on holiday. I started to hear from some friends but decided myself who I was going to stay friends with and who not.

    2. I know that’s right girl do you and keep your head up we all been there

  2. omgosh! yes me! I totally relate to you. I lost several friends and it’s very difficult to have a relationship.

    1. It seems impossible sometimes!

      1. It brought me and my family closer, but showed me who my real friends were. My best friend was out one morning and saw a mobility scooter and sent me the image and said “ready for you” and thought that was funny. I’m in hospital and had just received the diagnosis. It’s good to find ways to laugh through hard times but that was a step too far. I haven’t spoken to her since.

        1. yes something was wrong with her

        2. That is so so horrible! I wouldn’t speak to her after that either, you made the right choice. You have our community to fall back on too🩷 don’t forget that. - Hali

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