I am glad to be part of this family. I had been looking for a community like this since I was diagnosed with Neuromylitis optica in November 2022.
I am 43years old, I live in Cameroon.
i started experiencing some pain on my right arm, this progressed to paresis of the right arm and I couldn't write. I consulted a neurologist who diagnosed NMO after a series of tests. I took high doses of steroids and continued my with imurel. Tonic spasms set in, and the neurologist added lioresal.
Two months after, the paresis progressed to the right leg, I again took high doses of steroids and Rituximab and intensive physiotherapy.
At the moment I am limping, still taking imurel and Lioresal. The spasms keep coming up from time to time.