The Beauty of Stretch MarksFor my whole life, I have been an athlete. I have always been active and tried my best to stay in shape...reactionscomments
My Mental Health and Journey with NMOFrom the beginning of my NMO diagnosis until now, I’ve recorded every major portion of my rare disease health journey - from...reactions3comments
The Voice Saying, "It’s Not Real"Being diagnosed with NMO, I’m sure we've all felt and heard from our peers that what was happening to us wasn’t real...reactions2comments
My Rare Disease Nonprofit - How I Started the Couch Pennies FoundationI watched the YouTube makeup artist Tallia through her entire journey from the minute she posted her first video to the very...reactions1comment
Bipolar 2, Exposure Therapy and NMOSomething never felt quite right when I was diagnosed with NMO at 19. This was before I was diagnosed with bipolar 2...reactionscomments
My Art TheoryPrior to being diagnosed with NMO, I didn’t have many artistic hobbies. Meaning when I tried to do anything in art class...reactions2comments
The Dream: Couch Pennies, My NMO NonprofitAt the age of 13, I was a young and healthy teenager. At the time, YouTube was still very new. Like many...reactions1comment
The Black Rare Disease ExperienceI read an article the other day, and it told a detailed story about being Black and having a rare disease. That’s...reactions2comments
The Rare Disease effectHaving a rare disease is not something that everyone can understand. Oftentimes, the majority of people who don't understand how life changes...reactions13repliesMental HealthFriends & FamilyRelationships & Friendships
You Must Understand, Pain is Pain!I wish I could describe the chronic pain from my NMO that I feel every day. I also wish I could explain...reactionscomments
FeaturedThe Eyeball Headache Hi NMOSD fam!! Let’s talk about the eyeball headache! That intense pain in the back of your eye that’s so deep and...reactions10repliesPain
My Steroid StoryLet’s talk steroids and NMO. When I was diagnosed in 2017, I was at a hospital with doctors that didn’t know much...reactions6comments
What helps on bad days?I know I struggle with boredom when I don’t feel well. What are some things you do to help boredom?...reactions6repliesCoping
I'm Grateful for NMO, The Disease That Tried to Kill MeI’m grateful for my NMO diagnosis. Reading that, you may say, "huh? Why?" Before I was sick, I thought I had my...reactions5comments
FeaturedWere you given resources?Upon receiving your diagnosis did anyone give you resources on your diagnosis and what to expect?...reactions10repliesDiagnosisUndiagnosed & Seeking DiagnosisNewly Diagnosed
Surgery Number ThreeOn January 12, 2022, I walked into the surgery floor to start the trial process of getting a stimulator placed for my...reactions2comments
Self LoveIt’s no secret that NMO can change how your body is. It can definitely mess with mental health. It’s important to have...reactions8repliesCoping
Disclosing Your DiseaseAs rare disease patients, we have to become comfortable with explaining NMOSD. A lot of times, we are the ones telling the...reactionscomments
Losing my YouthGrowing up an athlete, I was always the active one of the bunch. Always wanting to go, go, go, and still having...reactions4comments
What helps spasms for you?I wanted to know if anybody has spasms and what you do for them? Personally I have been having them very badly...reactions19repliesPain
