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Read conversations, start a discussion, and connect with others about neuromyelitis optica.

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My NMO Diagnosis Has Changed My Life

My life changed in November 2022, when I consulted for numbness of the right upper limp. After a series of Tests, I was told I had transverse myelitis and further...

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What has NMOSD taught you?

This forum is a space for individuals to share their experiences and insights gained from living with NMOSD. Whether you have been recently diagnosed or have been living with NMOSD...

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Living with NMOSD

Hi, My name is Hyacinth and I wa officially diagnosed Jan 4 2022. I've been on steroids since then. 2025 Jan I was being tapered off. When I got to...

FeaturedActive 2 days ago

What was your first symptom?

What was your first symptom of NMO?...

Active 7 days ago

Do you have emotional support animals?

Living with NMOSD can be really stressful. Do you have any animal companions that support you emotionally? What are they and what are their names? (Share a picture!)...

Active 8 days ago

Did any of you feel any behavioral change due to nmo?

Lately I’ve been very impatient about everything, rude and angry to myself and to the people I love. Also I have this damn care attitude. I take risk often and...

Back pain

Has anyone experience lower back pain or discomfort?. I was recently diagnosed with NMO, I received my first rituximab treatment and the back pain started after that. Anyone else? Is...

Struggling with vision

I got diagnosed in 2023 with aquapurina4 positive and nmo lost the vision in my right eye had lots of steroid on drip and plasma exchange but nothing worked since...

Burning sensation in breast and painful ear ache

Has anyone experienced painful burning in the breast?...

"Living with NMO and feeling alone – has anyone been through this?"

Hi everyone, I’m from India and I’ve been living with Neuromyelitis Optica (NMO) for the past 3 years. About 2 years ago, I experienced complete paralysis—my fingers and toes were...

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How old were you when diagnosed with NMO?

Curious, how old were you when you were originally diagnosed? ...

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