Articles

Writing has been a huge help over the last few years with NMO. It's been a great way to share my personal experience with a disease that many know nothing...

I was watching an interview and this lady said, “If you have money you can afford to fall sick." And I could not agree more with this statement. I mean...

Living with neuromyelitis optica spectrum disorder (NMOSD) comes with challenges, both physical and emotional. One major challenge of living with a rare disease is finding a "new normal" when it...

I laid on a flatbed in a curled baby fetal position and was told by the anesthesiologist to try and stay still as he prepped my back for a spinal...

I worked so hard last year coming to terms with my bad eye, and trying to make the best out of life with NMO. I continued down a path of...

NMOSD came as a real eye-opener for me holistically. I used to see specially-abled people walk by, unaware of the challenges they must face in a zillion ways. Now I...

People with neuromyelitis optica spectrum disorder (NMOSD) often experience a loss of mobility. For some, physical therapy can help them regain mobility and everyday functioning. This can have varying results...

I've learned during my journey with NMO that stress can cause a lot of negative reactions in my body. This can have an impact on mental health, but also result...

It's been 2 years and 7 months since I was officially diagnosed as AQP4+. And 3 years since I became partially blind. But NMOSD (as I always mention) did not...

It was the year 2016, months before my official NMOSD diagnosis, and I was limp walking around the hospital hallways to get to my very first neurology appointment. The first...

Picture it: New York, 2007. I was 18 and felt indestructible, or so I thought I was. I had my first NMO attack less than a year prior but shrugged...

Being diagnosed with a rare disease, NMOSD, helped me come out. It’s June so that means it’s pride month, and during pride month we take the time to celebrate those...

Many in the NMO community can relate to the feeling of not being understood by others around you. I isolated myself from the world for a while, it’s been a...

It was 3 months after I was diagnosed with neuromyelitis optica spectrum disorder (NMOSD). I was 95 percent paralyzed from the waist down since October 2021. But thanks to regular...

Over the last two years, I’ve started to go to the gym again, and weight lift under the supervision of my doctors. When I was diagnosed with neuromyelitis optica spectrum...

Neuromyelitis optica spectrum disorder (NMOSD) is an autoimmune disease. This means it is caused by the body mistakenly attacking itself. In NMOSD, the immune system attacks the central nervous system...

The best feeling for me during the summer months was the warmth of the sun wrapped around my skin and getting a golden-brown tan. Oh, how I used to love...

I’m exhausted. I finally completed two neuromyelitis optica (NMO) appointments I promised to get done this year. Well, now I have more appointments. The main thing that stresses me about...

I feel stuck since my neuromyelitis optica (NMO) diagnosis. My life has been nothing but a whirlwind of constant change, lack of room for routine and feeling sedentary. After I...

Because neuromyelitis optica spectrum disorder (NMOSD) is a rare disease, misdiagnosis is common. It can take months or years to get an accurate diagnosis. Symptoms often overlap with those of...