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Read conversations, start a discussion, and connect with others about neuromyelitis optica.

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Will you take our In America survey and help others understand the true impact of NMO?

The In America survey is now closed. To better understand the patient experience and realities of NMO, we are fielding our NMO In America survey. By taking this anonymous survey...

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My NMO Diagnosis Has Changed My Life

My life changed in November 2022, when I consulted for numbness of the right upper limp. After a series of Tests, I was told I had transverse myelitis and further...

Intimacy with NMOSD

How has NMOSD impacted your ability to be intimate? Share here and help others:...

The Rare Disease effect

Having a rare disease is not something that everyone can understand. Oftentimes, the majority of people who don't understand how life changes after having a rare diagnosis diagnosis, back away...

Your diagnosis in one word

Hi NMO fam, If you could describe your diagnosis in one word, what would it be?...

Do you have emotional support animals?

Living with NMOSD can be really stressful. Do you have any animal companions that support you emotionally? What are they and what are their names? (Share a picture!)...

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Friendships/Relationships With NMO

Hi NMO fam! Today I wanted to open up the conversation about how NMO has affected your relationships/friendships. Personally for me, my diagnosis was a lot for people to deal...

traveling as a paraplegic with NMOSD

I'm interested in doing some traveling. I'm interested in finding out how does one handle their incontinence when on a trip. Are there other ways besides wearing a brief?...

Physical disability and invisible symptom

Maintaining Quality of Life While Living with NMOSD: Balancing Long-Term Treatment, Visible Disabilities, and Invisible Symptoms...

10 years without relapse

I've had one attack in May 2014, I'm blind in my right eye. I've had Rutuximab and Steroids after first attack. At 7 years my neurologist took it as a...

What keeps you comfortable with NMO?

Staying comfortable with NMOSD isn't always easy. Especially in the fall and winter months. What helps you stay comfortable?...

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