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Read conversations, start a discussion, and connect with others about neuromyelitis optica.

Have you experienced neuropathic itch?

Neuropathic itch is a fairly common symptom of people impacted by neurological health conditions, like NMOSD. Is this something you or a loved one has experienced? If so, what helped?...

Having a severe first attack

I have had only one attack, but it was major. I was wondering how many people out there had a real bad first onset of this disease. My first attack...

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Will you take our In America survey and help others understand the true impact of NMO?

The In America survey is now closed. To better understand the patient experience and realities of NMO, we are fielding our NMO In America survey. By taking this anonymous survey...

Dating with NMOSD

NMOSD can impact pretty much every facet of our lives, including dating. - How has NMO impacted your dating habits? Are you currently dating? Do you use dating apps? How...

What helps you with fatigue?

There are so many reasons for why NMOSD might exhaust someone. What is the cause of your exhaustions? What helps you when you are feeling fatigued?...

Intimacy with NMOSD

How has NMOSD impacted your ability to be intimate? Share here and help others:...

Do you have emotional support animals?

Living with NMOSD can be really stressful. Do you have any animal companions that support you emotionally? What are they and what are their names? (Share a picture!)...

10 years without relapse

I've had one attack in May 2014, I'm blind in my right eye. I've had Rutuximab and Steroids after first attack. At 7 years my neurologist took it as a...

What keeps you comfortable with NMO?

Staying comfortable with NMOSD isn't always easy. Especially in the fall and winter months. What helps you stay comfortable?...

Have you felt abnormal sensations?

Sometimes NMOSD can cause odd and unusual experiences, like burning, tingling and itching. Have you experienced any odd sensations from NMOSD?...

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