FeaturedMy NMO Diagnosis Has Changed My LifeMy life changed in November 2022, when I consulted for numbness of the right upper limp. After a series of Tests, I was told I had transverse myelitis and further...reactions20replies
FeaturedWhat has NMOSD taught you?This forum is a space for individuals to share their experiences and insights gained from living with NMOSD. Whether you have been recently diagnosed or have been living with NMOSD...reactions10repliesCoping
Active 3 days agoBurning sensation in breast and painful ear acheHas anyone experienced painful burning in the breast?...reactions8repliesSymptoms
Active 4 days ago"Living with NMO and feeling alone – has anyone been through this?"Hi everyone, I’m from India and I’ve been living with Neuromyelitis Optica (NMO) for the past 3 years. About 2 years ago, I experienced complete paralysis—my fingers and toes were...reactions3replies
Active 4 days agoStruggling with vision I got diagnosed in 2023 with aquapurina4 positive and nmo lost the vision in my right eye had lots of steroid on drip and plasma exchange but nothing worked since...reactions2replies
FeaturedHow old were you when diagnosed with NMO?Curious, how old were you when you were originally diagnosed? ...reactions56repliesDiagnosisSymptoms
Is your partner also your caregiver ?Often the roles are mesh together & its forgotten that before they became your caregiver they were your partner. How do you deal with maintaining clear boundaries?...reactions7repliesCaregivingRelationships & Friendships
NMOSD and Misdiagnosis Being misdiagnosed can be painful and frustrating. Were you misdiagnosed before you were diagnosed with NMOSD?...reactions20repliesDiagnosisNewly DiagnosedMental Health
IVIG to prevent relapseIs anyone being treated with IVIG and steroids to prevent relapse?...reactionsrepliesTreatment & Medication
Living with NMOSDHi, My name is Hyacinth and I wa officially diagnosed Jan 4 2022. I've been on steroids since then. 2025 Jan I was being tapered off. When I got to...reactions6repliesSymptomsRelapseSide Effects