Articles

This fall season, we want to express our gratitude for the Neuromyelitis-Optica.net community. When you live with neuromyelitis optica spectrum disorder (NMOSD), it is not always easy to stay comfortable...

When NMOSD entered my life, two things hit me hard. The first was the lack of information, and the second was isolation. The misinformation threw me into panic mode. When my...

As a parent, I always had thoughts and dreams for my children. Like most other parents, I wondered when my babies would sit up, crawl and walk. I thought about...

My official journey with NMOSD began in November 2021 when I was told I am AQP4+. Over 3 years, I dealt with side effects of my medicine, being constantly in...

People with neuromyelitis optica spectrum disorder (NMOSD or NMO) are forced to navigate a variety of challenging symptoms: vision loss, headaches, weakness or paralysis, temperature sensitivity, bowel and bladder issues...

One of my very first symptoms before getting diagnosed with NMO was having problems with my bladder. After experiencing many embarrassing moments with my bladder, getting pelvic floor therapy, and...

I was traveling when a wave of NMOSD spasms hit me. I was standing when this happened, and I politely asked one of the passengers who was sitting in the...

My mum is a carer. She has been a carer for around 4 years. She was also my carer during my NMO attack and recovery. She is a wonderful woman...

Deciding to get a suprapubic catheter for a wheelchair-bound person like myself, with my neurogenic bladder with severe UTIs, was a no-brainer. I had been dealing with a severe and...

Writing has been a huge help over the last few years with NMO. It's been a great way to share my personal experience with a disease that many know nothing...

I was watching an interview and this lady said, “If you have money you can afford to fall sick." And I could not agree more with this statement. I mean...

Living with neuromyelitis optica spectrum disorder (NMOSD) comes with challenges, both physical and emotional. One major challenge of living with a rare disease is finding a "new normal" when it...

I laid on a flatbed in a curled baby fetal position and was told by the anesthesiologist to try and stay still as he prepped my back for a spinal...

I worked so hard last year coming to terms with my bad eye, and trying to make the best out of life with NMO. I continued down a path of...

NMOSD came as a real eye-opener for me holistically. I used to see specially-abled people walk by, unaware of the challenges they must face in a zillion ways. Now I...

People with neuromyelitis optica spectrum disorder (NMOSD) often experience a loss of mobility. For some, physical therapy can help them regain mobility and everyday functioning. This can have varying results...

I've learned during my journey with NMO that stress can cause a lot of negative reactions in my body. This can have an impact on mental health, but also result...

It's been 2 years and 7 months since I was officially diagnosed as AQP4+. And 3 years since I became partially blind. But NMOSD (as I always mention) did not...

It was the year 2016, months before my official NMOSD diagnosis, and I was limp walking around the hospital hallways to get to my very first neurology appointment. The first...

Picture it: New York, 2007. I was 18 and felt indestructible, or so I thought I was. I had my first NMO attack less than a year prior but shrugged...