FeaturedWill you take our In America survey and help others understand the true impact of NMO?The In America survey is now closed. To better understand the patient experience and realities of NMO, we are fielding our NMO In America survey. By taking this anonymous survey...Reactions0reactionsComments0 repliesAwareness
FeaturedMy NMO Diagnosis Has Changed My LifeMy life changed in November 2022, when I consulted for numbness of the right upper limp. After a series of Tests, I was told I had transverse myelitis and further...Reactions0reactionsComments14 replies
Active yesterdayHave you experienced heat intolerance? Some people who have experienced their first attack with NMOSD report experiencing heat intolerance. Have you felt heat intolerance?...Reactions0reactionsComments11 repliesAwarenessSymptomsTips & Advice
Active 2 days agoCan Neuromyelitis Optica Occur in Children?Yes, Neuromyelitis Optica (NMO) can occur in children, though it is relatively rare. Pediatric NMO often presents with similar symptoms to those seen in adults, including sudden vision loss, eye...Reactions0reactionsComments0 repliesSymptoms
Active 5 days agoHave you experienced side effects from NMOSD treatment? What have your treatments been? What were the side effects? How did you manage the side effects? Share here:...Reactions0reactionsComments3 repliesSide EffectsTreatment & MedicationAwareness
Active 8 days agoRituximabIs anyone on Rituximab? If so, can you please let me know your experience with it and how it affects you? Thank you. Any info will help....Reactions0reactionsComments0 repliesTreatment & Medication
What is Neuromyelitis Optica and How is it Managed?Neuromyelitis optica (NMO) is a rare autoimmune disorder that affects the central nervous system, specifically targeting the optic nerves and spinal cord. This condition leads to severe inflammation and demyelination...Reactions0reactionsComments0 repliesTreatment & Medication
FeaturedHow old were you when diagnosed with NMO?Curious, how old were you when you were originally diagnosed? ...Reactions0reactionsComments37 repliesDiagnosisSymptoms
How do you stay active with NMOSD? NMOSD can impact a person's ability to stay active; How do you stay active?...Reactions0reactionsComments3 repliesAwarenessExerciseTips & Advice
Just diagnosed at 70 years old. Is anyone like me out there?I was just diagnosed yesterday. I really didn’t think I had it so it was a shock. I read most people get it in their thirties and forties. My symptoms...Reactions0reactionsComments1 repliesNewly DiagnosedTips & AdviceAwareness
Have you gone to physical therapy for NMOSD? People with neuromyelitis optica spectrum disorder can often experience a loss of mobility. For some, they attend physical therapy to try and regain mobility. Have you had experience with physical...Reactions0reactionsComments6 replies
Advocating for yourselfThe road to an NMO diagnosis can be a long and frustrating one. So many people are dismissed by medical professionals, only to be told that their symptoms are all...Reactions0reactionsComments3 repliesAwarenessTips & Advice