My History with NMO so Far Part 1Everyone's NMO journey can be extremely different or be very similar. From what I've seen since joining this amazing site is that my case is different. I feel that so...
Things I Wish I Knew When I Was First DiagnosedBeing diagnosed with neuromyelitis optica can be scary, but staying optimistic is key. I remember feeling shocked, lost, alone, scared, with too many emotions ran through my veins. No one...
My History with NMO so Far Part 1Everyone's NMO journey can be extremely different or be very similar. From what I've seen since joining this amazing site is that my case is different. I feel that so...
Things I Wish I Knew When I Was First DiagnosedBeing diagnosed with neuromyelitis optica can be scary, but staying optimistic is key. I remember feeling shocked, lost, alone, scared, with too many emotions ran through my veins. No one...
My History with NMO so Far Part 1Everyone's NMO journey can be extremely different or be very similar. From what I've seen since joining this amazing site is that my case is different. I feel that so...
Things I Wish I Knew When I Was First DiagnosedBeing diagnosed with neuromyelitis optica can be scary, but staying optimistic is key. I remember feeling shocked, lost, alone, scared, with too many emotions ran through my veins. No one...
Through Sickness and in HealthYou know that part of the wedding ceremony when you hear “in sickness and in health, to love and to cherish, till death do us part”? For those of us...
There is an Elephant in the HouseThroughout this process of living with NMO, mental health has been like the silent elephant in the house for my family. As a mother of two young boys, a wife,...
My New "Normal" with NMOSDI'm moving into the second year of my NMO diagnosis. It may seem like it was a long time ago to everyone around me. I, on the other hand, feel...
The Challenges of Seronegative NMONeuromyelitis optica spectrum disorder (NMO) can have a variety of different symptom types, severities, and patterns. Since each person's experience with NMO is unique, it can be challenging to properly...
Ask the Advocates: How Do You Explain NMO?We asked our advocates how they explain what NMO is to the people in their lives. Here's what they had to say: "When I was first diagnosed, I had a...
Let's Talk NMO Attacks and HospitalizationsWe asked three of our neuromyelitis-optica.net advocates, Mo Jones, Chelsey Tucker, and Aldelly Vasquez to describe their recent experiences with hospitalization due to NMO attacks, also known as relapses. This...
Body Temperature and NMO Symptoms (Uhthoff’s Phenomenon)Increases in body temperature can worsen symptoms of neuromyelitis optica spectrum disorder (NMOSD). This worsening of symptoms with heat is called Uhthoff’s phenomenon. Uhthoff’s phenomenon is commonly used to describe...
NMO in the Eyes of a ChildAs an NMO sufferer, we all too often feel like we are going through this disease alone. We tend to think that since we are the ones that are suffering,...
Hali's Journey with NMOSD Part 1: No Relief, No AnswersI had just turned 19 two weeks earlier and was working as a soft playworker at my new childcare job. On the 9th of August 2021, unexpectedly I developed a...
