Articles

After spending three months in the hospital, I was discharged and sent to a nursing home. Thank God I was only there for a week, because I hated that place...

Ramadan is the ninth month of the Islamic year and is considered very special within the Muslim community. During this month, Muslims fast from dawn to dusk, which is known...

As we know, NMO is an exceedingly rare disease. When you meet someone who also lives with NMO, it's only natural to want to know everything about them and how...

In 2017, after I had my first attack, I was left with a spinal cord injury that consists of lesions from my brainstem to my t12 spine, which is about...

I have grown to love sharing my journey. At first becoming paralyzed was a hard pill to swallow. I could not believe that my independence was taken away from me...

Editor's note: In a previous article, Aldelly discussed having surgery to install a baclofen pump to help treat spasms. To read that article, please click here. On November 2, 2020...

The future: sometimes things get better and sometimes they get worse. We have our ups and downs and everything in between. One of my biggest problems is that I worry...

There is a standard plan of care when you are diagnosed with NMO. It's very straightforward. Get diagnosed, get on steroids until the attack is under control, and then proceed...

I had my first infusion in January. I was so happy to start a preventative treatment so I could finally get off steroids. The steroids had horrible side effects including...

Deciding to place a baclofen pump in my body wasn’t an easy decision, but it was a necessary one. Due to the severe spasms I was experiencing, I had run...

You must be thinking what good could come from getting a rare disease? Well, shockingly, one positive thing has happened to me after getting the dreaded news that I have...

I received a letter in the mail stating I was approved for Rituximab for NMO and the date I was to receive my first dose. It was in January, and...

NMOSD affects everyone who lives with the disease in different and often awful ways. Where do I start? You lose a version of your past self with each attack, leaving...

Spasticity for me has been a primary indicator that something is wrong with my body. When I was diagnosed with NMO back in 2016, it was no surprise to my...

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As NMO warriors, we need medications when we have flare ups or attacks or whatever you want to call them. These medications are used to try and help fight these...

Things will drastically change in the following years. You will go through many experiences you never imagined you would. These experiences will shape the type of person you are when...

Pregnancy strains the body. When you are pregnant, your immune system becomes less reactive so your baby can grow safely. For this reason, doctors call pregnancy an immunocompromised state. Having...

It's 2022. The world and the people in it seem busier than ever. At a time of "accessibility" and "ease of access", most of us are weighed down with a...

Editor's note: This article is part of a multi-part series. To read part one, click here, to read part two, click here, and to read part three, click here. I...