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Did any of you feel any behavioral change due to nmo?

Lately I’ve been very impatient about everything, rude and angry to myself and to the people I love. Also I have this damn care attitude. I take risk often and I’m not even scared of anything. I prioritize myself and my happiness over everything. I’ve never been this selfish. I was more emphatic towards people.

  1. Hi 😀, honestly I did, not during the initial phase but when I started to recover. I felt like no one understood me except my little one, so I became very silent and isolated myself . All I cared about was my happiness.
    What I personally feel is this disease is such that you can't explain it to anyone and everyone its taxing. So leave it. I am still emphatic towards the community members here but I don't have energy for the outside world as they are too judgemental 🙁 .. And its okay .. good or bad negative or positive whatever emotion we feel it's okay to feel it .. don't be too hard on yourself Noor (Team Memeber )

  2. Hello, this could be because of everything you went through - you’re angry at the world because you didn’t deserve that. You could be taking out your anger on other people. If you’re newly diagnosed, it will take some time to settle because everything is new for you and you need to adjust to your new life. i’d say if it doesn’t get better talk to your doctor because it’s basically affecting your quality of life along with your nmo. I had to go on anti-depressants and now i’m fine, much more empathetic towards people than I was pre-NMO because I realised you never really know what people are going through behind closed doors. I hope things get better for you, don’t feel too bad about it. It’s not your fault. The NMO community are always here for you ❤️ - Hali

  3. Sometimes

  4. Sometimes I feel Jealous when I look around a whole room full of people or at a big ball game and I think, why me, why me, out of this whole world of people why me.
    I was soooo luck to eventually find a Dr. that diagnosed my condition. When I would go to my regular MD Dr., she would look at me and say, NOW WHAT. The tightness under my boobs was so bad, I thought about ending it. Then I lost sight in half of my right eye, then lost 18 pounds, lost bowel control. When I lost the ability to walk due to my right leg wouldn't work, I ended up in the ER. Went to MAYO in Minnesota, that was a joke. She said I had stuck facia. NO blood work or nothing. She recommended physical therapy. What a waste of time and money. Then ended up at Nebraska Medicine in Omaha. Long week of MRI's and spinal tap, was told I had MS and to get into the MS part of Neb Medicine, that is easier said then done. Came home and contacted Neb Medicine, and was told I need a referral for the lady that did my spinal tap. Called back to the lady that did the spinal tap, she said she would. Well that took a week and two or three phone calls from me to get her to do it. Finally one night after 5:30, I received a phone call from a Dr. that said, you do not have MS you have NMOSD. She got me into her office and started to slowly getting me off steroids. She gave me a chose of three options to treat my attacks. One was Uplizna. That was the one I picked. She then transferred to Kansas City St Luke's, so I followed her. It is a 2.5 hour drive but well worth it. I have had no new attacks and have full use of my right leg, except one toe is really still painful, right eye has no new problems and I have full vision, but still have rawness around my mid section. She started me on Duloxetine 30mg, and it seems to help. God Bless all of you with this horrible disease. Pray that they come up with a cure😀

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