Tips with dealing with insurance?Being a seronegative NMO patient I often get denied for treatments because it doesn't follow FDA guidelines for treatment due to aquaporin 4 neg test result. Feels like we are...Reactions 0 reactions Comments2 repliesTips & AdviceTreatment & MedicationWork & Employment
FeaturedLooking back to Look forwardWhat's one piece of advice you would give your self pre-diagnosis? What's on piece of advice you would give your future self...Reactions 0 reactions Comments0 repliesTips & Advice
Advocating for yourselfThe road to an NMO diagnosis can be a long and frustrating one. So many people are dismissed by medical professionals, only to be told that their symptoms are all...Reactions 0 reactions Comments2 repliesAwarenessTips & Advice
FeaturedShare a piece of advice or a quote that's helped you 💚We know that NMO can be a rollercoaster ride. What is an inspirational quote OR word of advice that has helped you navigate through rough times? You never know who...Reactions 0 reactions Comments21 repliesTips & Advice
FeaturedDo you ever feel the tingles?Something my doctors haven’t truly figured out and curious if this is an issue around the community. When I start to do chores or a work out I have an...Reactions 0 reactions Comments7 repliesCopingSide EffectsParalysis & MobilitySymptomsTips & Advice
NMO Chronic Pain How are you coping with NMO pain? Any tricks you may want to share to alleviate the symptoms...Reactions 0 reactions Comments8 repliesCopingTips & Advice
FeaturedTo the parents- how did you explain NMO to your children?As someone with no children, i'm wondering how all the parents here explained NMO to your children. We know NMO is hard to explain to doctors. So how have you...Reactions 0 reactions Comments0 repliesTips & AdviceFriends & FamilyCaregiving
FeaturedPLEX / Infusion AdviceHi! Do you have any advice for anyone who is scheduled to receive their first infusion treatment...Reactions 0 reactions Comments7 repliesPlasma ExchangeTreatment & MedicationTips & Advice
