My First Ramadan with NMOSD: My Experience with FastingRamadan is the ninth month of the Islamic year and is considered very special within the Muslim community. During this month, Muslims fast from dawn to dusk, which is known...Reactions0reactionsComments0 comments
We Asked Aldelly 23 Questions: Introducing Our New Video SeriesAs we know, NMO is an exceedingly rare disease. When you meet someone who also lives with NMO, it's only natural to want to know everything about them and how...Reactions0reactionsComments0 comments
NMO, My Spinal Cord Stimulator, and Bowel and Bladder IssuesIn 2017, after I had my first attack, I was left with a spinal cord injury that consists of lesions from my brainstem to my t12 spine, which is about...Reactions0reactionsComments5 comments
My Long Journey to a Diagnosis: Part 1I have grown to love sharing my journey. At first becoming paralyzed was a hard pill to swallow. I could not believe that my independence was taken away from me...Reactions0reactionsComments0 comments
Post-Surgery: Bye-Bye Spasms?Editor's note: In a previous article, Aldelly discussed having surgery to install a baclofen pump to help treat spasms. To read that article, please click here. On November 2, 2020...Reactions0reactionsComments0 comments
A Dark NMO Future Created by My MindThe future: sometimes things get better and sometimes they get worse. We have our ups and downs and everything in between. One of my biggest problems is that I worry...Reactions0reactionsComments0 comments
Immunosuppressants: What's the Point?There is a standard plan of care when you are diagnosed with NMO. It's very straightforward. Get diagnosed, get on steroids until the attack is under control, and then proceed...Reactions0reactionsComments0 comments
Post-Infusion Nerve Pain and Back on SteroidsI had my first infusion in January. I was so happy to start a preventative treatment so I could finally get off steroids. The steroids had horrible side effects including...Reactions0reactionsComments9 comments
Still Experiencing Spasms: My Baclofen Pump Surgery DayDeciding to place a baclofen pump in my body wasn’t an easy decision, but it was a necessary one. Due to the severe spasms I was experiencing, I had run...Reactions0reactionsComments2 comments
How I Found a Positive in My NMO Journey and Forgave My FatherYou must be thinking what good could come from getting a rare disease? Well, shockingly, one positive thing has happened to me after getting the dreaded news that I have...Reactions0reactionsComments4 comments
My Experience with RituximabI received a letter in the mail stating I was approved for Rituximab for NMO and the date I was to receive my first dose. It was in January, and...Reactions0reactionsComments6 comments
NMO and the Impact on Our CaregiversNMOSD affects everyone who lives with the disease in different and often awful ways. Where do I start? You lose a version of your past self with each attack, leaving...Reactions0reactionsComments0 comments
The NMO Symptom I Experience Most: SpasticitySpasticity for me has been a primary indicator that something is wrong with my body. When I was diagnosed with NMO back in 2016, it was no surprise to my...Reactions0reactionsComments9 comments
Neuromyelitis-Optica.net Giveaway Terms and ConditionsThese Official Rules apply to any giveaway (or "Promotion") published on NEUROMYELITIS-OPTICA.NET, a Health Union ("Health Union" or "We") owned and operated website. For conflicts between the Promotional giveaway article...Reactions0reactionsComments0 comments
Steroids and What They Do To MeAs NMO warriors, we need medications when we have flare ups or attacks or whatever you want to call them. These medications are used to try and help fight these...Reactions0reactionsComments0 comments
A Letter to MyselfThings will drastically change in the following years. You will go through many experiences you never imagined you would. These experiences will shape the type of person you are when...Reactions0reactionsComments0 comments
NMO and PregnancyPregnancy strains the body. When you are pregnant, your immune system becomes less reactive so your baby can grow safely. For this reason, doctors call pregnancy an immunocompromised state. Having...Reactions0reactionsComments0 comments
I'm Not Tired, I'm FatiguedIt's 2022. The world and the people in it seem busier than ever. At a time of "accessibility" and "ease of access", most of us are weighed down with a...Reactions0reactionsComments2 comments
Hali's Journey with NMOSD Part 4: A Proper DiagnosisEditor's note: This article is part of a multi-part series. To read part one, click here, to read part two, click here, and to read part three, click here. I...Reactions0reactionsComments0 comments
What Are You Staring At?When you live with NMO, it's possible you might need to use assistive devices like a wheelchair or walker to get around. Unfortunately, being disabled in public far-too-often invites unwarranted...Reactions0reactionsComments0 comments