Outsmarting NMOSD: My Intentional Tech ToolkitLiving with a chronic illness like NMOSD means becoming an expert in your own body, sometimes whether you want to or not...reactionscomments
The NMOSD Symptom I Experience Most: SpasticitySpasticity for me has been a primary indicator that something is wrong with my body. When I was diagnosed with NMOSD back...reactions9comments
NMOSD and AI: How Are You Using It for Your Health?Something has shifted in the last couple of years. A late-night symptom search now sometimes starts with an AI summary before it...reactionscomments
Navigating Hybrid Mobility with NMOSDLiving with NMOSD means learning to exist in a body that doesn’t follow consistent rules. For many of us that means adopting...reactionscomments
NMOSD Food and Diet ShortcutsTo eat or not to eat because of fatigue should NEVER be a question. Whether one feels too exhausted to think of...reactionscomments
The Physical and Emotional Toll of SteroidsI experienced a terrifying NMOSD attack. My right eye suffered a lot from an ignored NMOSD flare up. My vision became pretty...reactionscomments
My Steroid StoryLet’s talk steroids and NMOSD. When I was diagnosed in 2017, I was at a hospital with doctors that didn’t know much...reactions6comments
Steroids: The Good, The Bad, and The UglyIf you or someone you love has NMOSD, you are probably familiar with corticosteroids like prednisone, solu-medrol, and more. Prescribed in very...reactionscomments
Applying for Social Security Disability BenefitsLiving with a long-term (chronic) health condition like NMO may make working impossible at some point. The symptoms from your condition can...reactionscomments
Disability BenefitsWhen you have a long-term (chronic) medical condition like NMO, there may be times when you are not able to work. This...reactionscomments
NMOSD Cognitive Fog In The WorkplaceI’m not lazy, my brain just won’t always cooperate. I sit at work, staring blankly at the computer screen and trying to...reactionscomments
How To Spend More Time Outdoors With Neuromyelitis OpticaSpending time outdoors with neuromyelitis optica spectrum disorder (NMOSD) can feel like a challenge. When fatigue, pain, balance issues or vision changes...reactionscomments
How To Cope With Medical Trauma and PTSD From NMOSDDid you know that you can become traumatized by a medical event or related situation and get PTSD? Yeah, me either, until...reactions8comments
Shekita's NMOSD Life HacksHave you ever wanted some tips for coping with the pins and needles feeling that accompanies nerve pain? Are you curious about...reactions3comments
Mourning My Life Before NMOSDI scroll through this website every day, seeing pain in different types and forms. People will talk about life before their NMOSD...reactions2comments
I'm Not Tired, I'm FatiguedThe world and the people in it seem busier than ever. At a time of "accessibility" and "ease of access", most of...reactions2comments
NMOSD and Stomach ProblemsI felt joy but with a side of misery. If it’s one thing I can’t stand, it's going and finding out what’s...reactions1comment
Assembling Your Best Healthcare TeamOne of the first steps in managing your NMOSD is assembling the best healthcare team for you. Having the support of friends...reactionscomments
A Conversation Guide: What to Do When Your Doctor Is Not Familiar with NMOSDNMOSD is a rare condition. Doctors are not sure of the exact number of people living with NMOSD. According to different sources...reactions1comment
Speaking The Language Of Doctors: Becoming My Own NMOSD Expert“Your labs look normal, and you seem like you are feeling better.” The paper beneath me crinkled as I shifted on the...reactions1comment
