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Read conversations, start a discussion, and connect with others about neuromyelitis optica.

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Will you take our In America survey and help others understand the true impact of NMO?

The In America survey is now closed. To better understand the patient experience and realities of NMO, we are fielding our NMO In America survey. By taking this anonymous survey...

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My NMO Diagnosis Has Changed My Life

My life changed in November 2022, when I consulted for numbness of the right upper limp. After a series of Tests, I was told I had transverse myelitis and further...

Active 2 days ago

Symptoms

I'm wondering if anyone has experienced loss of legs and been confined to a wheelchair, also both eyes blurring and loss of core strength?...

Active 2 days ago

The Rare Disease effect

Having a rare disease is not something that everyone can understand. Oftentimes, the majority of people who don't understand how life changes after having a rare diagnosis diagnosis, back away...

FeaturedActive 2 days ago

Do you ever feel the tingles?

Something my doctors haven’t truly figured out and curious if this is an issue around the community. When I start to do chores or a work out I have an...

Active 2 days ago

Accommodations in the workplace

Hello, I have had NMO for the last three years. I am a Special Education (mild/moderate) Teacher and have been teaching for 21 years. Within the last 2 years, work...

Active 4 days ago

Have you felt abnormal sensations?

Sometimes NMOSD can cause odd and unusual experiences, like burning, tingling and itching. Have you experienced any odd sensations from NMOSD?...

FeaturedActive 5 days ago

How old were you when diagnosed with NMO?

Curious, how old were you when you were originally diagnosed? ...

Active 5 days ago

Have you experienced neuropathic itch?

Neuropathic itch is a fairly common symptom of people impacted by neurological health conditions, like NMOSD. Is this something you or a loved one has experienced? If so, what helped?...

Active 5 days ago

Aquaporin-4 antibodies and disease certainty

Hi everybody. I’m sorry for everybody’s challenges and suffering with NMO. I recently had a neurology screening test performed by a third party functional med lab (Vibrant). It detected moderate...

Your diagnosis in one word

Hi NMO fam, If you could describe your diagnosis in one word, what would it be?...

Psoriasis

Does anyone in this group have psoriasis along with NMOSD? I have both and my dermatologist wants me to take an immunosuppressant for it. I am already on Ultomiris for...

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