Treatments
Hey everyone
I am newly diagnosed and just don’t know what to expect . I had a few episodes of optic neuritis . But fear the worst is yet to come . I also have myasthenia Gravis so I am taking cellcept . I’m told that cellcept also can treat the NMO , but I’m curious what treatments everyone else is taking . I’m leaning towards enspyrng as I do not want to go through the hassle of infusions .
Hi Hun! There are a lot of different options. I get a rituximab infusion every six weeks. Some people take a pill everyday and some get injections every few weeks. I wish you all the best in finding the right treatment ❤️
Hi! I used to take rituximab every 6 mos, but after a couple years we discovered it had a bad reaction on my body. I now take Soliris, but it is an every 2 week infusion. The Infusion Center is not far for me so it works & my body is much happier. Everyone is different though, so check with your neurologist for the best thing for YOU! 
Hi! I was diagnosed almost 15 years ago and was on rituxan for 12 and a half years , I’ve been on Enspryng for almost 3 years and have been very satisfied with it. Have you been on the MG site as well? My girlfriend Deborah Vick is an advocate for that site and is on Rituxan.
Please let me know if I can answer any other questions you may have.
@Sandra Addathank you ! At the moment I am waiting for my enspryng approval and been trying to the dr. Office to send the authorization to my insurance. But thanks for the info 😀
You’re welcome pls let us know how it works out
