FeaturedWill you take our In America survey and help others understand the true impact of NMO?The In America survey is now closed. To better understand the patient experience and realities of NMO, we are fielding our NMO In America survey. By taking this anonymous survey...Reactions0reactionsComments0 repliesAwareness
FeaturedMy NMO Diagnosis Has Changed My LifeMy life changed in November 2022, when I consulted for numbness of the right upper limp. After a series of Tests, I was told I had transverse myelitis and further...Reactions0reactionsComments15 replies
Intimacy with NMOSDHow has NMOSD impacted your ability to be intimate? Share here and help others:...Reactions0reactionsComments7 repliesAwarenessRelationships & FriendshipsTips & Advice
The Rare Disease effectHaving a rare disease is not something that everyone can understand. Oftentimes, the majority of people who don't understand how life changes after having a rare diagnosis diagnosis, back away...Reactions0reactionsComments12 repliesMental HealthFriends & FamilyRelationships & Friendships
Your diagnosis in one wordHi NMO fam, If you could describe your diagnosis in one word, what would it be?...Reactions0reactionsComments49 repliesDiagnosis
Do you have emotional support animals?Living with NMOSD can be really stressful. Do you have any animal companions that support you emotionally? What are they and what are their names? (Share a picture!)...Reactions0reactionsComments1 repliesAwarenessCopingMental Health
FeaturedFriendships/Relationships With NMOHi NMO fam! Today I wanted to open up the conversation about how NMO has affected your relationships/friendships. Personally for me, my diagnosis was a lot for people to deal...Reactions0reactionsComments22 repliesRelationships & Friendships
traveling as a paraplegic with NMOSDI'm interested in doing some traveling. I'm interested in finding out how does one handle their incontinence when on a trip. Are there other ways besides wearing a brief?...Reactions0reactionsComments2 replies
Physical disability and invisible symptom Maintaining Quality of Life While Living with NMOSD: Balancing Long-Term Treatment, Visible Disabilities, and Invisible Symptoms...Reactions0reactionsComments0 replies
10 years without relapseI've had one attack in May 2014, I'm blind in my right eye. I've had Rutuximab and Steroids after first attack. At 7 years my neurologist took it as a...Reactions0reactionsComments0 repliesAwarenessTreatment & Medication
What keeps you comfortable with NMO? Staying comfortable with NMOSD isn't always easy. Especially in the fall and winter months. What helps you stay comfortable?...Reactions0reactionsComments9 repliesAwarenessFatigueTips & Advice