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Read conversations, start a discussion, and connect with others about neuromyelitis optica.

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Cold Sensitivity

Short of staying inside all winter, does anyone else suffer with heat/cold extreme sensitivy. I was diagnosed in August 2018, and each...

Active yesterday

What helps spasms for you?

I wanted to know if anybody has spasms and what you do for them? Personally I have been having them very badly...

Active 2 days ago

"Living with NMO and feeling alone – has anyone been through this?"

Hi everyone, I’m from India and I’ve been living with Neuromyelitis Optica (NMO) for the past 3 years. About 2 years ago...

Active 2 days ago

Triggers for worsening symptoms?

What triggers have you noticed for worsening or new symptoms? Did any occur after injury, or Covid, or prior to next 6...

Feeling Helpless—Seeking Key Contacts & Hope for NMO

Hello, This is one of the more difficult posts I’ve ever written. My mother was diagnosed with NMO 15 years ago, back...

Medical Marijuana

Has anyone tried Medical Marijuana for their pain. I am scared to ask my Dr. for it....

Accessibility and NMOSD

For those with NMO, getting around can be particularly challenging. Since being diagnosed have you struggled with accessibility in your NMOSD journey?...

Holistic and Alternative medicine

Hi NMO Fam, I have tried many things other than medication in the past 4.5 years. I found for myself I had...

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The Eyeball Headache

Hi NMOSD fam!! Let’s talk about the eyeball headache! That intense pain in the back of your eye that’s so deep and...

Ableism and discrimination

Ableism is defined as "the discrimination or prejudice against individuals with disabilities.” Has anyone experienced this type of discrimination before? If you're...

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