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Read conversations, start a discussion, and connect with others about neuromyelitis optica.

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My NMO Diagnosis Has Changed My Life

My life changed in November 2022, when I consulted for numbness of the right upper limp. After a series of Tests, I was told I had transverse myelitis and further...

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What has NMOSD taught you?

This forum is a space for individuals to share their experiences and insights gained from living with NMOSD. Whether you have been recently diagnosed or have been living with NMOSD...

Active yesterday

NMOSD Clinics

I wasn't aware that there are clinics out there for NMOSD:( Can you tell me where they are located???? Please and Thank you:(...

Active 4 days ago

Has anyone else noticed vision changes before being diagnosed with something like NMO?

Yes, I actually did. My first sign was blurry vision that came on suddenly, along with eye pain whenever I moved my eyes. At first, I thought it was just...

Active 6 days ago

Symptoms

I'm wondering if anyone has experienced loss of legs and been confined to a wheelchair, also both eyes blurring and loss of core strength?...

Active 7 days ago

Accommodations in the workplace

Hello, I have had NMO for the last three years. I am a Special Education (mild/moderate) Teacher and have been teaching for 21 years. Within the last 2 years, work...

FeaturedActive 7 days ago

Do you ever feel the tingles?

Something my doctors haven’t truly figured out and curious if this is an issue around the community. When I start to do chores or a work out I have an...

Living with NMOSD

Hi, My name is Hyacinth and I wa officially diagnosed Jan 4 2022. I've been on steroids since then. 2025 Jan I was being tapered off. When I got to...

Visiting an NMOSD clinic

Has anyone visited an NMOSD clinic? Have you been seen by a specialist whose focus is entirely on NMOSD? What was that experience like for you? If you haven't, would...

Did any of you feel any behavioral change due to nmo?

Lately I’ve been very impatient about everything, rude and angry to myself and to the people I love. Also I have this damn care attitude. I take risk often and...

Struggling with vision

I got diagnosed in 2023 with aquapurina4 positive and nmo lost the vision in my right eye had lots of steroid on drip and plasma exchange but nothing worked since...

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