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Read conversations, start a discussion, and connect with others about neuromyelitis optica.

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What topics are you interested in reading more about?

At Neuromyelitis-Optica.net, we strive to provide you with valuable and informative content tailored to your needs and interests. So tell us, what...

FeaturedActive 4 days ago

My NMO Diagnosis Has Changed My Life

My life changed in November 2022, when I consulted for numbness of the right upper limp. After a series of Tests, I...

Active today

Does anyone have experience with Enspryng (satralizumab)?

Posting on behalf of a community member: Hi- does anyone have experience with Satralizumab? The first dose caused a relapse in my...

Active yesterday

Does anyone have experience with ENSPRYNG® (satralizumab)?

Hi- does anyone have experience with Satralizumab? The first dose caused a relapse in my vision and loss of mobility in my...

Active 4 days ago

"Living with NMO and feeling alone – has anyone been through this?"

Hi everyone, I’m from India and I’ve been living with Neuromyelitis Optica (NMO) for the past 3 years. About 2 years ago...

Active 4 days ago

Visiting an NMOSD clinic

Has anyone visited an NMOSD clinic? Have you been seen by a specialist whose focus is entirely on NMOSD? What was that...

Active 5 days ago

Need help. I am new to this community

NMO has been there with me for years now. I’ve coped up with this condition and trying to lead a normal life...

Feeling Helpless—Seeking Key Contacts & Hope for NMO

Hello, This is one of the more difficult posts I’ve ever written. My mother was diagnosed with NMO 15 years ago, back...

I feel like I'm going crazy

Life. Who do we turn to when we look ok on the outside but inside the struggle is soooooo real. I've have...

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What was your first symptom?

What was your first symptom of NMO?...

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