FeaturedActive 7 days agoWill you take our In America survey and help others understand the true impact of NMO?NMO is a rare autoimmune disorder affecting about 16,000 people in the US. To better understand the patient experience and realities of NMO, we are fielding our 2nd NMO In...Reactions 0 reactions Comments0 replies
FeaturedActive 4 days agoNMO and alopecia Is anyone battling with hairloss since their diagnosis of NMO. My hair is suffering terribly. I'm not sure whether it's the NMO or side effects from medications and treatment. I...Reactions 0 reactions Comments8 repliesDiagnosis
Active 3 days agoMy long journeyI will be 70 in August and I have been dealing with first a diagnosis of Idiopathic MS by one MS Specialty doctor, then we moved across the country to...Reactions 0 reactions Comments0 replies
Active 3 days agoAm I okay or not ???Ever since the onset of heavy winters here especially in December, I have been experiencing bad stiffness, joint pain, high levels of anxiety, and a burning sensation in my spinal...Reactions 0 reactions Comments0 replies
Active 4 days agoSymptoms of NMOSDHow does this disease affect the resp system. They say in comorbidities this can cause death...Reactions 0 reactions Comments0 repliesAwarenessPainParalysis & Mobility
What helps on bad days?I know I struggle with boredom when I don’t feel well. What are some things you do to help boredom...Reactions 0 reactions Comments2 repliesCoping
FeaturedShare a piece of advice or a quote that's helped you 💚We know that NMO can be a rollercoaster ride. What is an inspirational quote OR word of advice that has helped you navigate through rough times? You never know who...Reactions 0 reactions Comments27 repliesTips & Advice
riximyoHas anybody used this drug and what have the side effects been like...Reactions 0 reactions Comments0 replies
FeaturedMeet and Greet! When were you diagnosed!? 💚Hi! I’m Sandra, I was misdiagnosed in 2007 with MS and properly diagnosed with NMO in 2008. Nice to meet you...Reactions 0 reactions Comments25 repliesFriends & Family
FeaturedWere you given resources?Upon receiving your diagnosis did anyone give you resources on your diagnosis and what to expect...Reactions 0 reactions Comments10 repliesDiagnosisNewly DiagnosedUndiagnosed & Seeking Diagnosis
