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The Rare Disease effect

Having a rare disease is not something that everyone can understand. Oftentimes, the majority of people who don't understand how life changes after having a rare diagnosis diagnosis, back away...

Vacationing with NMOSD?

NMOSD can create some obstacles in our day-to-day lives; everyone needs a vacation. How does having NMOSD affect your ability to take a vacation? What do you do to make...

Holidays, nmo and stress

The holidays are upon us.I know I'm always stresses out during the holiday season. I'm looking for some tips on the following questions: 1- How does the holiday stress affect...

NMO and Alcohol

Have you tried drinking alcohol since you were first diagnosed with NMO? Have you been advised not to? If you have drank, have you noticed a difference in how you...

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To the parents- how did you explain NMO to your children?

As someone with no children, i'm wondering how all the parents here explained NMO to your children. We know NMO is hard to explain to doctors. So how have you...

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Meet and Greet! When were you diagnosed!? 💚

Hi! I’m Sandra, I was misdiagnosed in 2007 with MS and properly diagnosed with NMO in 2008. Nice to meet you!...

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