What Is the Social Health Network Community?Like our other Health Union condition communities, the Social Health Network brings people together to drive unique and impactful conversations about health...reactionscomments
What to Know About NMOI remember when I was first diagnosed with NMO after I got over the initial devastation, the first thing I did was...reactionscomments
My NMO AnniversaryA year filled with constant ups and downs. Learning to live life as someone with a long-term illness wasn’t straightforward. When I...reactions4comments
AQP4 Negative and NMO IgG is FrustratingBeing an AQP4-negative NMO IgG patient can be so frustrating. I feel like an orphan patient with limited access to treatments because...reactionscomments
A Kidney Infection After COVIDI was sent home the same day. I was relieved as I hate staying in hospitals. I was told by an NMO...reactionscomments
Disclosing Your DiseaseAs rare disease patients, we have to become comfortable with explaining NMOSD. A lot of times, we are the ones telling the...reactionscomments
Neuromyelitis Optica and the Neuropathic ItchOne of the most troublesome symptoms of my NMOSD is neuropathic pruritis or neuropathic itch. It occurs due to damage to neurons...reactions11comments
What It Means To Me To Be An AdvocateIn this video, I'm sharing what it means to me to be an advocate for NMOSD. ...reactions2comments
Graduating College With NMOI am a legal student. I studied Legal Services in college. I graduated in year 1 of Legal Services with an A...reactions4comments
NMO Life Hacks Part 2: ShoweringIn this video, I share my second video in a 2-part series on NMO life hacks about showering. Let me know what...reactionscomments
Pain Medications: A Process Of Trial And ErrorThe first pain medication I took for my nerve pain, even before my diagnosis, was Duloxetine. It helped calm down the burning...reactionscomments
Eating Well With NMOSDHaving nutritious snacks handy can help when you reach that exhaustion point with NMOSD, where cooking seems impossible. Fruit—grapes, apple slices, sections...reactions1comment
The Emotional Rollercoaster of NMOHere we go again. The buildup of emotions is eating me alive. Perhaps it's the season for it, I don't know. What I...reactions3comments
How I Learned to Cope With My NMO DiagnosisI have tried to cope with living with a long-term illness in many different ways since my diagnosis of NMOSD. When I...reactions2comments
Losing my YouthGrowing up an athlete, I was always the active one of the bunch. Always wanting to go, go, go, and still having...reactions4comments
NMO and Stomach ProblemsEmotions were high and emotions were low. I felt joy but with a side of misery. If it’s one thing I can’t...reactions1comment
Recovery from Baclofen Pump Surgery During a PandemicAfter going through surgery to install a Baclofen pump and all its complications in the middle of the pandemic, it was time...reactionscomments
The War Between Being Hot vs. ColdNMOSD sucks. Plain and simple, but out of all of the problems associated with NMO, intolerance to hot and cold has to...reactions3comments
Wheelchair Access at Events with NMOI recently went to the P&G Music Festival in Cincinnati. That same weekend was the Cincy Soul taste of Cincinnati. These 2...reactionscomments
Life On PrednisolonePrednisolone is a steroid medication used to reduce inflammation. It is used for many inflammatory conditions, just as it is used for...reactionscomments
