My story of NMO
I am glad to be part of this family. I had been looking for a community like this since I was diagnosed with Neuromylitis optica in November 2022.
I am 43years old, I live in Cameroon.
i started experiencing some pain on my right arm, this progressed to paresis of the right arm and I couldn't write. I consulted a neurologist who diagnosed NMO after a series of tests. I took high doses of steroids and continued my with imurel. Tonic spasms set in, and the neurologist added lioresal.
Two months after, the paresis progressed to the right leg, I again took high doses of steroids and Rituximab and intensive physiotherapy.
At the moment I am limping, still taking imurel and Lioresal. The spasms keep coming up from time to time.
Hi
! Welcome to the family 😀 and thank you for sharing your journey with us.
Dealing with spasms and paresis is not easy, you are so brave and courageous and we are with you at every step.
I understand this on a personal level, as you resonate with my journey, which began in Nov 2021; when 95% of my lower back went numb. And then I had a series of back-to-back spasms which doctors tried controlling with doses of Rituximab. Finally, I am able to walk too.
Alsothere is a heap of databases that you might want to explore on this site. Please feel free to ask anything. Noor (Team Member) Thank you so much Noor,
I can move around though limping and continuing with physiotherapy.
I just wish to find out if diet contributed to your healing. If so, what diet is suitable for someone with NMOThank you for sharing your story here. It is clear from your post that you have been through a lot since your diagnosis in November. It must have been a challenging time for you and your family, but I’m are glad that you have found this community and hope that it provides you with the support and empathy that you need.
I can definitely understand that it must be difficult for you to continue to experience spasms and limping despite the treatments you have undergone. Please know that we are here to offer you support and a listening ear. You are not alone in this journey, and we hope that you find some relief and comfort in being a part of our community.
How have things been for you since this post?
- Jake (Team Member)
