Let's Talk AbleismIt's 2022 and somehow we're still having conversations about ableism. With all the technology and resources available today, I can't help but...reactionscomments
NMO, Social Media, and my Mental HealthIt was pre-pandemic when I decided to start sharing my NMO story on social media. I started sharing my story online because...reactions4comments
Understanding the Impact of NMO: Misdiagnosis, Mental Health, and CommunityWe collected information about the experiences of 61 people living with NMO in the 1st Annual NMO In America survey. NMO is...reactions1comment
NMO Symptoms: PainPain is an unfortunate part of living with neuromyelitis optica spectrum disorder (NMO). It can impact your quality of life, both physically...reactions3comments
You Must Understand, Pain is Pain!I wish I could describe the chronic pain from my NMO that I feel every day. I also wish I could explain...reactionscomments
Let's Have a Drink!I come from a culture where alcohol is very present in everything we do. If there is a birthday, baby shower or...reactionscomments
Ways I Reduce StressAs time has passed, I have picked on certain things that trigger my body into an NMO flare. My biggest trigger at...reactions2comments
Scrambler TherapyMore than 80 percent of people with neuromyelitis optica spectrum disorder (NMO) experience significant pain. This may be pain related directly to...reactions1comment
I Feel Alone with a Rare DiseaseLiving with a rare disease like neuromyelitis optica (NMO) has put me in a position to feel alone. When I was first...reactionscomments
Prioritizing My HealthBeing back in New York is almost like a gift. It just feels so right. But also being back means I need...reactionscomments
Record Your JourneyI record everything. Since the day I was diagnosed with neuromyelitis optica (NMO), I have always felt the need to record and...reactionscomments
Medical Gaslighting and MeEver since I was a child, my life has been nothing but a comedy of medical errors. I am one of those...reactions2comments
Health Literacy and NMOSDReceiving a chronic health diagnosis changes your priorities. Learning about the disease and how to advocate for yourself becomes critical. This is...reactions1comment
A Toast To CaregiversIt’s been a long journey with neuromyelitis optica (NMO). I’ve had to learn how to better help my health and learn new...reactionscomments
My First Shopping Experience In My WheelchairConfidence is the most beautiful aura one can wear in public. The feeling of wearing an invisible security blanket around yourself and...reactionscomments
From Misdiagnosis to DiagnosisGetting a diagnosis for a mysterious ailment can feel like searching for a needle in a haystack. It's frustrating, disheartening, and sometimes...reactions2comments
Bring On The Love This HolidayIt’s been several years since my last full blown family holiday season. Now that I think about it, been about five years...reactionscomments
Meeting My Service PupThe first year of my diagnosis was rough. I’ve never felt so alone, so unwanted and so broken in my life. The...reactionscomments
My NMO Christmas ListMy neuromyelitis optica (NMO) wish list: As the iconic song “All I want for Christmas is You” by Mariah Carey goes, it opens...reactionscomments
Ask the Advocates: What Does Community Mean to You?We asked our advocates what having an online NMO community means to them. Here's what they had to say; "I cannot stress...reactionscomments
