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Read conversations, start a discussion, and connect with others about neuromyelitis optica.

Active 5 days ago

Have you felt abnormal sensations?

Sometimes NMOSD can cause odd and unusual experiences, like burning, tingling and itching. Have you experienced any odd sensations from NMOSD?...

Active 6 days ago

Having a severe first attack

I have had only one attack, but it was major. I was wondering how many people out there had a real bad first onset of this disease. My first attack...

Do you have emotional support animals?

Living with NMOSD can be really stressful. Do you have any animal companions that support you emotionally? What are they and what are their names? (Share a picture!)...

Have you experienced neuropathic itch?

Neuropathic itch is a fairly common symptom of people impacted by neurological health conditions, like NMOSD. Is this something you or a loved one has experienced? If so, what helped?...

Have you experienced heat intolerance?

Some people who have experienced their first attack with NMOSD report experiencing heat intolerance. Have you felt heat intolerance?...

What helps you with fatigue?

There are so many reasons for why NMOSD might exhaust someone. What is the cause of your exhaustions? What helps you when you are feeling fatigued?...

What keeps you comfortable with NMO?

Staying comfortable with NMOSD isn't always easy. Especially in the fall and winter months. What helps you stay comfortable?...

10 years without relapse

I've had one attack in May 2014, I'm blind in my right eye. I've had Rutuximab and Steroids after first attack. At 7 years my neurologist took it as a...

Will you take our In America survey and help others understand the true impact of NMO?

The In America survey is now closed. To better understand the patient experience and realities of NMO, we are fielding our NMO In America survey. By taking this anonymous survey...

Accommodations in the workplace

Hello, I have had NMO for the last three years. I am a Special Education (mild/moderate) Teacher and have been teaching for 21 years. Within the last 2 years, work...

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