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Read conversations, start a discussion, and connect with others about neuromyelitis optica.

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Accessibility and NMOSD

For those with NMO, getting around can be particularly challenging. Since being diagnosed have you struggled with accessibility in your NMOSD journey?...

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Fatigue

Does anyone else suffer with extreme fatigue? My brain wants to do stuff but physically I am exhausted. Some days I sleep...

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Cold Sensitivity

Short of staying inside all winter, does anyone else suffer with heat/cold extreme sensitivy. I was diagnosed in August 2018, and each...

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Triggers for worsening symptoms?

What triggers have you noticed for worsening or new symptoms? Did any occur after injury, or Covid, or prior to next 6...

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Your diagnosis in one word

Hi NMO fam, If you could describe your diagnosis in one word, what would it be?...

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My NMO Diagnosis Has Changed My Life

My life changed in November 2022, when I consulted for numbness of the right upper limp. After a series of Tests, I...

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What was your first symptom?

What was your first symptom of NMO?...

What helps spasms for you?

I wanted to know if anybody has spasms and what you do for them? Personally I have been having them very badly...

"Living with NMO and feeling alone – has anyone been through this?"

Hi everyone, I’m from India and I’ve been living with Neuromyelitis Optica (NMO) for the past 3 years. About 2 years ago...

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The Eyeball Headache

Hi NMOSD fam!! Let’s talk about the eyeball headache! That intense pain in the back of your eye that’s so deep and...

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