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Meet and Greet! When were you diagnosed!? đź’š

Sandra Adda's avatar image

Sandra Adda

Hi!

I’m Sandra, I was misdiagnosed in 2007 with MS and properly diagnosed with NMO in 2008.

Nice to meet you!

  1. jada-walton's avatar image

    jada-walton Member

    Hey !! So happy to have you. here in the community! So glad you were able to get the correct diagnosis within a year. What country/state are you based? - Jada (neuromyelitis-optica.net team member)

    1. Sandra Adda's avatar image

      Sandra Adda Moderator & Contributor

      Hi Jada!! Thank you so much!!
      I am in Delray Beach Florida, USA what about you?

    2. jada-walton's avatar image

      jada-walton Member

      I'm from Philadelphia ! Ohh Florida. I could definitely use some of the FL weather.

  2. Darliza1's avatar image

    Darliza1 Member


    I'm handling as best I can taking it one day at a time despite being so uncomfortable in my body

    1. Sandra Adda's avatar image

      Sandra Adda Moderator & Contributor

      Have you checked out the GJCF?
      Here is their website
      https://guthyjacksonfoundation.org/

      1. Dan Marino's avatar image

        Dan Marino Moderator & Contributor

        I was diagnosed back in 2010 with NMO. Doctor in 2006 thought possibly MS but I didn’t get or recommended to get any further testing. Didn’t pursue further because I didn’t want to believe I had an issue like that. I was stubborn and feel that was a mistake.

        1. Sandra Adda's avatar image

          Sandra Adda Moderator & Contributor

          Hi Dan! Glad you’re properly diagnosed now.

      Please read our rules before posting.
      visit this forum thread

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