FeaturedMy NMO Diagnosis Has Changed My LifeMy life changed in November 2022, when I consulted for numbness of the right upper limp. After a series of Tests, I was told I had transverse myelitis and further...reactions18replies
FeaturedWhat has NMOSD taught you?This forum is a space for individuals to share their experiences and insights gained from living with NMOSD. Whether you have been recently diagnosed or have been living with NMOSD...reactions5repliesCoping
Active todayHow do you stay active with NMOSD? NMOSD can impact a person's ability to stay active; How do you stay active?...reactions4repliesAwarenessExerciseTips & Advice
Active todayLiving with NMOSDHi, My name is Hyacinth and I wa officially diagnosed Jan 4 2022. I've been on steroids since then. 2025 Jan I was being tapered off. When I got to...reactions4repliesSymptomsRelapseSide Effects
Active 2 days agoNMOSD and Misdiagnosis Being misdiagnosed can be painful and frustrating. Were you misdiagnosed before you were diagnosed with NMOSD?...reactions19repliesDiagnosisNewly DiagnosedMental Health
Active 3 days ago"Living with NMO and feeling alone – has anyone been through this?"Hi everyone, I’m from India and I’ve been living with Neuromyelitis Optica (NMO) for the past 3 years. About 2 years ago, I experienced complete paralysis—my fingers and toes were...reactions1reply
Advice for someone who is newly diagnosed with NMOWhat do you wish someone had told you when you were first diagnosed? Share your tips and insights with new community members in the comments 💚...reactions8repliesDiagnosisTips & Advice
NMO and alopecia Is anyone battling with hairloss since their diagnosis of NMO. My hair is suffering terribly. I'm not sure whether it's the NMO or side effects from medications and treatment. I...reactions23repliesDiagnosis
What keeps you comfortable with NMO? Staying comfortable with NMOSD isn't always easy. Especially in the fall and winter months. What helps you stay comfortable?...reactions11repliesAwarenessFatigueTips & Advice
Finding meaning and adjusting to life with NMOSDNMOSD changes everything. Many people go from living full, active lives, to being limited. How have you adjusted? What are some new hobbies or activities that you've engaged in to...reactions4repliesCoping