Talking About NMOSD: An Elephant In The HouseThroughout this process of living with NMOSD, mental health has been like the silent elephant in the house for my family. As...reactions2comments
A Handy NMOSD Patient Information FormFrom my experience, hospitalizations and NMOSD go hand-in-hand. My relapses never seem to happen during “normal business hours," so my neurologist often...reactions3comments
The Nitty Gritty of Living with NMOSDNMOSD is a rare disease. That means that finding a doctor who can treat you will not go without difficulty. The bigger...reactions5comments
Things I Wish I Knew When I Was First DiagnosedBeing newly diagnosed with neuromyelitis optica spectrum disorder (NMOSD) can be scary, but staying optimistic is key. I remember feeling shocked, lost...reactions1comment
Frustrated With NMOSD Vision LossSome days I forget I have vision issues due to NMOSD, and some days I feel like it’s thrown in my face...reactionscomments
Moving Through NMOSD ChallengesI just need to vent about NMOSD challenges and frustrations. I need to speak my truth and say out loud what’s building...reactions1comment
A Dark NMO Future Created by My MindThe future: sometimes things get better and sometimes they get worse. We have our ups and downs and everything in between. One...reactionscomments
Worsening Vision Confirmed By Eye TestsIt had been a little over a year since my last visit and I was excited for new contacts. My eyes have...reactionscomments
My Journey with NMO Part 2: Journey Into FearFear can be your worst enemy and can destroy everything around you. It can make you choose some choices that aren't in...reactionscomments
Wait! The Internet Said I’m Dying!Do you ever wonder if that pain in your side is part of your condition? Or that itch? Or the migraine? How...reactionscomments
Living With A Suprapubic Catheter and NMOSDDeciding to get a suprapubic catheter for a wheelchair-bound person like myself, with my neurogenic bladder with severe UTIs, was a no-brainer...reactions3comments
From Misdiagnosis To NMOSDWhen friends learn I have an autoimmune disease they often ask when and how I was diagnosed. My response: “Which time?” Getting...reactions2comments
Moments Leading Up to My NMO DiagnosisAnxiety, fear, desperation, confusion, and craziness were the heaviest feelings present in me in early 2016 before my NMO diagnosis. I was...reactions7comments
An Advocate Was BornIn May 2016, I received my NMO diagnosis over the phone. “You have something called neuromyelitis optica, and we must treat you...reactionscomments
B12 and Vitamin D Deficient With NMOSDLiving with NMOSD isn’t easy. Throughout the years I’ve learned that the most important part of navigating my health is listening to my...reactions2comments
Finding the Correct Rehab Team for My NMOMy hopes and dreams of one day getting up from my wheelchair and walking freely are partly kept alive by my rehab...reactions7comments
Traveling with NMOSD: My Top 5 TipsLiving with neuromyelitis optica spectrum disorder (NMOSD) doesn’t mean you have to say no to adventure. It just takes a little more...reactionscomments
Self-Care After RelapseAfter my NMOSD diagnosis and on the road to recovery, my family has been the biggest rock. Especially my mom. She has...reactionscomments
My NMOSD Relapses Are Slow BurnersMy first neuromyelitis optica spectrum disorder (NMOSD) attack seemed to happen rapidly and dramatically. Although I had known something was wrong for...reactions1comment
Dealing with the Rarest of RareSo here I was on the 5th the day of my ICU stay, waiting for some news on the numbers of tests...reactionscomments
