Mourning My Life Before NMOSDI scroll through this website every day, seeing pain in different types and forms. People will talk about life before their NMOSD...reactions2comments
I'm Not Tired, I'm FatiguedThe world and the people in it seem busier than ever. At a time of "accessibility" and "ease of access", most of...reactions2comments
NMOSD and Stomach ProblemsI felt joy but with a side of misery. If it’s one thing I can’t stand, it's going and finding out what’s...reactions1comment
How To Spend More Time Outdoors With Neuromyelitis OpticaSpending time outdoors with neuromyelitis optica spectrum disorder (NMOSD) can feel like a challenge. When fatigue, pain, balance issues or vision changes...reactionscomments
Assembling Your Best Healthcare TeamOne of the first steps in managing your NMOSD is assembling the best healthcare team for you. Having the support of friends...reactionscomments
A Conversation Guide: What to Do When Your Doctor Is Not Familiar with NMOSDNMOSD is a rare condition. Doctors are not sure of the exact number of people living with NMOSD. According to different sources...reactions1comment
Speaking The Language Of Doctors: Becoming My Own NMOSD Expert“Your labs look normal, and you seem like you are feeling better.” The paper beneath me crinkled as I shifted on the...reactions1comment
My Journey With NMOSD & DepressionIt's okay to have a bad day, and it's okay to have a bad week. You don't need to beat yourself up...reactions7comments
Early NMOSD Symptoms: Community StoriesDiagnosing neuromyelitis optica spectrum disorder (NMOSD) can be very challenging. Symptoms of rare diseases often go overlooked, and many doctors are unfamiliar...reactionscomments
NMOSD Relapse? Or New Symptoms?I have all these new symptoms and I’m worried it may be a NMOSD relapse. I’m hoping it’s not. A few months...reactionscomments
Warning SignsGetting to know your body is very important when living with a chronic illness. Over the years living with NMOSD, I’ve learned...reactionscomments
NMOSD Temperature Intolerance: Why Am I So Hot and ColdNMOSD sucks. Plain and simple. For me, out of all of the problems associated with NMOSD, intolerance to heat and cold has...reactions3comments
My First NMOSD Heat Intolerance ExperienceOh, how I used to love the summer before getting diagnosed with NMOSD. The best feeling for me during the summer months...reactionscomments
My NMOSD Diagnosis Journey After Years of MisdiagnosisMy NMOSD diagnosis journey began in 2007, shortly after I turned 20. I was newly married to my best friend, and we...reactions3comments
The Night Before My InfusionPart of being diagnosed with neuromyelitis optica spectrum disorder (NMOSD), zero-negative, is being limited to what types of treatments there are. I...reactions2comments
The Reality of Infusion Fatigue: Why Infusion Days Are Getting HarderI had my rituximab infusion today. Every time I get an infusion, it’s a struggle. From preparing for the treatment, finding a...reactions2comments
Losing My Independence: How NMOSD Vision Loss Has Changed MeI have always been a mover. Sitting still for too long makes me antsy. Even before I was diagnosed with NMOSD, I...reactions5comments
Embracing Change With Neuromyelitis OpticaI've certainly had my share of unexpected twists and turns since my diagnosis with neuromyelitis optica (NMO). This autoimmune disorder shook up...reactions2comments
My NMO Travel Blog ExperienceI was working in management for a charity organization in 2014 when I had my first Neuromyelitis Optica attack. I haven’t been...reactionscomments
My Lowest Point With NMO, and How a Four-Legged-Friend Saved MeWhen I tell people about my condition, they expect that my lowest point must have been in hospital after my first neuromyelitis...reactionscomments
