Tips For The Newly DiagnosedIt was the fourth week of September, almost three weeks of being stuck in a hospital room alone and in pain. The...reactions1comment
I'm Grateful for NMO, The Disease That Tried to Kill MeI’m grateful for my NMO diagnosis. Reading that, you may say, "huh? Why?" Before I was sick, I thought I had my...reactions5comments
The Neuropathic ItchNeuropathic itch is a somewhat common symptom in people who live with neuromyelitis optica spectrum disorder (NMOSD). NMOSD is a nervous system...reactions4comments
It's Okay To FeelIt's okay to have a bad day, and it's okay to have a bad week. You don't need to beat yourself up...reactions7comments
The Nitty Gritty of Living with NMOSDNMOSD is a rare disease. That means that finding a doctor who can treat you will not go without difficulty. The bigger...reactions4comments
My Appointment With The NeuroThis was my first in-person appointment in Glasgow with my neurologist after going off steroids and starting Rituximab. He's an MS specialist...reactions3comments
Where Are All The Accessible Housing Options?For the past nine years, I've lived using a wheelchair. I've realized that there are few housing options for people with a...reactions2comments
Surgery Number ThreeOn January 12, 2022, I walked into the surgery floor to start the trial process of getting a stimulator placed for my...reactions2comments
The Anxiety That Comes With My NMOLiving with a chronic illness like NMO, I have loads of thoughts crossing my mind daily. Only those who suffer from similar...reactions3comments
My NMO Diagnosis JourneyMy NMO diagnosis journey began in 2007, shortly after I turned 20. I was newly married to my best friend, and we...reactions3comments
How Does NMO Affect Cognition?NMOSD (neuromyelitis optica spectrum disorder), or NMO, is a neurological disorder. It affects the central nervous system. NMO can cause severe cognitive...reactions1comment
Learning to Deal With My GriefFor the longest time, I've had major issues dealing with the grief of being diagnosed with NMO. I've dealt with a lot...reactions4comments
Celebrating Holidays with NMOThis time of year, when everything is joyful and jolly, it seems like NMO always has an unpleasant surprise for me. The...reactions1comment
My Experiences with Problematic DoctorsIt has been over two years that I've lived since finding out I have NMO. I've endured my fair share of experiences...reactions2comments
One Day, One Full Rituximab InfusionI had my first complete rituximab infusion for NMO on the 26th of July, the day before my 20th birthday. Finally, after...reactionscomments
My 4 NMO TriggersWe all have things that may trigger our NMO symptoms in our day-to-day lives. Triggers are different for everyone. As for me...reactions3comments
Traveling with a Chronic ConditionI used to absolutely love traveling, especially before I was diagnosed. It wasn’t as exhausting as it is now, having a chronic...reactions3comments
Relationships and Building Back My ConfidenceBefore life with NMO, I was an outgoing people person. I had many friends all around and a serious relationship. As time...reactions1comment
My Life Is Finally Falling Into PlaceLast year, it felt like my life was falling apart, and nothing would feel the same ever again. When I found out...reactions8comments
Staying Positive During Difficult TimesStaying positive when things seem like they are going wrong is difficult, and I feel that we can get into that "victim"...reactionscomments