Looking back to Look forward
What's one piece of advice you would give your self pre-diagnosis?
What's on piece of advice you would give your future self?
Pre-diagnosis, I would have made it a point to be more vocal about my care. I was very timid to challenge doctors because I mean they are the professionals right? To my future self, I would say keep doing what I'm doing. I'm very vocal if I hear something that I don't agree with, or I don't like. I am more involved in my care. This is advice that I want everyone to take, pre and post-diagnosis. -Monica( Neuromyelitis-optica.net moderator)
Absolutely! We are truly the best most knowledgeable advocates we have. NMOSD has definitely allowed me to find that voice as well! Cheers!
One piece of advice you would give your self pre-diagnosis the would be don't take the signs lightly .. Listen to your body please ... specially if they are reoccurring..even if they the time duration is long...
Piece of advice you would give your future self-- This is actually what happening at the present time.. Please don't go blindly on what doctors says ... they are not aware really 100 % knowledgeable about this disease.
Me residing in India makes it all the more fun, cause doctor have almost no clue what they got themselves into.. I have been given sleeping pill, epilepsy drugs, MS drugs to control my painful spasm..in and out emergencies in every 20 days baclof injections in my spinal cord which worked only 4 days
No body told me about diet ... It took me 10 months to realize that medications is just a part recovery..
Bottom line Diet, Exercise and Mental Health plays a very important part. Experiment with food, and listen to your body it tells you. I know we have mental health issues and its okay .
Most importantly and you need tell the disease through day I am beating on this and trust me you's see miracles happening. And do what you love don't ever leave that ...
Sorry for the long replyNo this is so spot on! How are the doctors in India? Have the been receptive of this?
they are absolutely clueless... not at all receptive of this disease..funniest bit was, that after all the mri's and blood test they were thinking that there diagnose was incorrect and I do have MS.
So my dad always has a good laugh post my doctor's visit and ask, so what did you educate your doctor this time..
I might be that one of case in India who has it ..
As I mentioned it took me 10 months to be where Iam. They said my transverse myelitis would never go away ..the liaisons tiny tumors will always be there n worst I won't be able to leave my assistive device..
My latest Mri scan shows that my
They are clueless n completely non receptive..
But honestly
But a big thanks to group it has supported me so immensely.. n showed me the path cause before becoming a part of NMSD group I thought Il die within 3 months .. these morons (pardon my language) had sdares me so much, specially during paralysis phase..A BIG THANK YOU TO ALL OF YOU ALL THERE.. N I MEAN IT
