"Living with NMO and feeling alone – has anyone been through this?"
Hi everyone,
I’m from India and I’ve been living with Neuromyelitis Optica (NMO) for the past 3 years. About 2 years ago, I experienced complete paralysis—my fingers and toes were locked, and I couldn’t even move them.
Now I’m starting to feel the symptoms returning—numbness, swelling in my hands and feet, sensitivity to light in my eyes, and a deep emotional heaviness.
But the hardest part is that my family doesn’t believe I need treatment. They think I’m overreacting, even though I was once fully paralyzed.
Lately, I find myself crying easily, feeling overwhelmed by even small things, and just emotionally drained.
Has anyone else gone through something like this—feeling unseen, unsupported, and scared that it might all come back?
I’m here to connect with someone who understands. Your experience might help me find a little strength.
Thank you for reading. 💙
It’s really hard when your family doesn’t understand, it can feel lonely and isolating. Our community understands, and your feelings are valid💙. I found a few articles that I hope will resonate with you, and remind you that you’re not alone https://neuromyelitis-optica.net/living/exhaustion and https://neuromyelitis-optica.net/living/loneliness. We’re here to support you anyway we can. Stay strong! Sending lots of positive vibes and well wishes, Julie (team member)
