Articles

Headaches are one of the most commonly reported symptoms from people with NMO, especially before they have an attack. I am no exception to that fact. I’ve had headaches for...

Spasticity was one of the first symptoms I experienced before I was diagnosed with NMO. After being diagnosed time passed my spasticity worsen and started taking over not only my...

This will be the final part of this journey so far. A new treatment, fresh starts, a new purpose, and a glimmer of hope. New things started to happen to...

Often times when we are diagnosed with a rare disease, we have first been misdiagnosed with multiple other diseases. There are times when patients are put on so many different...

In this video, I share what is in my infusion bag.  ...

As if living with NMOSD isn't challenging enough, there is always that one thing that's worthy of a full conversation. You know that one thing that's so bothersome that you...

To eat or not to eat because of NMO lethargy should NEVER be a question. Whether one feels too exhausted to think of something to eat or too tired to...

As we all know, when we're on treatment that suppresses our immune system, we will be at risk of catching infections more frequently. Because of this, the month of June...

As we know, NMO is an exceedingly rare disease. When you meet someone who also lives with NMO, it's only natural to want to know everything about them and how...

The symptoms that we now recognize as NMO were first described more than 100 years ago. However, without the right technology and testing, it was hard to separate NMO from...

Some people call me a "crazy old cat lady." I think I just love animals but yeah, I have the mentality of a "crazy cat lady." If I could, I...

Did you know that you can become traumatized by a medical event or related situation and get PTSD? Yea, me either, until it happened to me. As many of you...

You never know what you might need to have on you to make life with NMO all the easier. Mobility devices? Incontinence products? Medication? Chocolate? Let's take a trip into...

As we know, NMO is an exceedingly rare disease. When you meet someone who also lives with NMO, it's only natural to want to know everything about them and how...

I know I'm not alone when I say that I feel like I get stereotyped for my disabilities. I think because I'm young(ish) and because, for the most part, my...

When friends learn I have an autoimmune disease they often ask when and how I was diagnosed. My response: “Which time?” Getting a diagnosis for any autoimmune disease is hard...

Being diagnosed with NMO changes your life in so many ways, including how you live day-to-day. Something as simple as doing dishes can go from a quick chore to a...

I took a shower today! I took a shower today! Duh… Few people understand why taking a shower could be an activity worth reporting since it’s their daily habit, but...

We collected information about the experiences of 61 people living with NMO in the 1st Annual NMO In America survey. NMO is an exceedingly rare inflammatory neurological condition. Those who...

Oftentimes when going through a difficult transition, like adjusting to life with NMO, we tend to forget about ourselves. We forget that we, the diagnosed people, are the people living...