Traveling With NMO: TipsFor those who have live with NMOSD for awhile, or for those who have been recently diagnosed, it can be hard to adjust to traveling long distances. Along with long... By Haleemah Sarwar3 min readBookmark for laterReactions 0 reactions Comments0 comments
OMG! They’re Just Like Me!Like many, I felt very alone when I received my NMO diagnosis. It was a disease that I had never heard of, so surely no one else could be living... By Monica Jones4 min readBookmark for laterReactions 0 reactions Comments0 comments
Visiting the NMO ClinicThe hospital in my city does not have a NMO specialist, NMO nurses or an NMO team. My neurologist is an MS specialist but is still very supportive when it... By Haleemah Sarwar2 min readBookmark for laterReactions 0 reactions Comments0 comments
Let's Have a Drink!I come from a culture where alcohol is very present in everything we do. If there is a birthday, baby shower or any type of gathering, alcohol is almost always... By Aldelly V.3 min readBookmark for laterReactions 0 reactions Comments0 comments
Wait! The Internet Said I’m Dying!Do you ever wonder if that pain in your side is part of your condition? Or that itch? Or the migraine? How about those restless nights? Or that random fever?... By Dan Marino3 min readBookmark for laterReactions 0 reactions Comments0 comments
Recovery Isn't a Race: It's a MarathonWhen I first started outpatient physical therapy in 2014 with Sarah, my physical therapist, I could not get out of my bed by myself let alone stand up. Over the... By Teaira-Daniels4 min readBookmark for laterReactions 0 reactions Comments0 comments
Dealing With Brain Fog as a StudentBeing a student alone is very difficult. On top of that, having a chronic illness and extreme brain fog makes things even more complicated. From what I can remember, even... By Haleemah Sarwar2 min readBookmark for laterReactions 0 reactions Comments4 comments
Let’s Talk Doctors and Advocating for YourselfHow many times have you gone to the doctor with a complaint, only to be told there is nothing wrong? I’m sure that it has happened to us all at... By Monica Jones3 min readBookmark for laterReactions 0 reactions Comments0 comments
The 2024 Social Health Awards ProgramWe are very excited to announce the launch of the 2024 Social Health Awards program! The Social Health Awards is an awards program recognizing Health Leaders who make a difference... By Editorial Team 1 min readBookmark for laterReactions 0 reactions Comments0 comments
Special Assistance When Traveling“The Air Carrier Access Act (ACAA) is a law that makes it illegal for airlines to discriminate against passengers because of their disability. The Department of Transportation is responsible for... By Aldelly V.4 min readBookmark for laterReactions 0 reactions Comments2 comments
Let's Talk AbleismIt's 2022 and somehow we're still having conversations about ableism. With all the technology and resources available today, I can't help but to feel like this conversation should be a... By Shekita Green3 min readBookmark for laterReactions 0 reactions Comments0 comments
My First Trip After My NMO AttackI'd spent 7 months recovering from my first attack. It’s been two months since I've been off steroids and I had finally gained the tiniest bit of confidence back. I... By Haleemah Sarwar3 min readBookmark for laterReactions 0 reactions Comments4 comments
Nursing Homes, Rehab Centers, and an Accurate DiagnosisAfter spending three months in the hospital, I was discharged and sent to a nursing home. Thank God I was only there for a week, because I hated that place... By Teaira-Daniels4 min readBookmark for laterReactions 0 reactions Comments0 comments
My First Ramadan with NMOSD: My Experience with FastingRamadan is the ninth month of the Islamic year and is considered very special within the Muslim community. During this month, Muslims fast from dawn to dusk, which is known... By Haleemah Sarwar3 min readBookmark for laterReactions 0 reactions Comments0 comments
NMO, My Spinal Cord Stimulator, and Bowel and Bladder IssuesIn 2017, after I had my first attack, I was left with a spinal cord injury that consists of lesions from my brainstem to my t12 spine, which is about... By Avery Allmond2 min readBookmark for laterReactions 0 reactions Comments5 comments
My Long Journey to a Diagnosis: Part 1I have grown to love sharing my journey. At first becoming paralyzed was a hard pill to swallow. I could not believe that my independence was taken away from me... By Teaira-Daniels4 min readBookmark for laterReactions 0 reactions Comments0 comments
Post-Surgery: Bye-Bye Spasms?Editor's note: In a previous article, Aldelly discussed having surgery to install a baclofen pump to help treat spasms. To read that article, please click here. On November 2, 2020... By Aldelly V.5 min readBookmark for laterReactions 0 reactions Comments0 comments
A Dark NMO Future Created by My MindThe future: sometimes things get better and sometimes they get worse. We have our ups and downs and everything in between. One of my biggest problems is that I worry... By Dan Marino3 min readBookmark for laterReactions 0 reactions Comments0 comments
Immunosuppressants: What's the Point?There is a standard plan of care when you are diagnosed with NMO. It's very straightforward. Get diagnosed, get on steroids until the attack is under control, and then proceed... By Shekita Green3 min readBookmark for laterReactions 0 reactions Comments0 comments
Post-Infusion Nerve Pain and Back on SteroidsI had my first infusion in January. I was so happy to start a preventative treatment so I could finally get off steroids. The steroids had horrible side effects including... By Haleemah Sarwar3 min readBookmark for laterReactions 0 reactions Comments9 comments