Shining a Light on Your NMOSD ExperienceWe want to learn more about our community members living with neuromyelitis optica spectrum disorder (NMOSD). Each NMOSD journey has common threads...reactionscomments
NMO and Covid…AgainThe day I heard Covid was poking its head out again in the news, I got it. My friend went back to...reactionscomments
Stop Telling Me “You’re So Strong”You’re so strong. I don’t know how you do it. You’re so young to be dealing with this. You’re too young to...reactions1comment
Vacationing In A WheelchairIt was 10 years in September since I became paralyzed due to an NMOSD (neuromyelitis optica spectrum disorder) flare up. I finally...reactionscomments
Vision Changes and My Mental HealthWell, I made it. It was a long stressful summer of illness all around. From depression to a car of screaming cats...reactions1comment
Language BarrierNavigating the healthcare system is hard enough for a regular English-speaking person. But imagine being diagnosed with a rare condition like NMOSD...reactionscomments
Finding Balance: Navigating Toxic Positivity and Neuromyelitis OpticaLife is a beautiful journey filled with ups and downs. It's natural for us to experience a wide range of emotions as...reactionscomments
Chronic FatigueThe joys of chronic fatigue, the battle that even caffeine can’t win. When I was first diagnosed I would sleep 16 to...reactions2comments
Letting Go of PerfectionismHow does one let go of the idea of perfectionism? With today's world and so much social media, how is it not...reactionscomments
Handicap Accessible MinivanOnce I passed my drivers license test to drive with hand controls, I was super excited to start shopping for a vehicle...reactionscomments
NMO Warriors Inspire My Daughter and MeMy daughter and I are truly indebted to this website, and to our community family members, the warriors and there are heartfelt...reactionscomments
The Exhaustion of An Invisible IllnessLiving with neuromyelitis optica (NMO) for the last 15 years has definitely had its challenges, however, trying to explain how I feel...reactionscomments
Being Okay With Saying NoI've learned to protect my peace by doing what’s best for me despite how someone else may feel, and not feel bad...reactionscomments
NMO Stigma: "She’s Faking Her Illness For Attention"Recently, I found out from one of my friends that someone from my school had said that I was faking my illness...reactions3comments
Being Present with Neuromyelitis OpticaSince my Neuromyelitis Optica (NMO) diagnosis in 2014, I find it hard to strike the right balance between enjoying a bit of...reactionscomments
What NMO Has Changed In My LifeNMO has changed me in many ways. From odd ways of saving me to taking away things I love. Some things I...reactionscomments
My Anxiety With NMOSometimes, it’s like my brain is in a revolving door. The thoughts spin fast, sometimes slow or not at all. My brain’s...reactionscomments
My journey with NMOAround October 2018, I had this terrible headache for a week. Nothing would help it, two doctor visits and nothing. Eventually, it...reactions4comments
What Does Self-Advocacy Mean?You constantly hear the phrase that you need to advocate for yourself with doctors and in appointments you hear how you need...reactionscomments
I Have Mental Health Issues and It Is OKBy definition, mental health is taking care of psychological, emotional, and social well-being but for me (mine slightly injured mental health) was...reactionscomments
