It's Okay To FeelIt's okay to have a bad day, and it's okay to have a bad week. You don't need to beat yourself up for having a hard time or not feeling...Reactions0reactionsComments7 comments
More of The Nitty Gritty of Living with NMONMO is a rare disease. That means that finding a doctor who can treat you will not go without difficulty. The bigger the city you live in, the better your...Reactions0reactionsComments2 comments
My Appointment With The NeuroThis was my first in-person appointment in Glasgow with my neurologist after going off steroids and starting Rituximab. He's an MS specialist - not an NMOSD specialist. My hospital has...Reactions0reactionsComments3 comments
Where Are All The Accessible Housing Options?For the past nine years, I've lived using a wheelchair. I've realized that there are few housing options for people with a disability or limited mobility. In 2014, after I...Reactions0reactionsComments2 comments
Surgery Number ThreeOn January 12, 2022, I walked into the surgery floor to start the trial process of getting a stimulator placed for my bowel and bladder. I have shared my struggles...Reactions0reactionsComments2 comments
The Anxiety That Comes With My NMOLiving with a chronic illness like NMO, I have loads of thoughts crossing my mind daily. Only those who suffer from similar conditions can understand the toll that this stress...Reactions0reactionsComments3 comments
My NMO Diagnosis JourneyMy NMO diagnosis journey began in 2007, shortly after I turned 20. I was newly married to my best friend, and we had our whole lives ahead of us. I...Reactions0reactionsComments3 comments
How Does NMO Affect Cognition?NMOSD (neuromyelitis optica spectrum disorder), or NMO, is a neurological disorder. It affects the central nervous system. NMO can cause severe cognitive issues (problems with your thinking). These include memory...Reactions0reactionsComments1 comments
Learning to Deal With My GriefFor the longest time, I've had major issues dealing with the grief of being diagnosed with NMO. I've dealt with a lot of challenging things in my life, and I...Reactions0reactionsComments4 comments
Celebrating Holidays with NMOThis time of year, when everything is joyful and jolly, it seems like NMO always has an unpleasant surprise for me. The holidays are the time of the year when...Reactions0reactionsComments1 comments
My Experiences with Problematic DoctorsIt has been over two years that I've lived since finding out I have NMO. I've endured my fair share of experiences with problematic doctors. I'm sure we've all been...Reactions0reactionsComments2 comments
One Day, One Full Rituximab InfusionI had my first complete rituximab infusion for NMO on the 26th of July, the day before my 20th birthday. Finally, after having to postpone it twice due to catching...Reactions0reactionsComments0 comments
My 4 NMO TriggersWe all have things that may trigger our NMO symptoms in our day-to-day lives. Triggers are different for everyone. As for me, I have many triggers which I never expected...Reactions0reactionsComments3 comments
Traveling with a Chronic ConditionI used to absolutely love traveling, especially before I was diagnosed. It wasn’t as exhausting as it is now, having a chronic condition like NMO. There are many things I...Reactions0reactionsComments3 comments
Relationships and Building Back My ConfidenceBefore life with NMO, I was an outgoing people person. I had many friends all around and a serious relationship. As time went on and NMO showed its true colors...Reactions0reactionsComments0 comments
My Life Is Finally Falling Into PlaceLast year, it felt like my life was falling apart, and nothing would feel the same ever again. When I found out about my diagnosis, I wanted the ground to...Reactions0reactionsComments8 comments
Staying Positive During Difficult TimesStaying positive when things seem like they are going wrong is difficult, and I feel that we can get into that "victim" and "poor me" mindset instead of choosing a...Reactions0reactionsComments0 comments
What Is the Social Health Network Community?Like our other Health Union condition communities, the Social Health Network brings people together to drive unique and impactful conversations about health. It also aims to expand opportunities for health...Reactions0reactionsComments0 comments
What to Know About NMOI remember when I was first diagnosed with NMO after I got over the initial devastation, the first thing I did was look up what it was and its symptoms...Reactions0reactionsComments0 comments
My NMO AnniversaryA year filled with constant ups and downs. Learning to live life as someone with a long-term illness wasn’t straightforward. When I first received the news that I had Neuromyelitis...Reactions0reactionsComments4 comments