Living

I stood in an unknown place unable to understand where I was. Why was I there? Why was this place filled with too many people? The noise and all the...

Life can be many things. It can be filled with joy, love, and happiness. Life can also bring darkness, tears, stress, and fear. It can bring you luck and it...

Part of being diagnosed with neuromyelitis optica spectrum disorder (NMOSD), zero-negative, is being limited to what types of treatments there are. I was recommended to go on Rituximab, every six...

The beginnings of my neuromyelitis optica (NMO) journey led to the loss of one eye. I started noticing changes in my husband's behavior around this time, too. I chose to...

Welcome to our Neuromyelitis Optica Spectrum Disorder (NMOSD) community! Not sure where to start? We're here to help you find exactly what you're looking for. The Neuromyelitis-Optica.net community contains reliable...

Having a a medical condition like neuromyelitis optica (NMO) can sometimes make traveling a little difficult, or possibly a little uncomfortable. So in this article, I want to try and...

There was a point in my health journey when it’s just bothersome to constantly get questions about my neuromyelitis optica (NMO) diagnosis. While I love advocating for NMO and sharing...

Diagnosing neuromyelitis optica spectrum disorder (NMOSD) can be very challenging. Symptoms of rare diseases often go overlooked, and many doctors are unfamiliar with signs of NMOSD. The Neuromyelitis-Optica.net community answered...

There is a saying about tough times: you get to see the true colors of everyone around you. I had seen tough times, and I had seen how people reacted...

My last neuromyelitis optica (NMO) attack was roughly eight years ago. It was my most terrifying attack yet. At that point my right eye suffered a lot from an ignored...

The hardest situation to deal with is a chronic disease like neuromyelitis optica spectrum disorder (NMOSD) that continues to debilitate you, to the point of not caring who is watching...

I want to share a piece of my journey with you, a journey that has been significantly altered by one little bottle of Rituxan. That bottle might not look like...

Every time I’m asked at a physical therapy consult, “What’s your goal?” my answer is almost always to walk - in high heels. Before my neuromyelitis optica spectrum disorder (NMOSD)...

Before neuromyelitis optica spectrum disorder (NMOSD), my whole life I was an athlete. When I got to high school, I decided I was going to play basketball since the basketball...

A few months ago, I decided to go off my nerve painkillers because I was getting recurrent urinary tract infections (UTIs) and was trying to find the culprit. However, they...

Neuromyelitis optica (NMO) last played with my vision eight long years ago. Still feels like just yesterday. Some days I forget I have vision issues, and some days I feel...

So here I was on the 5th the day of my ICU stay, waiting for some news on the numbers of tests being run on me. I was admitted as...

Plasmapheresis is a complex therapy which I’ve undergone four times in my journey with neuromyelitis optica (NMO). Every time I’ve completed a treatment my results are phenomenal. But what is...

Living with a rare disease like neuromyelitis optica (NMO) has put me in a position to feel alone. When I was first diagnosed with a rare disease, I never knew...

Being back in New York is almost like a gift. It just feels so right. But also being back means I need to start making some big changes. I used...