Combating MRI AnxietyThat first MRI was taken upon my initial NMOSD attack. What they told me was that I would be in a big...reactionscomments
Feeling Unlovable With NMOSDThe day I got diagnosed with NMOSD I deemed myself unlovable. In my mind my worth began to diminish. With every comment...reactionscomments
The Lasting Impact of Medical TraumaMany people are familiar with the term PTSD, or post-traumatic stress disorder. It is typically linked to experiences of physical and/or emotional...reactions1comment
Navigating Holiday Madness With NMOSDNavigating the holidays can often be difficult for those living with rare diseases like NMOSD. The holiday season can be a joyous...reactionscomments
Feeling Stuck Since My DiagnosisI feel stuck since my neuromyelitis optica (NMO) diagnosis. My life has been nothing but a whirlwind of constant change, lack of...reactionscomments
My Art TheoryPrior to being diagnosed with NMO, I didn’t have many artistic hobbies. Meaning when I tried to do anything in art class...reactions2comments
Working Out with NMOSDOver the last two years, I’ve started to go to the gym again, and weight lift under the supervision of my doctors...reactionscomments
NMOSD Helped Me Come OutBeing diagnosed with a rare disease, NMOSD, helped me come out. It’s June so that means it’s pride month, and during pride...reactionscomments
My Steroid StoryLet’s talk steroids and NMO. When I was diagnosed in 2017, I was at a hospital with doctors that didn’t know much...reactions6comments
Working A Real Job After DiagnosisFor most of my rare disease journey I was a sick and unemployed college dropout with minimal work history. The first three...reactions1comment
I Miss the Joy of RunningBefore neuromyelitis optica spectrum disorder (NMOSD), my whole life I was an athlete. When I got to high school, I decided I...reactions1comment
You Must Understand, Pain is Pain!I wish I could describe the chronic pain from my NMO that I feel every day. I also wish I could explain...reactionscomments
I Feel Alone with a Rare DiseaseLiving with a rare disease like neuromyelitis optica (NMO) has put me in a position to feel alone. When I was first...reactionscomments
Record Your JourneyI record everything. Since the day I was diagnosed with neuromyelitis optica (NMO), I have always felt the need to record and...reactionscomments
Meeting My Service PupThe first year of my diagnosis was rough. I’ve never felt so alone, so unwanted and so broken in my life. The...reactionscomments
NMO, My Spinal Cord Stimulator, and Bowel and Bladder IssuesIn 2017, after I had my first attack, I was left with a spinal cord injury that consists of lesions from my...reactions5comments
Stop Telling Me “You’re So Strong”You’re so strong. I don’t know how you do it. You’re so young to be dealing with this. You’re too young to...reactions1comment
Chronic FatigueThe joys of chronic fatigue, the battle that even caffeine can’t win. When I was first diagnosed I would sleep 16 to...reactions2comments
My Anxiety With NMOSometimes, it’s like my brain is in a revolving door. The thoughts spin fast, sometimes slow or not at all. My brain’s...reactionscomments
What Does Self-Advocacy Mean?You constantly hear the phrase that you need to advocate for yourself with doctors and in appointments you hear how you need...reactionscomments
