Articles

Being an AQP4-negative NMO IgG patient can be so frustrating. I feel like an orphan patient with limited access to treatments because of my blood test results of negative AQP4...

I was sent home the same day. I was relieved as I hate staying in hospitals. I was told by an NMO specialist I would be liable for the COVID-19...

As rare disease patients, we have to become comfortable with explaining NMOSD. A lot of times, we are the ones telling the doctors about the disease. We constantly need to...

One of the most troublesome symptoms of my NMOSD is neuropathic pruritis or neuropathic itch. It occurs due to damage to neurons of the peripheral or central nervous system. I...

In this video, I'm sharing what it means to me to be an advocate for NMOSD.  ...

I am a legal student. I studied Legal Services in college. I graduated in year 1 of Legal Services with an A, but this was before my health went downhill...

In this video, I share my second video in a 2-part series on NMO life hacks about showering. Let me know what you think in the comments below...

The first pain medication I took for my nerve pain, even before my diagnosis, was Duloxetine. It helped calm down the burning pain I had, but at the time, I...

Having nutritious snacks handy can help when you reach that exhaustion point where cooking seems impossible. Fruit—grapes, apple slices, sections of orange, berries—in the refrigerator, washed and ready to eat...

Here we go again. The buildup of emotions is eating me alive. Perhaps it's the season for it, I don't know. What I do know is, I often question how much...

I have tried to cope with living with a long-term illness in many different ways since my diagnosis of NMOSD. When I was first diagnosed, I had no idea what...

Growing up an athlete, I was always the active one of the bunch. Always wanting to go, go, go, and still having energy. Now, I am the friend that has...

Emotions were high and emotions were low. I felt joy but with a side of misery. If it’s one thing I can’t stand, it's going and finding out what’s wrong...

After going through surgery to install a Baclofen pump and all its complications in the middle of the pandemic, it was time for recovery. As a first-time user of the...

NMOSD sucks. Plain and simple, but out of all of the problems associated with NMO, intolerance to hot and cold has to be the worst. For example, I expect my legs...

I recently went to the P&G Music Festival in Cincinnati. That same weekend was the Cincy Soul taste of Cincinnati. These 2 events bring out crowds of over 100,000 people...

Prednisolone is a steroid medication used to reduce inflammation. It is used for many inflammatory conditions, just as it is used for those with NMOSD. I should be grateful that...

Life with NMO is far from easy. All too often, each attack leaves us with some form of permanent disability. Our mobility being affected the most. Take a look at...

Since being diagnosed with NMOSD, I feel like a completely different person. My outlook on life has changed. Health wasn't something I took seriously. My focus on life was just...

What if... My brain never shuts up. I can’t tell if it's a blessing or a curse. It races with thoughts of the past, present, and future. Some days it...