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Community Forum: Advice for someone who is newly diagnosed with NMOSD

What do you wish someone had told you when you were first diagnosed? Share your tips and insights with new community members...

What helps spasms for you?

I wanted to know if anybody has spasms and what you do for them? Personally I have been having them very badly...

Triggers for worsening symptoms?

What triggers have you noticed for worsening or new symptoms? Did any occur after injury, or Covid, or prior to next 6...

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What was your first symptom?

What was your first symptom of NMO?...

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What has NMOSD taught you?

This forum is a space for individuals to share their experiences and insights gained from living with NMOSD. Whether you have been...

NMO and alopecia

Is anyone battling with hairloss since their diagnosis of NMO. My hair is suffering terribly. I'm not sure whether it's the NMO...

Respiratory Distress

My 30 year old daughter has been struggling for every breath she takes for the past five days. Her neurologist who specializes...

Have you experienced heat intolerance?

Some people who have experienced their first attack with NMOSD report experiencing heat intolerance. Have you felt heat intolerance?...

What helps you with fatigue?

There are so many reasons for why NMOSD might exhaust someone. What is the cause of your exhaustions? What helps you when...

Physical disability and invisible symptom

Maintaining Quality of Life While Living with NMOSD: Balancing Long-Term Treatment, Visible Disabilities, and Invisible Symptoms...

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