Brain Fog and MeI stood in an unknown place unable to understand where I was. Why was I there? Why was this place filled with...reactions2comments
Is It or Isn’t it? Flare-Up EditionLife can be many things. It can be filled with joy, love, and happiness. Life can also bring darkness, tears, stress, and...reactions1comment
The Night Before My InfusionPart of being diagnosed with neuromyelitis optica spectrum disorder (NMOSD), zero-negative, is being limited to what types of treatments there are. I...reactions2comments
The Choice To Accept MyselfThe beginnings of my neuromyelitis optica (NMO) journey led to the loss of one eye. I started noticing changes in my husband's...reactions1comment
Getting Started on the Neuromyelitis-Optica.net CommunityWelcome to our Neuromyelitis Optica Spectrum Disorder (NMOSD) community! Not sure where to start? We're here to help you find exactly what...reactions1comment
Vacation Tips With NMOHaving a a medical condition like neuromyelitis optica (NMO) can sometimes make traveling a little difficult, or possibly a little uncomfortable. So...reactionscomments
Telling My NMO Story Can Be PainfulThere was a point in my health journey when it’s just bothersome to constantly get questions about my neuromyelitis optica (NMO) diagnosis...reactionscomments
First NMOSD SymptomsDiagnosing neuromyelitis optica spectrum disorder (NMOSD) can be very challenging. Symptoms of rare diseases often go overlooked, and many doctors are unfamiliar...reactionscomments
Filter Out the NegativeThere is a saying about tough times: you get to see the true colors of everyone around you. I had seen tough...reactionscomments
The Physical and Emotional Toll of SteroidsMy last neuromyelitis optica (NMO) attack was roughly eight years ago. It was my most terrifying attack yet. At that point my...reactionscomments
Parenting with NMOSDThe hardest situation to deal with is a chronic disease like neuromyelitis optica spectrum disorder (NMOSD) that continues to debilitate you, to...reactions2comments
My Rituxan ExperienceI want to share a piece of my journey with you, a journey that has been significantly altered by one little bottle...reactionscomments
NMOSD Made Me Say Goodbye to High HeelsEvery time I’m asked at a physical therapy consult, “What’s your goal?” my answer is almost always to walk - in high...reactionscomments
I Miss the Joy of RunningBefore neuromyelitis optica spectrum disorder (NMOSD), my whole life I was an athlete. When I got to high school, I decided I...reactions1comment
Is It An NMO Relapse? New SymptomsA few months ago, I decided to go off my nerve painkillers because I was getting recurrent urinary tract infections (UTIs) and...reactionscomments
Frustrated With NMOSD Vision LossSome days I forget I have vision issues due to NMOSD, and some days I feel like it’s thrown in my face...reactionscomments
Dealing with the Rarest of RareSo here I was on the 5th the day of my ICU stay, waiting for some news on the numbers of tests...reactionscomments
Getting Plasmapheresis For NMOPlasmapheresis is a complex therapy which I’ve undergone four times in my journey with neuromyelitis optica (NMO). Every time I’ve completed a...reactions5comments
I Feel Alone with a Rare DiseaseLiving with a rare disease like neuromyelitis optica (NMO) has put me in a position to feel alone. When I was first...reactionscomments
Prioritizing My HealthBeing back in New York is almost like a gift. It just feels so right. But also being back means I need...reactionscomments
