I have a lot of pain. Not sure its from the NMO but I feel it is. My whole body seems to hurt. I have pain in my legs and my legs keep getting weaker all the time. It's getting to the point where soon im not gonna be able too. My feet hurt bad too. It's just overwhelming and my neurologist i think dont know much about NMO. I ask questions and he dont have e answers. One time he told me I shouldn't have e pain with this but from what I have read it is a very painful disease.