1 Whole Year On Rituximab: ReflectingIt has been a whole year since I’ve been on rituximab as my NMO preventative treatment. I’m so grateful for the opportunity...reactions1comment
The Black Rare Disease ExperienceI read an article the other day, and it told a detailed story about being Black and having a rare disease. That’s...reactions2comments
Frequently Asked Questions (FAQs) About NMONeuromyelitis optica spectrum disorder (NMO) is a rare inflammatory disease of the central nervous system (eye nerves, spinal cord, and brain). It...reactionscomments
Recovery Isn't a Race: It's a MarathonWhen I first started outpatient physical therapy in 2014 with Sarah, my physical therapist, I could not get out of my bed...reactions3comments
My Rare Disease Nonprofit - How I Started the Couch Pennies FoundationI watched the YouTube makeup artist Tallia through her entire journey from the minute she posted her first video to the very...reactions1comment
How my Suffering from NMO Impacted my DaughterI had just gotten out of the hospital. I informed my daughter that 2nd dose of the Corona vaccine had triggered the...reactions5comments
Goodbye and Hello AgainAfter being diagnosed with NMO, change has been very scary to me. It took more of my vision with every attack. With...reactions3comments
[Closed] "NMO Warrior" YETI® Mug Giveaway!The "NMO Warrior" YETI® Mug Giveaway is now closed. Thank you for your interest! Happy NMO Awareness Month! This year, we are...reactions1comment
Bipolar 2, Exposure Therapy and NMOSomething never felt quite right when I was diagnosed with NMO at 19. This was before I was diagnosed with bipolar 2...reactionscomments
A Few Weeks Before My Next InfusionWith all honesty, the day I was told I would receive the rituximab infusion every six months, I thought it would fix...reactions8comments
Surgery Number ThreeOn January 12, 2022, I walked into the surgery floor to start the trial process of getting a stimulator placed for my...reactions2comments
Dealing With Brain Fog as a StudentBeing a student alone is very difficult. On top of that, having a chronic illness and extreme brain fog makes things even...reactions4comments
A Letter to MyselfThings will drastically change in the following years. You will go through many experiences you never imagined you would. These experiences will...reactionscomments
NMO and PregnancyPregnancy strains the body. When you are pregnant, your immune system becomes less reactive so your baby can grow safely. For this...reactionscomments
Are Certain Types of Cancer Related to NMO?In many cases, neuromyelitis optica spectrum disorder (NMOSD or NMO) occurs alongside other health issues. For example, someone with NMO may also...reactionscomments
Bladder Issues, Ladies?One of the most common symptoms we, women living with NMO, suffer from is recurrent UTIs (unitary tract infections) due to many...reactions2comments
Where Are All The Accessible Housing Options?For the past nine years, I've lived using a wheelchair. I've realized that there are few housing options for people with a...reactions2comments
Learning to Deal With My GriefFor the longest time, I've had major issues dealing with the grief of being diagnosed with NMO. I've dealt with a lot...reactions4comments
Going to School With NMO: Taking Closed-Book, Memory Based ExamsIt has been almost three years since I’ve had any real exams in school. For the past two years, due to Covid...reactionscomments
Postpartum Before NMOPostpartum is a roller coaster of emotions for most mothers after giving birth. Some can manage on their own. Others need a...reactionscomments
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