Life After My NMO DiagnosisSince being diagnosed with NMOSD, I feel like a completely different person. My outlook on life has changed. Health wasn't something I took seriously. My focus on life was just... By Haleemah Sarwar3 min readBookmark for laterReactions 0 reactions Comments0 comments
Did NMO Save Me?What if... My brain never shuts up. I can’t tell if it's a blessing or a curse. It races with thoughts of the past, present, and future. Some days it... By Dan Marino3 min readBookmark for laterReactions 0 reactions Comments0 comments
Tips for Managing Headaches With NMOHeadaches are one of the most commonly reported symptoms from people with NMO, especially before they have an attack. I am no exception to that fact. I’ve had headaches for... By Shekita Green3 min readBookmark for laterReactions 0 reactions Comments1 comments
My Experience With SpasticitySpasticity was one of the first symptoms I experienced before I was diagnosed with NMO. After being diagnosed time passed my spasticity worsen and started taking over not only my... By Aldelly V.2 min readBookmark for laterReactions 0 reactions Comments6 comments
My Journey With NMO: Taking Back My LifeThis will be the final part of this journey so far. A new treatment, fresh starts, a new purpose, and a glimmer of hope. New things started to happen to... By Dan Marino3 min readBookmark for laterReactions 0 reactions Comments0 comments
Patients Know What WorksOften times when we are diagnosed with a rare disease, we have first been misdiagnosed with multiple other diseases. There are times when patients are put on so many different... By Teaira-Daniels4 min readBookmark for laterReactions 0 reactions Comments2 comments
What Is In My Infusion Bag?In this video, I share what is in my infusion bag. ... By Haleemah Sarwar1 min readBookmark for laterReactions 0 reactions Comments2 comments
Living with NMOSD SpasmsAs if living with NMOSD isn't challenging enough, there is always that one thing that's worthy of a full conversation. You know that one thing that's so bothersome that you... By Shekita Green3 min readBookmark for laterReactions 0 reactions Comments19 comments
To Eat or Not to Eat with NMOTo eat or not to eat because of NMO lethargy should NEVER be a question. Whether one feels too exhausted to think of something to eat or too tired to... By Marlene Austin3 min readBookmark for laterReactions 0 reactions Comments0 comments
A Kidney Infection or Something Else?As we all know, when we're on treatment that suppresses our immune system, we will be at risk of catching infections more frequently. Because of this, the month of June... By Haleemah Sarwar3 min readBookmark for laterReactions 0 reactions Comments9 comments
We Asked Mo 23 QuestionsAs we know, NMO is an exceedingly rare disease. When you meet someone who also lives with NMO, it's only natural to want to know everything about them and how... By Monica Jones1 min readBookmark for laterReactions 0 reactions Comments2 comments
The Frustrations of Being NMO AQP4 NegativeThe symptoms that we now recognize as NMO were first described more than 100 years ago. However, without the right technology and testing, it was hard to separate NMO from... By Aldelly V.1 min readBookmark for laterReactions 0 reactions Comments5 comments
Animals: The Best Medicine You Never Knew You NeededSome people call me a "crazy old cat lady." I think I just love animals but yeah, I have the mentality of a "crazy cat lady." If I could, I... By Dan Marino3 min readBookmark for laterReactions 0 reactions Comments1 comments
NMO, Medical Trauma, and PTSDDid you know that you can become traumatized by a medical event or related situation and get PTSD? Yea, me either, until it happened to me. As many of you... By Shekita Green3 min readBookmark for laterReactions 0 reactions Comments8 comments
What's in Mo's BagYou never know what you might need to have on you to make life with NMO all the easier. Mobility devices? Incontinence products? Medication? Chocolate? Let's take a trip into... By Monica Jones1 min readBookmark for laterReactions 0 reactions Comments0 comments
We Asked Shekita 23 QuestionsAs we know, NMO is an exceedingly rare disease. When you meet someone who also lives with NMO, it's only natural to want to know everything about them and how... By Shekita Green1 min readBookmark for laterReactions 0 reactions Comments4 comments
I’m Disabled, Not Deceased!I know I'm not alone when I say that I feel like I get stereotyped for my disabilities. I think because I'm young(ish) and because, for the most part, my... By Monica Jones2 min readBookmark for laterReactions 0 reactions Comments2 comments
NMO and Autoimmune DiagnosesWhen friends learn I have an autoimmune disease they often ask when and how I was diagnosed. My response: “Which time?” Getting a diagnosis for any autoimmune disease is hard... By Marlene Austin5 min readBookmark for laterReactions 0 reactions Comments1 comments
Simplicity and What NMO Does to ItBeing diagnosed with NMO changes your life in so many ways, including how you live day-to-day. Something as simple as doing dishes can go from a quick chore to a... By Dan Marino3 min readBookmark for laterReactions 0 reactions Comments1 comments
I Took a Shower TodayI took a shower today! I took a shower today! Duh… Few people understand why taking a shower could be an activity worth reporting since it’s their daily habit, but... By Marlene Austin3 min readBookmark for laterReactions 0 reactions Comments1 comments