Become a Neuromyelitis-Optica.net Advocate!Would you like to share your experience with the NMO community and help others who are also living with this diagnosis? Whether...reactionscomments
Recovery from Baclofen Pump Surgery During a PandemicAfter going through surgery to install a Baclofen pump and all its complications in the middle of the pandemic, it was time...reactionscomments
Vaccines and NMOVaccine safety and efficacy have been topics of debate for a long time. This is especially true for people with pre-existing medical...reactionscomments
The Sumaira Foundation Distributes Five $25,000 Research GrantsThe Sumaira Foundation recently announced that it has awarded five grants, each in the amount of $25,000, to further research into NMOSD...reactions2comments
Participating in Research for NMOMedicine is based on research. Clinical trials using real people help determine how safe and effective treatments are. Research into Neuromyelitis optica...reactionscomments
Strategies for Coping with a Rare Disease like NMOWhen you are diagnosed with a rare disease like NMO, you might feel overwhelmed about what to expect. Because few people have...reactionscomments
The Relationship Between NMO and LupusNMO is sometimes seen alongside other autoimmune conditions, especially those involving abnormal antibodies. Antibodies are proteins our immune system makes to fight...reactionscomments
FDA Approves Drug for Pre-Exposure Prevention of COVID-19The U.S. Food and Drug Administration (FDA) has authorized a new drug that may help prevent COVID-19. It is called Evusheld (tixagevimab...reactionscomments
Bone Health and NMONeuromyelitis optica spectrum disorder (NMO) is a rare inflammatory disease that affects the spinal cord, eye, and brain. Studies have found that...reactionscomments
Ask the Advocates: How to Cope with NMO-Related HeadachesWe asked our advocates how they cope with headaches. Here's what they had to say: "For as many years as I’ve had...reactionscomments
Shining a Light on Your NMOSD ExperienceWe want to learn more about our community members living with neuromyelitis optica spectrum disorder (NMOSD). Each NMOSD journey has common threads...reactionscomments
NMO and Covid…AgainThe day I heard Covid was poking its head out again in the news, I got it. My friend went back to...reactionscomments
Stop Telling Me “You’re So Strong”You’re so strong. I don’t know how you do it. You’re so young to be dealing with this. You’re too young to...reactions1comment
Neuromyelitis Optica Spectrum Disorder (NMOSD) in ChildrenNeuromyelitis optica spectrum disorder (NMOSD or NMO) is a rare disorder affecting the nervous system. About 4 percent of all NMOSD cases...reactionscomments
Vacationing In A WheelchairIt was 10 years in September since I became paralyzed due to an NMOSD (neuromyelitis optica spectrum disorder) flare up. I finally...reactionscomments
Vision Changes and My Mental HealthWell, I made it. It was a long stressful summer of illness all around. From depression to a car of screaming cats...reactions1comment
Language BarrierNavigating the healthcare system is hard enough for a regular English-speaking person. But imagine being diagnosed with a rare condition like NMOSD...reactionscomments
Finding Balance: Navigating Toxic Positivity and Neuromyelitis OpticaLife is a beautiful journey filled with ups and downs. It's natural for us to experience a wide range of emotions as...reactionscomments
Chronic FatigueThe joys of chronic fatigue, the battle that even caffeine can’t win. When I was first diagnosed I would sleep 16 to...reactions2comments
Letting Go of PerfectionismHow does one let go of the idea of perfectionism? With today's world and so much social media, how is it not...reactionscomments
