Hi! I Have NMO. Wanna Go On A Date?Love is something most people want. It’s warm, it’s safe, it’s comfort, and it can be unique. It can be a million little things really. But to me it’s a... By Dan Marino2 min readBookmark for laterReactions 0 reactions Comments0 comments
Food Poisoning With A Suppressed Immune SystemLiving with a suppressed immune system is hard. Especially as a student, going to university, taking public transport and eating out for lunch. You have to take extra precautions because... By Haleemah Sarwar2 min readBookmark for laterReactions 0 reactions Comments0 comments
Handicap Accessible MinivanOnce I passed my drivers license test to drive with hand controls, I was super excited to start shopping for a vehicle. I was excited to get back to what... By Aldelly Vasquez3 min readBookmark for laterReactions 0 reactions Comments0 comments
My Lowest Point With NMO, and How a Four-Legged-Friend Saved MeWhen I tell people about my condition, they expect that my lowest point must have been in hospital after my first neuromyelitis optica (NMO) attack. I was paralysed from the... By Helen Lear-Grant3 min readBookmark for laterReactions 0 reactions Comments0 comments
Working A Real Job After DiagnosisFor most of my rare disease journey I was a sick and unemployed college dropout with minimal work history. The first three years of my diagnosis I applied for disability... By Avery Allmond2 min readBookmark for laterReactions 0 reactions Comments0 comments
NMO Warriors Inspire My Daughter and MeMy daughter and I are truly indebted to this website, and to our community family members, the warriors and there are heartfelt reasons for it… After coming to my senses... By Kshirja Singh3 min readBookmark for laterReactions 0 reactions Comments0 comments
The Exhaustion of An Invisible IllnessLiving with neuromyelitis optica (NMO) for the last 15 years has definitely had its challenges, however, trying to explain how I feel when living with an invisible illness is extremely... By Sandra Adda2 min readBookmark for laterReactions 0 reactions Comments0 comments
Being Okay With Saying NoI've learned to protect my peace by doing what’s best for me despite how someone else may feel, and not feel bad or be hard on myself. Since becoming sick... By Teaira-Daniels4 min readBookmark for laterReactions 0 reactions Comments0 comments
NMO Stigma: "She’s Faking Her Illness For Attention"Recently, I found out from one of my friends that someone from my school had said that I was faking my illness for attention, when I first made my Instagram... By Haleemah Sarwar2 min readBookmark for laterReactions 0 reactions Comments2 comments
Being Present with Neuromyelitis OpticaSince my Neuromyelitis Optica (NMO) diagnosis in 2014, I find it hard to strike the right balance between enjoying a bit of reflection and spending too much time with my... By Helen Lear-Grant3 min readBookmark for laterReactions 0 reactions Comments0 comments
What NMO Has Changed In My LifeNMO has changed me in many ways. From odd ways of saving me to taking away things I love. Some things I had to learn to give up and others... By Dan Marino2 min readBookmark for laterReactions 0 reactions Comments0 comments
My Anxiety With NMOSometimes, it’s like my brain is in a revolving door. The thoughts spin fast, sometimes slow or not at all. My brain’s exhaustion is from my thoughts constantly dancing pirouettes... By Avery Allmond2 min readBookmark for laterReactions 0 reactions Comments0 comments
How NMOSD Affected My Favorite HobbyI remember being 12, hiding in my mother’s room, and using all her makeup without her knowing. I wasn’t good at it at all, but after years of practice I... By Haleemah Sarwar2 min readBookmark for laterReactions 0 reactions Comments1 comments
My journey with NMOAround October 2018, I had this terrible headache for a week. Nothing would help it, two doctor visits and nothing. Eventually, it went away after 7 days, and life seemed... By Demetria Turner-Morgan1 min readBookmark for laterReactions 0 reactions Comments1 comments
Driving With NMODriving, for me, is an essential part of life–especially where I live. It’s how I transport my kids to and from school, activities, my medical appointments, work and more. I... By Aldelly Vasquez2 min readBookmark for laterReactions 0 reactions Comments0 comments
What Does Self-Advocacy Mean?You constantly hear the phrase that you need to advocate for yourself with doctors and in appointments you hear how you need to stand up for yourself. And, if you... By Avery Allmond3 min readBookmark for laterReactions 0 reactions Comments0 comments
Worsening Vision Confirmed By Eye TestsIt had been a little over a year since my last visit and I was excited for new contacts. My eyes have been a little off but I figured I... By Dan Marino3 min readBookmark for laterReactions 0 reactions Comments0 comments
My NMO Travel Blog ExperienceI was working in management for a charity organization in 2014 when I had my first Neuromyelitis Optica attack. I haven’t been able to work conventionally since. That's due to... By Helen Lear-Grant2 min readBookmark for laterReactions 0 reactions Comments0 comments
I Have Mental Health Issues and It Is OKBy definition, mental health is taking care of psychological, emotional, and social well-being but for me (mine slightly injured mental health) was an inseparable friend that I’ve had for a... By Kshirja Singh3 min readBookmark for laterReactions 0 reactions Comments0 comments
Adapting My Home Fabulously For NMOOver the triumphs and tribulations of dealing with NMO, I’ve had to adapt my home. Thankfully, I have a handy husband who love home projects (said no husband ever) and... By Aldelly Vasquez3 min readBookmark for laterReactions 0 reactions Comments1 comments