FeaturedWill you take our In America survey and help others understand the true impact of NMO?The In America survey is now closed. To better understand the patient experience and realities of NMO, we are fielding our NMO In America survey. By taking this anonymous survey...Reactions0reactionsComments0 repliesAwareness
FeaturedMy NMO Diagnosis Has Changed My LifeMy life changed in November 2022, when I consulted for numbness of the right upper limp. After a series of Tests, I was told I had transverse myelitis and further...Reactions0reactionsComments15 replies
Active todayHave you had a spinal tap? Spinal taps are often used to diagnose NMOSD and other neurological disorders. Have you experienced a spinal tap procedure?...Reactions0reactionsComments2 repliesDiagnosisAwareness
Active todayWhat helps spasms for you?I wanted to know if anybody has spasms and what you do for them? Personally I have been having them very badly and I only take to Tizanadine. What helps...Reactions0reactionsComments16 repliesPain
Active todayWhat is something you did for yourself today? What is something you did for yourself today that made you feel good, either both physically or mentally or one or another to take your mind off having NMO and...Reactions0reactionsComments2 repliesCopingAwareness
Active todayHas anyone taken the survey?Just wondering if online study/survey is on the level?...Reactions0reactionsComments0 repliesCommunity Resources
Active 4 days agoHave you experienced heat intolerance? Some people who have experienced their first attack with NMOSD report experiencing heat intolerance. Have you felt heat intolerance?...Reactions0reactionsComments13 repliesAwarenessSymptomsTips & Advice
Active 4 days agoHave you experienced neuropathic itch?Neuropathic itch is a fairly common symptom of people impacted by neurological health conditions, like NMOSD. Is this something you or a loved one has experienced? If so, what helped?...Reactions0reactionsComments12 repliesAwarenessSymptomsTips & Advice
Have you gone to physical therapy for NMOSD? People with neuromyelitis optica spectrum disorder can often experience a loss of mobility. For some, they attend physical therapy to try and regain mobility. Have you had experience with physical...Reactions0reactionsComments11 replies
How is everyone doing??? Hi everyone!!! How is everyone doing?? personally, I have been struggling both mentally and physically. I hope everyone is doing well! I am hosting a zoom tomorrow night at 7:30...Reactions0reactionsComments0 repliesCaregivingDiagnosisAwareness