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Read conversations, start a discussion, and connect with others about neuromyelitis optica.

Active 4 days ago

Have you experienced heat intolerance?

Some people who have experienced their first attack with NMOSD report experiencing heat intolerance. Have you felt heat intolerance?...

Active 4 days ago

Have you experienced neuropathic itch?

Neuropathic itch is a fairly common symptom of people impacted by neurological health conditions, like NMOSD. Is this something you or a loved one has experienced? If so, what helped?...

Intimacy with NMOSD

How has NMOSD impacted your ability to be intimate? Share here and help others:...

Art with NMOSD

Many people diagnosed with NMOSD decide to start painting or doing other crafts. There are multiple reasons for this, we would like to hear from you. Do you make art?...

How do you stay active with NMOSD?

NMOSD can impact a person's ability to stay active; How do you stay active?...

Just diagnosed at 70 years old. Is anyone like me out there?

I was just diagnosed yesterday. I really didn’t think I had it so it was a shock. I read most people get it in their thirties and forties. My symptoms...

Advocating for yourself

The road to an NMO diagnosis can be a long and frustrating one. So many people are dismissed by medical professionals, only to be told that their symptoms are all...

What about caregiving?

Caregiving can be challenging, esspecially with a condition as difficult and rare as NMOSD. What has your experience been like caregiving for NMOSD? What are your needs, as a caregiver?...

Triggers for worsening symptoms?

What triggers have you noticed for worsening or new symptoms? Did any occur after injury, or Covid, or prior to next 6 month infusion?...

NMO

I’ve recently been diagnosed with NMO. I’ve been paying critical illness insurance for years. MS is covered but my claim has been rejected as NMO is not listed. Can anyone...

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