Celebrating Holidays with NMOThis time of year, when everything is joyful and jolly, it seems like NMO always has an unpleasant surprise for me. The...reactions1comment
My Experiences with Problematic DoctorsIt has been over two years that I've lived since finding out I have NMO. I've endured my fair share of experiences...reactions2comments
One Day, One Full Rituximab InfusionI had my first complete rituximab infusion for NMO on the 26th of July, the day before my 20th birthday. Finally, after...reactionscomments
My 4 NMO TriggersWe all have things that may trigger our NMO symptoms in our day-to-day lives. Triggers are different for everyone. As for me...reactions3comments
Traveling with a Chronic ConditionI used to absolutely love traveling, especially before I was diagnosed. It wasn’t as exhausting as it is now, having a chronic...reactions3comments
Relationships and Building Back My ConfidenceBefore life with NMO, I was an outgoing people person. I had many friends all around and a serious relationship. As time...reactions1comment
Won't Give Up Without a FightPain in and pain out, And then there was a final blackout. Open my eyes to ICU. Doctors in and doctors out...reactions2comments
My Life Is Finally Falling Into PlaceLast year, it felt like my life was falling apart, and nothing would feel the same ever again. When I found out...reactions8comments
Staying Positive During Difficult TimesStaying positive when things seem like they are going wrong is difficult, and I feel that we can get into that "victim"...reactionscomments
What Is the Social Health Network Community?Like our other Health Union condition communities, the Social Health Network brings people together to drive unique and impactful conversations about health...reactionscomments
What to Know About NMOI remember when I was first diagnosed with NMO after I got over the initial devastation, the first thing I did was...reactionscomments
My NMO AnniversaryA year filled with constant ups and downs. Learning to live life as someone with a long-term illness wasn’t straightforward. When I...reactions4comments
AQP4 Negative and NMO IgG is FrustratingBeing an AQP4-negative NMO IgG patient can be so frustrating. I feel like an orphan patient with limited access to treatments because...reactionscomments
A Kidney Infection After COVIDI was sent home the same day. I was relieved as I hate staying in hospitals. I was told by an NMO...reactionscomments
Disclosing Your DiseaseAs rare disease patients, we have to become comfortable with explaining NMOSD. A lot of times, we are the ones telling the...reactionscomments
Neuromyelitis Optica and the Neuropathic ItchOne of the most troublesome symptoms of my NMOSD is neuropathic pruritis or neuropathic itch. It occurs due to damage to neurons...reactions11comments
NMOSD, Me and Neuromyelitis-optica.net (My Savior) 9/11/21 - 9/11/22On 9/11/2021 I was admitted to ICU with 95% of my body going numb waist down. My initial diagnosis was Transverse Myelitis...reactionscomments
Graduating College With NMOI am a legal student. I studied Legal Services in college. I graduated in year 1 of Legal Services with an A...reactions4comments
Pain Medications: A Process Of Trial And ErrorThe first pain medication I took for my nerve pain, even before my diagnosis, was Duloxetine. It helped calm down the burning...reactionscomments
Eating Well With NMOSDHaving nutritious snacks handy can help when you reach that exhaustion point with NMOSD, where cooking seems impossible. Fruit—grapes, apple slices, sections...reactions1comment