My long journey

I will be 70 in August and I have been dealing with first a diagnosis of Idiopathic MS by one MS Specialty doctor, then we moved across the country to Nebraska, and an MS Clinic director where she took me off of the MS drug I was on because she said I didn't have it. Diagnosed me with Transverse Myelitis. This was in 2011. Since then, I've lost track of how many hospitalizations I've had. Fast-forward to the last four or five years, I have developed lesions on my brain stem and deep in my brain. It has left me with double-vision, a real problem with gait and balance (I have a walker and wheelchair), a serious problem with incontinence, and whole-body tremors. Please, does anyone else have these kinds of things going on or know someone who does? My neurologist has tried all kinds of treatments and I'm tired of being a guinea pig. I need some advice. What treatment will stop the brain stem lesions, anyone know? Sorry for the rant.