Living

Here we go again. The buildup of emotions is eating me alive. Perhaps it's the season for it, I don't know. What I do know is, I often question how much...

I have tried to cope with living with a long-term illness in many different ways since my diagnosis of NMOSD. When I was first diagnosed, I had no idea what...

Growing up an athlete, I was always the active one of the bunch. Always wanting to go, go, go, and still having energy. Now, I am the friend that has...

Emotions were high and emotions were low. I felt joy but with a side of misery. If it’s one thing I can’t stand, it's going and finding out what’s wrong...

After going through surgery to install a Baclofen pump and all its complications in the middle of the pandemic, it was time for recovery. As a first-time user of the...

NMOSD sucks. Plain and simple, but out of all of the problems associated with NMO, intolerance to hot and cold has to be the worst. For example, I expect my legs...

I recently went to the P&G Music Festival in Cincinnati. That same weekend was the Cincy Soul taste of Cincinnati. These 2 events bring out crowds of over 100,000 people...

Prednisolone is a steroid medication used to reduce inflammation. It is used for many inflammatory conditions, just as it is used for those with NMOSD. I should be grateful that...

Since being diagnosed with NMOSD, I feel like a completely different person. My outlook on life has changed. Health wasn't something I took seriously. My focus on life was just...

What if... My brain never shuts up. I can’t tell if it's a blessing or a curse. It races with thoughts of the past, present, and future. Some days it...

Headaches are one of the most commonly reported symptoms from people with NMO, especially before they have an attack. I am no exception to that fact. I’ve had headaches for...

Spasticity was one of the first symptoms I experienced before I was diagnosed with NMO. After being diagnosed time passed my spasticity worsen and started taking over not only my...

This will be the final part of this journey so far. A new treatment, fresh starts, a new purpose, and a glimmer of hope. New things started to happen to...

Often times when we are diagnosed with a rare disease, we have first been misdiagnosed with multiple other diseases. There are times when patients are put on so many different...

As if living with NMOSD isn't challenging enough, there is always that one thing that's worthy of a full conversation. You know that one thing that's so bothersome that you...

To eat or not to eat because of NMO lethargy should NEVER be a question. Whether one feels too exhausted to think of something to eat or too tired to...

As we all know, when we're on treatment that suppresses our immune system, we will be at risk of catching infections more frequently. Because of this, the month of June...

Some people call me a "crazy old cat lady." I think I just love animals but yeah, I have the mentality of a "crazy cat lady." If I could, I...

Did you know that you can become traumatized by a medical event or related situation and get PTSD? Yea, me either, until it happened to me. As many of you...

I know I'm not alone when I say that I feel like I get stereotyped for my disabilities. I think because I'm young(ish) and because, for the most part, my...