A Dark NMO Future Created by My MindThe future: sometimes things get better and sometimes they get worse. We have our ups and downs and everything in between. One of my biggest problems is that I worry... By Dan Marino3 min readBookmark for laterReactions 0 reactions Comments0 comments
Immunosuppressants: What's the Point?There is a standard plan of care when you are diagnosed with NMO. It's very straightforward. Get diagnosed, get on steroids until the attack is under control, and then proceed... By Shekita Green3 min readBookmark for laterReactions 0 reactions Comments0 comments
Post-Infusion Nerve Pain and Back on SteroidsI had my first infusion in January. I was so happy to start a preventative treatment so I could finally get off steroids. The steroids had horrible side effects including... By Haleemah Sarwar3 min readBookmark for laterReactions 0 reactions Comments9 comments
Still Experiencing Spasms: My Baclofen Pump Surgery DayDeciding to place a baclofen pump in my body wasn’t an easy decision, but it was a necessary one. Due to the severe spasms I was experiencing, I had run... By Aldelly V.3 min readBookmark for laterReactions 0 reactions Comments2 comments
My storyHello, I was diagnosed in 2016 and I'm from Slovenia 🇸🇮. It noticed my right hand was numb I began to have tingling all over my body and then the... By Seyla1 min readBookmark for laterReactions 0 reactions Comments3 comments
How I Found a Positive in My NMO Journey and Forgave My FatherYou must be thinking what good could come from getting a rare disease? Well, shockingly, one positive thing has happened to me after getting the dreaded news that I have... By Dan Marino4 min readBookmark for laterReactions 0 reactions Comments4 comments
My Experience with RituximabI received a letter in the mail stating I was approved for Rituximab for NMO and the date I was to receive my first dose. It was in January, and... By Haleemah Sarwar2 min readBookmark for laterReactions 0 reactions Comments6 comments
NMO and the Impact on Our CaregiversNMOSD affects everyone who lives with the disease in different and often awful ways. Where do I start? You lose a version of your past self with each attack, leaving... By Shekita Green3 min readBookmark for laterReactions 0 reactions Comments0 comments
The NMO Symptom I Experience Most: SpasticitySpasticity for me has been a primary indicator that something is wrong with my body. When I was diagnosed with NMO back in 2016, it was no surprise to my... By Aldelly V.3 min readBookmark for laterReactions 0 reactions Comments8 comments
Neuromyelitis-Optica.net Giveaway Terms and ConditionsThese Official Rules apply to any giveaway (or "Promotion") published on NEUROMYELITIS-OPTICA.NET, a Health Union ("Health Union" or "We") owned and operated website. For conflicts between the Promotional giveaway article... By Editorial Team 5 min readBookmark for laterReactions 0 reactions Comments0 comments
Steroids and What They Do To MeAs NMO warriors, we need medications when we have flare ups or attacks or whatever you want to call them. These medications are used to try and help fight these... By Dan Marino3 min readBookmark for laterReactions 0 reactions Comments0 comments
My diagnosisI woke up July 14 of 2020 and thought I was just tired legs were very weak went on like this until July 18 started experiencing numbness, and tingling, pins... By Darliza11 min readBookmark for laterReactions 0 reactions Comments4 comments
A Letter to MyselfThings will drastically change in the following years. You will go through many experiences you never imagined you would. These experiences will shape the type of person you are when... By Haleemah Sarwar3 min readBookmark for laterReactions 0 reactions Comments0 comments
I'm Not Tired, I'm FatiguedIt's 2022. The world and the people in it seem busier than ever. At a time of "accessibility" and "ease of access", most of us are weighed down with a... By Shekita Green3 min readBookmark for laterReactions 0 reactions Comments2 comments
Hali's Journey with NMOSD Part 4: A Proper DiagnosisEditor's note: This article is part of a multi-part series. To read part one, click here, to read part two, click here, and to read part three, click here. I... By Haleemah Sarwar3 min readBookmark for laterReactions 0 reactions Comments0 comments
AcceptanceLooking back on the day I was diagnosed with NMO, I realize it was all a whirlwind of emotions and pain, both physically and mentally. When you’re diagnosed with any... By Avery Allmond3 min readBookmark for laterReactions 0 reactions Comments0 comments
Hali's Journey with NMOSD Part 3Editor's note: This article is part of a multi-part series. To read part one, click here, and to read part two, click here. The first week in the hospital was... By Haleemah Sarwar3 min readBookmark for laterReactions 0 reactions Comments2 comments
Take the Health and Media Habits Survey!The Media Habits Survey is now closed. Thank you for your interest! Managing a chronic condition is not easy and can be physically and mentally exhausting. What types of media... By Editorial Team 1 min readBookmark for laterReactions 0 reactions Comments0 comments
Our Advocate Created a Handy NMO Patient Information FormFrom my experience, hospitalizations and NMO go hand-in-hand. My relapses never seem to happen during “normal business hours," so my neurologist often advises me to seek medical treatment through the... By Chelsey Tucker2 min readBookmark for laterReactions 0 reactions Comments1 comments
Bladder Issues, Ladies?One of the most common symptoms we, women living with NMO, suffer from is recurrent UTIs (unitary tract infections) due to many reasons. Whether an overactive bladder, bladder retention, or... By Aldelly V.3 min readBookmark for laterReactions 0 reactions Comments2 comments