The NMO Learning CurveThere is a seemingly never-ending learning curve that goes hand in hand with an NMO diagnosis. One of the most difficult aspects of living with NMO has been the process... By Chelsey Tucker3 min readBookmark for laterReactions 0 reactions Comments0 comments
The Holiday Blues: Living With a Chronic Illness Like NMOWe've gotten past Thanksgiving and Christmas is just right around the corner. This is a time to gather with family and friends, enjoy the moment, and embrace the fun times... By Shekita Green3 min readBookmark for laterReactions 0 reactions Comments0 comments
Let's Talk NMO Attacks and Hospitalizations Part 2We asked three of our neuromyelitis-optica.net advocates, Mo Jones, Chelsey Tucker, and Aldelly Vasquez to describe their recent experiences with hospitalization due to NMO attacks, also known as relapses. This... By Editorial Team 7 min readBookmark for laterReactions 0 reactions Comments0 comments
Pandemic. Moving. And a Diagnosis.It's March 2020, my friend wins a trip to Mexico. Her husband can’t go, so I’m next in line! We get off the plane in Mexico to multiple texts telling... By Robyn3 min readBookmark for laterReactions 0 reactions Comments2 comments
My NMO Journey and Why I'm ThankfulWhy am I here? What is my purpose? Why me? Why THIS disease? What did I do wrong? What can I possibly offer this world to still be here? Why?... By Dan Marino4 min readBookmark for laterReactions 0 reactions Comments1 comments
The 411 on Working From HomeThe COVID-19 pandemic undeniably changed the way that much of the world works. For decades, those who worked in offices did their work entirely from those offices, with the exception... By Editorial Team 5 min readBookmark for laterReactions 0 reactions Comments0 comments
Baby Boomer Men, Meds, and the MoonEditor’s Note: This article was originally shared by our sister site, skincancer.net, and was written by Scott Matheny. Our parents and grandparents stormed the beaches of Normandy and helped put... By Editorial Team 3 min readBookmark for laterReactions 0 reactions Comments0 comments
The Initial DiagnosisSo, you've been diagnosed with NMOSD. What do you do now? I was diagnosed with NMOSD in the middle of a pandemic. Looking back to that moment, my neurologist said... By Shekita Green2 min readBookmark for laterReactions 0 reactions Comments0 comments
Three Legal Documents Caregivers NeedAs a caregiver, you may be in charge of a partner, parent, or grandparent who lives with NMO. Some may experience drastic life changes when living with NMO, such as... By Editorial Team 3 min readBookmark for laterReactions 0 reactions Comments0 comments
Voting with a Health Condition: What to KnowVoting is a fundamental American right, but it has special meaning for people with disabilities or health conditions like NMO. Until federal laws like the Americans with Disabilities Act (ADA)... By Editorial Team 4 min readBookmark for laterReactions 0 reactions Comments0 comments
Test Your Knowledge about NMO!How much do you know about NMO? We're about to find out! Answer the six questions below and then see how you did.0-1: Maybe it’s time to brush up on... By Editorial Team 1 min readBookmark for laterReactions 0 reactions Comments0 comments
My Personal NMO JourneyMy story starts back in July of 2018. I was working at the local hospital as a Patient Advocate (loved my job). I started with a “pulled muscle” type of... By Bossable4 min readBookmark for laterReactions 0 reactions Comments1 comments
Become a Neuromyelitis-Optica.net Advocate!Would you like to share your experience with the NMO community and help others who are also living with this diagnosis? Whether you live with NMO yourself or are a... By Editorial Team 1 min readBookmark for laterReactions 0 reactions Comments0 comments
Disability BenefitsWhen you have a long-term (chronic) medical condition like NMO, there may be times when you are not able to work. This can seriously impact your finances and your family’s... By Editorial Team 3 min readBookmark for laterReactions 0 reactions Comments0 comments
Applying for Social Security Disability BenefitsLiving with a long-term (chronic) health condition like NMO may make working impossible at some point. The symptoms from your condition can impact your ability to get your job done... By Editorial Team 3 min readBookmark for laterReactions 0 reactions Comments0 comments
Steroids: The Good, The Bad, and The UglyIf you or someone you love has NMO, you are probably familiar with corticosteroids like prednisone, solu-medrol, and many more. Prescribed in very high doses during an attack, steroids work... By Chelsey Tucker3 min readBookmark for laterReactions 0 reactions Comments0 comments
The Dreaded NMO PainI was first diagnosed with NMO in February 2020. It took 7 years for me to get to this point after being misdiagnosed in 2013. During that time, I was... By Shekita Green3 min readBookmark for laterReactions 0 reactions Comments6 comments
Things I Wish I Knew When I Was First DiagnosedBeing diagnosed with neuromyelitis optica can be scary, but staying optimistic is key. I remember feeling shocked, lost, alone, scared, with too many emotions ran through my veins. No one... By Aldelly V.3 min readBookmark for laterReactions 0 reactions Comments0 comments
When You Know, You KnowI wasn’t very sickly as a child, but as I started to get older, I realized that I was having more health issues. People used to think I was a... By Monica Jones4 min readBookmark for laterReactions 0 reactions Comments0 comments
The NMO Community We Have Been Waiting for Is HereFor far too long, many who contend with neuromyelitis optica spectrum disorder (NMO), whether their diagnosis was known or unknown to them, have done so lacking the resources they deserve... By Editorial Team 3 min readBookmark for laterReactions 0 reactions Comments0 comments