Short of staying inside all winter, does anyone else suffer with heat/cold extreme sensitivy. I was diagnosed in August 2018, and each year it seems to get worse. Someone tell me I’m not going crazy. ❤️
Hi Bossable, you are definitely not going crazy! Sadly this is one of the harsh realities that many of our community members face living with NMO. If you don't mind sharing, where are you located and how is the weather treating you? One of our advocates, Aldelly, speaks about temperature sensitivity in this article that she wrote: https://neuromyelitis-optica.net/living/diagnosis-nmo-wisdom. Are you also sensitive to heat?
-Clay (neuromyelitis-optica.net team member)
Haven't experienced this yet but having car camped some weekends last winter I discovered a few things aside from layering that kept me warm during my adventures.
1. Portable hot water bottle that you plug in for 20+ minutes in order to heat it. Stays warm 6+ hours for me. I used it when I did Plex and it kept me from freezing! Mine is like a muff and I can slip both hands into it. It's cloth, kind of fuzzy on one side. I had one when living in a tiny house and loved it so when it stopped working I found a similar one on Amazon and like it as much although I had to put water in this one before using it. I also found that I had to experiment with the plug in time at first.
2. Fur and down coats. My thick down one is sweaty in stores and forsleeping in but my thin one is just right in stores and sleeping in. The mink I just use as a lap blanket.
3. Cashmere and leather mittens!
4. Hats ofc and real fur headbands if not adverse to real fur. Mine is mink and super warm. All my furs were Inherited from my mother.
5. Hand warmers which come in the shake to activate kind and the rechargeable kind though I never tried the latter. I put them in pockets or in my larger winter boots.
6. Battery operated vests and socks but I haven't tried these.
0 reactions reply