Is NMO Causing My Thyroid Issues?Writing has been a huge help over the last few years with NMO. It's been a great way to share my personal experience with a disease that many know nothing... By Dan Marino3 min readBookmark for laterReactions0reactionsComments0 comments
Financial Struggles with NMOSDI was watching an interview and this lady said, “If you have money you can afford to fall sick." And I could not agree more with this statement. I mean... By Kshirja Singh4 min readBookmark for laterReactions0reactionsComments1 comments
Support One Another: Relationships With NMOSDLiving with neuromyelitis optica spectrum disorder (NMOSD) comes with challenges, both physical and emotional. One major challenge of living with a rare disease is finding a "new normal" when it... By Neuromyelitis-Optica.net Team1 min readBookmark for laterReactions0reactionsComments0 comments
My Spinal Tap ProcedureI laid on a flatbed in a curled baby fetal position and was told by the anesthesiologist to try and stay still as he prepped my back for a spinal... By Aldelly V.3 min readBookmark for laterReactions0reactionsComments1 comments
Taking Back My VoiceI worked so hard last year coming to terms with my bad eye, and trying to make the best out of life with NMO. I continued down a path of... By Dan Marino3 min readBookmark for laterReactions0reactionsComments0 comments
Navigation and Accessibility: NMOSD ObstaclesNMOSD came as a real eye-opener for me holistically. I used to see specially-abled people walk by, unaware of the challenges they must face in a zillion ways. Now I... By Kshirja Singh4 min readBookmark for laterReactions0reactionsComments0 comments
Join the Conversation: Physical Therapy for NMOSDPeople with neuromyelitis optica spectrum disorder (NMOSD) often experience a loss of mobility. For some, physical therapy can help them regain mobility and everyday functioning. This can have varying results... By Neuromyelitis-Optica.net Team1 min readBookmark for laterReactions0reactionsComments0 comments
Mastering Stress: A Personal Journey to Mental and Physical WellnessI've learned during my journey with NMO that stress can cause a lot of negative reactions in my body. This can have an impact on mental health, but also result... By Haleemah Sarwar3 min readBookmark for laterReactions0reactionsComments0 comments
The Side Effects of Chronic IllnessIt's been 2 years and 7 months since I was officially diagnosed as AQP4+. And 3 years since I became partially blind. But NMOSD (as I always mention) did not... By Kshirja Singh4 min readBookmark for laterReactions0reactionsComments2 comments
Would A Spinal Tap Give Me Answers?It was the year 2016, months before my official NMOSD diagnosis, and I was limp walking around the hospital hallways to get to my very first neurology appointment. The first... By Aldelly V.3 min readBookmark for laterReactions0reactionsComments0 comments
Misdiagnosed With My Second AttackPicture it: New York, 2007. I was 18 and felt indestructible, or so I thought I was. I had my first NMO attack less than a year prior but shrugged... By Dan Marino2 min readBookmark for laterReactions0reactionsComments0 comments
NMOSD Helped Me Come OutBeing diagnosed with a rare disease, NMOSD, helped me come out. It’s June so that means it’s pride month, and during pride month we take the time to celebrate those... By Avery Allmond3 min readBookmark for laterReactions0reactionsComments0 comments
Blossom's Magic: How My Cat Helped Me Conquer DepressionMany in the NMO community can relate to the feeling of not being understood by others around you. I isolated myself from the world for a while, it’s been a... By Haleemah Sarwar3 min readBookmark for laterReactions0reactionsComments0 comments
Pins and NeedlesIt was 3 months after I was diagnosed with neuromyelitis optica spectrum disorder (NMOSD). I was 95 percent paralyzed from the waist down since October 2021. But thanks to regular... By Kshirja Singh4 min readBookmark for laterReactions0reactionsComments2 comments
Working Out with NMOSDOver the last two years, I’ve started to go to the gym again, and weight lift under the supervision of my doctors. When I was diagnosed with neuromyelitis optica spectrum... By Avery Allmond2 min readBookmark for laterReactions0reactionsComments0 comments
Sex Bias and NMOSD: Clinical Decision-MakingNeuromyelitis optica spectrum disorder (NMOSD) is an autoimmune disease. This means it is caused by the body mistakenly attacking itself. In NMOSD, the immune system attacks the central nervous system... By Editorial Team 2 min readBookmark for laterReactions0reactionsComments0 comments
My First NMO Heat Intolerance ExperienceThe best feeling for me during the summer months was the warmth of the sun wrapped around my skin and getting a golden-brown tan. Oh, how I used to love... By Aldelly V.2 min readBookmark for laterReactions0reactionsComments0 comments
NMO and I Get CheckedI’m exhausted. I finally completed two neuromyelitis optica (NMO) appointments I promised to get done this year. Well, now I have more appointments. The main thing that stresses me about... By Dan Marino2 min readBookmark for laterReactions0reactionsComments0 comments
Feeling Stuck Since My DiagnosisI feel stuck since my neuromyelitis optica (NMO) diagnosis. My life has been nothing but a whirlwind of constant change, lack of room for routine and feeling sedentary. After I... By Avery Allmond2 min readBookmark for laterReactions0reactionsComments0 comments
Community Views: MisdiagnosisBecause neuromyelitis optica spectrum disorder (NMOSD) is a rare disease, misdiagnosis is common. It can take months or years to get an accurate diagnosis. Symptoms often overlap with those of... By Neuromyelitis-Optica.net Team2 min readBookmark for laterReactions0reactionsComments1 comments