Living

It has been over two years that I've lived since finding out I have NMO. I've endured my fair share of experiences with problematic doctors. I'm sure we've all been...

I had my first complete rituximab infusion for NMO on the 26th of July, the day before my 20th birthday. Finally, after having to postpone it twice due to catching...

We all have things that may trigger our NMO symptoms in our day-to-day lives. Triggers are different for everyone. As for me, I have many triggers which I never expected...

I used to absolutely love traveling, especially before I was diagnosed. It wasn’t as exhausting as it is now, having a chronic condition like NMO. There are many things I...

Before life with NMO, I was an outgoing people person. I had many friends all around and a serious relationship. As time went on and NMO showed its true colors...

Last year, it felt like my life was falling apart, and nothing would feel the same ever again. When I found out about my diagnosis, I wanted the ground to...

Staying positive when things seem like they are going wrong is difficult, and I feel that we can get into that "victim" and "poor me" mindset instead of choosing a...

Like our other Health Union condition communities, the Social Health Network brings people together to drive unique and impactful conversations about health. It also aims to expand opportunities for health...

I remember when I was first diagnosed with NMO after I got over the initial devastation, the first thing I did was look up what it was and its symptoms...

A year filled with constant ups and downs. Learning to live life as someone with a long-term illness wasn’t straightforward. When I first received the news that I had Neuromyelitis...

Being an AQP4-negative NMO IgG patient can be so frustrating. I feel like an orphan patient with limited access to treatments because of my blood test results of negative AQP4...

I was sent home the same day. I was relieved as I hate staying in hospitals. I was told by an NMO specialist I would be liable for the COVID-19...

As rare disease patients, we have to become comfortable with explaining NMOSD. A lot of times, we are the ones telling the doctors about the disease. We constantly need to...

One of the most troublesome symptoms of my NMOSD is neuropathic pruritis or neuropathic itch. It occurs due to damage to neurons of the peripheral or central nervous system. I...

I am a legal student. I studied Legal Services in college. I graduated in year 1 of Legal Services with an A, but this was before my health went downhill...

The first pain medication I took for my nerve pain, even before my diagnosis, was Duloxetine. It helped calm down the burning pain I had, but at the time, I...

Having nutritious snacks handy can help when you reach that exhaustion point where cooking seems impossible. Fruit—grapes, apple slices, sections of orange, berries—in the refrigerator, washed and ready to eat...

Here we go again. The buildup of emotions is eating me alive. Perhaps it's the season for it, I don't know. What I do know is, I often question how much...