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Read conversations, start a discussion, and connect with others about neuromyelitis optica.

FeaturedActive 8 days ago

My NMO Diagnosis Has Changed My Life

My life changed in November 2022, when I consulted for numbness of the right upper limp. After a series of Tests, I...

FeaturedActive 6 days ago

What has NMOSD taught you?

This forum is a space for individuals to share their experiences and insights gained from living with NMOSD. Whether you have been...

Active today

What do you carry around in your bag?

What do you MAKE SURE you have with you when you leave the house? Something to keep you cool/warm? Medication? Mobility devices?...

Active 3 days ago

Nmosd and pregnancy

Has anyone had a relapse during or after pregnancy? I am afraid and confused if to continue with mine or not. Just...

Active 7 days ago

Fatigue

Does anyone else suffer with extreme fatigue? My brain wants to do stuff but physically I am exhausted. Some days I sleep...

Active 8 days ago

Has anyone else noticed vision changes before being diagnosed with something like NMO?

Yes, I actually did. My first sign was blurry vision that came on suddenly, along with eye pain whenever I moved my...

What keeps you comfortable with NMOSD?

Staying comfortable with NMOSD isn't always easy. Especially in the fall and winter months. What helps you stay comfortable?...

Relationships

If you are single has any of you been afraid to start a relationship due to all of the difficulties of NMO...

Nmosd & pregnancy

Have anyone been pregnant or is currently pregnant while battling nmosd? What is it like and how are you managing? Is it...

NMOSD Clinics

I wasn't aware that there are clinics out there for NMOSD:( Can you tell me where they are located???? Please and Thank...

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