NMOSD Temperature Intolerance: Why Am I So Hot and ColdNMOSD sucks. Plain and simple. For me, out of all of the problems associated with NMOSD, intolerance to heat and cold has...reactions3comments
My First NMOSD Heat Intolerance ExperienceOh, how I used to love the summer before getting diagnosed with NMOSD. The best feeling for me during the summer months...reactionscomments
My NMOSD Diagnosis Journey After Years of MisdiagnosisMy NMOSD diagnosis journey began in 2007, shortly after I turned 20. I was newly married to my best friend, and we...reactions3comments
The Night Before My InfusionPart of being diagnosed with neuromyelitis optica spectrum disorder (NMOSD), zero-negative, is being limited to what types of treatments there are. I...reactions2comments
The Reality of Infusion Fatigue: Why Infusion Days Are Getting HarderI had my rituximab infusion today. Every time I get an infusion, it’s a struggle. From preparing for the treatment, finding a...reactionscomments
Losing My Independence: How NMOSD Vision Loss Has Changed MeI have always been a mover. Sitting still for too long makes me antsy. Even before I was diagnosed with NMOSD, I...reactions5comments
Embracing Change With Neuromyelitis OpticaI've certainly had my share of unexpected twists and turns since my diagnosis with neuromyelitis optica (NMO). This autoimmune disorder shook up...reactions2comments
My NMO Travel Blog ExperienceI was working in management for a charity organization in 2014 when I had my first Neuromyelitis Optica attack. I haven’t been...reactionscomments
My Lowest Point With NMO, and How a Four-Legged-Friend Saved MeWhen I tell people about my condition, they expect that my lowest point must have been in hospital after my first neuromyelitis...reactionscomments
My NMO Diagnosis StoryI knew something was wrong for a couple of months. I kept making appointments with my doctor to discuss new symptoms that...reactions1comment
What Is It Like Supporting Someone With NMO? I Interview My Caregiver!This article was posted anonymously by one of our members. My wife is also my caregiver. It’s a fine balancing act between...reactions1comment
My Wheelchair Is My FreedomNot everyone diagnosed with neuromyelitis optica, or NMOSD, will need to use a wheelchair. However, some people do become full-time wheelchair users...reactionscomments
Through My Daughter's Eyes: A Journey to an NMOSD DiagnosisAs an NMOSD sufferer, we all too often feel like we are going through this disease alone. We tend to think that...reactionscomments
NMOSD and Marriage: Honoring the Vow of "In Sickness and in Health"You know that part of the wedding ceremony when you hear “in sickness and in health, to love and to cherish, till...reactions1comment
Navigating the Unbearable Reality of NMOSD PainI was first diagnosed with NMOSD in February 2020. It took 7 years for me to get to this point after being...reactions6comments
Getting Sick While Immunocompromised With NMOSDI caught Covid AGAIN, but after the Covid craze calmed down! I started a new job, and I was working around 35...reactionscomments
The NMOSD Learning Curve: Navigating the Role of Patient and EducatorThere is a seemingly never-ending learning curve that goes hand in hand with an NMOSD diagnosis. One of the most difficult aspects...reactions1comment
My Honest Letter to NMOSDDear NMOSD, I’m wondering why I was chosen to be a victim of such a horrific disease. I know I’m a strong...reactionscomments
My Tips for Your First Spinal Tap: What to Expect and How to PrepareI had my spinal tap whilst staying in hospital during my first NMOSD attack. I wanted to avoid it as much as...reactions7comments
Newly Diagnosed with NMOSD: First Steps & TreatmentsSo, you've been diagnosed with NMOSD. What do you do now?I was diagnosed with NMOSD in the middle of a pandemic. Looking...reactionscomments
