Articles

Symptoms, diagnosis, prognosis, treatment plans, medication, self-care, pain, fatigue, limitations in daily activity, frequent visits to doctors, gaslighting, social isolation, ghosting, relapse, flare-ups, mental health issues, complications and comorbidities, financial...

Many people are familiar with the term PTSD, or post-traumatic stress disorder. It is typically linked to experiences of physical and/or emotional trauma. PTSD is often associated with events like...

In my experience in living with NMO and migraines, it has been challenging to differentiate the two. One of my very first symptoms back in 2013, 3 years before getting...

It has been 11 years since I woke up paralyzed. I was in a wheelchair due to my biggest NMO attack, and at the time I had not been diagnosed...

After my NMO diagnosis and on the road to recovery, my family has been the biggest rock. Especially my mom. She has always been around taking care of all of...

Navigating the holidays can often be difficult for those living with rare diseases like NMOSD. The holiday season can be a joyous time, but it can also be a source...

What happened in March was not how I thought I’d spend my NMO awareness month. I’ve tried writing this several times but every time I write, things continue to change...

After being diagnosed as AQP4+ and getting paralyzed from the waist down, my initial phase of spasms started without any pain. My muscles would get very stiff and my leg...

My hopes and dreams of one day getting up from my wheelchair and walking freely are partly kept alive by my rehab team. Don’t get me wrong, there are other...

This fall season, we want to express our gratitude for the Neuromyelitis-Optica.net community. When you live with neuromyelitis optica spectrum disorder (NMOSD), it is not always easy to stay comfortable...

When NMOSD entered my life, two things hit me hard. The first was the lack of information, and the second was isolation. The misinformation threw me into panic mode. When my...

As a parent, I always had thoughts and dreams for my children. Like most other parents, I wondered when my babies would sit up, crawl and walk. I thought about...

My official journey with NMOSD began in November 2021 when I was told I am AQP4+. Over 3 years, I dealt with side effects of my medicine, being constantly in...

People with neuromyelitis optica spectrum disorder (NMOSD or NMO) are forced to navigate a variety of challenging symptoms: vision loss, headaches, weakness or paralysis, temperature sensitivity, bowel and bladder issues...

One of my very first symptoms before getting diagnosed with NMO was having problems with my bladder. After experiencing many embarrassing moments with my bladder, getting pelvic floor therapy, and...

I was traveling when a wave of NMOSD spasms hit me. I was standing when this happened, and I politely asked one of the passengers who was sitting in the...

My mum is a carer. She has been a carer for around 4 years. She was also my carer during my NMO attack and recovery. She is a wonderful woman...

Deciding to get a suprapubic catheter for a wheelchair-bound person like myself, with my neurogenic bladder with severe UTIs, was a no-brainer. I had been dealing with a severe and...

Writing has been a huge help over the last few years with NMO. It's been a great way to share my personal experience with a disease that many know nothing...

I was watching an interview and this lady said, “If you have money you can afford to fall sick." And I could not agree more with this statement. I mean...