The Great Big World and How I Navigate ItAfter my last eye attack from NMO and because of my vision loss, I made an oath to myself that I wanted...reactions2comments
Steroids Saved My Life but Damaged My JointsI turned 39 on February 8th, 2023. I celebrated my birthday in the hospital, recovering from my 2nd hip replacement. In 2012...reactions3comments
It Was A Really Good DayGood ol' Facebook sure knows how to bring the memories back, good and bad. The little feature on there every day, if...reactionscomments
Hali's Journey with NMOSD Part 2: Feeling Afraid, Losing HopeEditor's note: This article is part of a multi-part series. To read part one, please follow this link. Mentally, I was exhausted...reactionscomments
Hali's Journey with NMOSD Part 1: No Relief, No AnswersI had just turned 19 two weeks earlier and was working as a soft playworker at my new childcare job. On the...reactionscomments
Steroids and What They Do To MeAs NMO warriors, we need medications when we have flare ups or attacks or whatever you want to call them. These medications...reactionscomments
My NMO Misdiagnosis Journey, Part TwoRead the first part of Shekita's NMO misdiagnosis journey here. ER visits can be traumatizing, especially if you are not getting results...reactionscomments
My Mental Health and Journey with NMOFrom the beginning of my NMO diagnosis until now, I’ve recorded every major portion of my rare disease health journey - from...reactions3comments
How NMO Changed My Perspective on Mental HealthPrior to my NMO diagnosis, I never took my mental health seriously. I was always told by doctors to basically "get over...reactions2comments
The Voice Saying, "It’s Not Real"Being diagnosed with NMO, I’m sure we've all felt and heard from our peers that what was happening to us wasn’t real...reactions2comments
Nearly 2 Years Diagnosed with NMOFirst, I had problems with my right arm. I thought I had injured my shoulder worse from a little accident two months...reactions1comment
NMO In The Eyes of A 9-Year-Old: Before My DiagnosisMy daughter was 2.5 years old when we left Australia. She, her daddy, and I returned to our hometown in India in...reactionscomments
Anemic NMOFor months I was experiencing an increase in my NMO symptoms. While I communicated this to my neurologist, I had no new...reactions3comments
1 Whole Year On Rituximab: ReflectingIt has been a whole year since I’ve been on rituximab as my NMO preventative treatment. I’m so grateful for the opportunity...reactions1comment
The Black Rare Disease ExperienceI read an article the other day, and it told a detailed story about being Black and having a rare disease. That’s...reactions2comments
Recovery Isn't a Race: It's a MarathonWhen I first started outpatient physical therapy in 2014 with Sarah, my physical therapist, I could not get out of my bed...reactions3comments
My Rare Disease Nonprofit - How I Started the Couch Pennies FoundationI watched the YouTube makeup artist Tallia through her entire journey from the minute she posted her first video to the very...reactions1comment
How my Suffering from NMO Impacted my DaughterI had just gotten out of the hospital. I informed my daughter that 2nd dose of the Corona vaccine had triggered the...reactions5comments
My diagnosisI woke up July 14 of 2020 and thought I was just tired legs were very weak went on like this until...reactions4comments
Goodbye and Hello AgainAfter being diagnosed with NMO, change has been very scary to me. It took more of my vision with every attack. With...reactions3comments
