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Read conversations, start a discussion, and connect with others about neuromyelitis optica.

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Will you take our In America survey and help others understand the true impact of NMO?

The In America survey is now closed. To better understand the patient experience and realities of NMO, we are fielding our NMO In America survey. By taking this anonymous survey...

Featured

My NMO Diagnosis Has Changed My Life

My life changed in November 2022, when I consulted for numbness of the right upper limp. After a series of Tests, I was told I had transverse myelitis and further...

Dating with NMOSD

NMOSD can impact pretty much every facet of our lives, including dating. - How has NMO impacted your dating habits? Are you currently dating? Do you use dating apps? How...

My long journey

I will be 70 in August and I have been dealing with first a diagnosis of Idiopathic MS by one MS Specialty doctor, then we moved across the country to...

Have you experienced neuropathic itch?

Neuropathic itch is a fairly common symptom of people impacted by neurological health conditions, like NMOSD. Is this something you or a loved one has experienced? If so, what helped?...

Having a severe first attack

I have had only one attack, but it was major. I was wondering how many people out there had a real bad first onset of this disease. My first attack...

What helps you with fatigue?

There are so many reasons for why NMOSD might exhaust someone. What is the cause of your exhaustions? What helps you when you are feeling fatigued?...

questionnaire for patients with NMO

Hi everyone, I am administering this questionnaire in several languages and so this is an international study. I am a nursing student and for my thesis I am carrying out...

Recovery from attacks

What methods have helped you to recover from attacks?...

Intimacy with NMOSD

How has NMOSD impacted your ability to be intimate? Share here and help others:...

The Rare Disease effect

Having a rare disease is not something that everyone can understand. Oftentimes, the majority of people who don't understand how life changes after having a rare diagnosis diagnosis, back away...

Your diagnosis in one word

Hi NMO fam, If you could describe your diagnosis in one word, what would it be?...

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