FeaturedFriendships/Relationships With NMOHi NMO fam! Today I wanted to open up the conversation about how NMO has affected your relationships/friendships. Personally for me, my diagnosis was a lot for people to deal...Reactions 0 reactions Comments8 repliesRelationships & Friendships
FeaturedActive 6 days agoMeet and Greet! When were you diagnosed!? 💚Hi! I’m Sandra, I was misdiagnosed in 2007 with MS and properly diagnosed with NMO in 2008. Nice to meet you...Reactions 0 reactions Comments20 repliesFriends & Family
Active todayYour diagnosis in one wordHi NMO fam, If you could describe your diagnosis in one word, what would it be...Reactions 0 reactions Comments7 repliesDiagnosis
Active todayAbleism and discriminationAbleism is defined as "the discrimination or prejudice against individuals with disabilities.” Has anyone experienced this type of discrimination before? If you're comfortable, share some of your experiences in this...Reactions 0 reactions Comments3 repliesAssistive DevicesAwarenessParalysis & Mobility
Active 3 days agoPLEX Help/Hurt/No change...Have you had PLEX? Did you feel that it helped you, hurt you, or was there no change? How many rounds have you received, and what is your current prognosis?...Reactions 0 reactions Comments0 repliesPlasma Exchange
Active 5 days agoTraveling with NMODoes anyone have any tips for traveling with NMO? What do you pack? What necessities do you make sure that you have? Are you able to sit in a car...Reactions 0 reactions Comments1 repliesTravel
Active 7 days agoIs your partner also your caregiver ?Often the roles are mesh together & its forgotten that before they became your caregiver they were your partner. How do you deal with maintaining clear boundaries...Reactions 0 reactions Comments1 repliesCaregivingRelationships & Friendships
Tips with dealing with insurance?Being a seronegative NMO patient I often get denied for treatments because it doesn't follow FDA guidelines for treatment due to aquaporin 4 neg test result. Feels like we are...Reactions 0 reactions Comments0 repliesTips & AdviceTreatment & MedicationWork & Employment
FeaturedShare a piece of advice or a quote that's helped you 💚We know that NMO can be a rollercoaster ride. What is an inspirational quote OR word of advice that has helped you navigate through rough times? You never know who...Reactions 0 reactions Comments19 repliesTips & Advice
Holistic and Alternative medicine Hi NMO Fam, I have tried many things other than medication in the past 4.5 years. I found for myself I had better pain management with alternative therapies. What are...Reactions 0 reactions Comments10 repliesDiet & NutritionExerciseMedical Marijuana
