Feeling Helpless—Seeking Key Contacts & Hope for NMO (From India)

Hello,
This is one of the more difficult posts I’ve ever written. My mother was diagnosed with NMO 15 years ago, back when I was just a kid in India. Her journey has been filled with pain—starting with blurry vision, then losing strength in her body and finally her ability to walk. We tried everything the doctors suggested, including regular rituximab injections, but nothing stopped the progression. She’s now lost her vision completely, and our hearts are truly weighed down by her suffering and the sense of helplessness.There have been countless days where all I could do was sit by her side and watch her cry. The feeling of not being able to take her pain away has been unbearable. Now I’m 25, and as an adult I feel a responsibility—I have to do something for her. She deserves better.I am reaching out to this community from India for guidance:Can you please share any key doctors or specialists for NMO, especially in India, whom we should speak to?Are there patient advocacy groups or organizations in India or internationally that are helpful and responsive?Have there been any recent breakthroughs in NMO treatment or care that could give some hope, especially for people like my mother who have been suffering for so long?We are emotionally and mentally drained, but I am determined to leave no stone unturned for her now.
Any suggestions, contacts for NMO experts, or shared experience would truly mean the world.

Thank you 🙏🏽