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Read conversations, start a discussion, and connect with others about neuromyelitis optica.

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My NMO Diagnosis Has Changed My Life

My life changed in November 2022, when I consulted for numbness of the right upper limp. After a series of Tests, I was told I had transverse myelitis and further...

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What has NMOSD taught you?

This forum is a space for individuals to share their experiences and insights gained from living with NMOSD. Whether you have been recently diagnosed or have been living with NMOSD...

Active 3 days ago

Burning sensation in breast and painful ear ache

Has anyone experienced painful burning in the breast?...

Active 4 days ago

"Living with NMO and feeling alone – has anyone been through this?"

Hi everyone, I’m from India and I’ve been living with Neuromyelitis Optica (NMO) for the past 3 years. About 2 years ago, I experienced complete paralysis—my fingers and toes were...

Active 4 days ago

Struggling with vision

I got diagnosed in 2023 with aquapurina4 positive and nmo lost the vision in my right eye had lots of steroid on drip and plasma exchange but nothing worked since...

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How old were you when diagnosed with NMO?

Curious, how old were you when you were originally diagnosed? ...

Is your partner also your caregiver ?

Often the roles are mesh together & its forgotten that before they became your caregiver they were your partner. How do you deal with maintaining clear boundaries?...

NMOSD and Misdiagnosis

Being misdiagnosed can be painful and frustrating. Were you misdiagnosed before you were diagnosed with NMOSD?...

IVIG to prevent relapse

Is anyone being treated with IVIG and steroids to prevent relapse?...

Living with NMOSD

Hi, My name is Hyacinth and I wa officially diagnosed Jan 4 2022. I've been on steroids since then. 2025 Jan I was being tapered off. When I got to...

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