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Disability

Hello everyone!
Are any of you receiving disability? Was it a challenge? I'm in the process now but have been denied a few times. I have a lawyer now but it's frustrating going through the process.

  1. Hi Oliv5823! Thank you for starting this forum. While we wait for other community members to join the conversation and share their experiences, I am going to share a couple of links that you may find helpful regarding disability benefits. Hoping this helps!

    https://neuromyelitis-optica.net/living/family-medical-leave-act

    https://neuromyelitis-optica.net/living/social-security-disability

    Best, Alexis (team member)

    1. They rejected me and I appealed. Now they only gave me it for 12 months and said i’d be fine after that so I don’t need it.

      1. wow😳

    2. Hello!


      It took me about 3 months. I did not need a lawyer. They did send me to a special doctor of their choice which was a pain. They originally wanted me to go someone were far out. Funny part is they knew I had signed up due to my vision. But they found a better one and they were very nice and then a few weeks after that I was approved. But it isn’t always that easy. I think with how bad my eyes are, it made it pretty cut and dry. I have yet to get a request for a follow y which they aay does happen.

      1. I was fortunate to have no trouble claiming disability, I think my background as a CNS helped me when writing and articulating myself on paper.

        Please let me know how you get on, happy to help if I can



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