How long were you on the steroids? Do you still continue to take them as a maintenance dose? Everything on me swells because of the steroids, unfortunately when I try to come off of them my body hurts so bad it feels like I have a sunburn, but I don't if that makes any sense. It's hard to explain, nmo is a hard disease to live with, it causes so much pain in different areas of your body, it's hard to tell what is causing it.