FeaturedWill you take our In America survey and help others understand the true impact of NMO?The In America survey is now closed. To better understand the patient experience and realities of NMO, we are fielding our NMO In America survey. By taking this anonymous survey...Reactions0reactionsComments0 repliesAwareness
FeaturedMy NMO Diagnosis Has Changed My LifeMy life changed in November 2022, when I consulted for numbness of the right upper limp. After a series of Tests, I was told I had transverse myelitis and further...Reactions0reactionsComments15 replies
My long journeyI will be 70 in August and I have been dealing with first a diagnosis of Idiopathic MS by one MS Specialty doctor, then we moved across the country to...Reactions0reactionsComments5 replies
NMOSD and Misdiagnosis Being misdiagnosed can be painful and frustrating. Were you misdiagnosed before you were diagnosed with NMOSD?...Reactions0reactionsComments17 repliesDiagnosisNewly DiagnosedMental Health
Psoriasis Does anyone in this group have psoriasis along with NMOSD? I have both and my dermatologist wants me to take an immunosuppressant for it. I am already on Ultomiris for...Reactions0reactionsComments0 repliesTips & Advice
Newly diagnosed: How probable are subsequent attacksHey everyone! My awesome wife, who is 32 years old, recently received two significant pieces of news: she is pregnant with our second child; but...she has lost most of her...Reactions0reactionsComments1 replies
SolarisI will type those with NMO and 2020 have had 3 to 4 plasma exchanges at the last infusion treatment. I am receiving now is Solaris I cannot tell any...Reactions0reactionsComments0 replies
Have you experienced neuropathic itch?Neuropathic itch is a fairly common symptom of people impacted by neurological health conditions, like NMOSD. Is this something you or a loved one has experienced? If so, what helped?...Reactions0reactionsComments18 repliesAwarenessSymptomsTips & Advice
Having a severe first attack I have had only one attack, but it was major. I was wondering how many people out there had a real bad first onset of this disease. My first attack...Reactions0reactionsComments7 repliesDiagnosisAwareness
Dating with NMOSDNMOSD can impact pretty much every facet of our lives, including dating. - How has NMO impacted your dating habits? Are you currently dating? Do you use dating apps? How...Reactions0reactionsComments1 repliesRelationships & FriendshipsTips & AdviceAwareness