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Read conversations, start a discussion, and connect with others about neuromyelitis optica.

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Will you take our In America survey and help others understand the true impact of NMO?

The In America survey is now closed. To better understand the patient experience and realities of NMO, we are fielding our NMO In America survey. By taking this anonymous survey...

Featured

My NMO Diagnosis Has Changed My Life

My life changed in November 2022, when I consulted for numbness of the right upper limp. After a series of Tests, I was told I had transverse myelitis and further...

Active today

Have you had a spinal tap?

Spinal taps are often used to diagnose NMOSD and other neurological disorders. Have you experienced a spinal tap procedure?...

Active today

What helps spasms for you?

I wanted to know if anybody has spasms and what you do for them? Personally I have been having them very badly and I only take to Tizanadine. What helps...

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What is something you did for yourself today?

What is something you did for yourself today that made you feel good, either both physically or mentally or one or another to take your mind off having NMO and...

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Has anyone taken the survey?

Just wondering if online study/survey is on the level?...

Active 4 days ago

Have you experienced heat intolerance?

Some people who have experienced their first attack with NMOSD report experiencing heat intolerance. Have you felt heat intolerance?...

Active 4 days ago

Have you experienced neuropathic itch?

Neuropathic itch is a fairly common symptom of people impacted by neurological health conditions, like NMOSD. Is this something you or a loved one has experienced? If so, what helped?...

Have you gone to physical therapy for NMOSD?

People with neuromyelitis optica spectrum disorder can often experience a loss of mobility. For some, they attend physical therapy to try and regain mobility. Have you had experience with physical...

How is everyone doing???

Hi everyone!!! How is everyone doing?? personally, I have been struggling both mentally and physically. I hope everyone is doing well! I am hosting a zoom tomorrow night at 7:30...

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