My Experience with RituximabI received a letter in the mail stating I was approved for Rituximab for NMO and the date I was to receive my first dose. It was in January, and...Reactions0reactionsComments6 comments
NMO and the Impact on Our CaregiversNMOSD affects everyone who lives with the disease in different and often awful ways. Where do I start? You lose a version of your past self with each attack, leaving...Reactions0reactionsComments0 comments
The NMO Symptom I Experience Most: SpasticitySpasticity for me has been a primary indicator that something is wrong with my body. When I was diagnosed with NMO back in 2016, it was no surprise to my...Reactions0reactionsComments9 comments
Neuromyelitis-Optica.net Giveaway Terms and ConditionsThese Official Rules apply to any giveaway (or "Promotion") published on NEUROMYELITIS-OPTICA.NET, a Health Union ("Health Union" or "We") owned and operated website. For conflicts between the Promotional giveaway article...Reactions0reactionsComments0 comments
Steroids and What They Do To MeAs NMO warriors, we need medications when we have flare ups or attacks or whatever you want to call them. These medications are used to try and help fight these...Reactions0reactionsComments0 comments
A Letter to MyselfThings will drastically change in the following years. You will go through many experiences you never imagined you would. These experiences will shape the type of person you are when...Reactions0reactionsComments0 comments
NMO and PregnancyPregnancy strains the body. When you are pregnant, your immune system becomes less reactive so your baby can grow safely. For this reason, doctors call pregnancy an immunocompromised state. Having...Reactions0reactionsComments0 comments
I'm Not Tired, I'm FatiguedIt's 2022. The world and the people in it seem busier than ever. At a time of "accessibility" and "ease of access", most of us are weighed down with a...Reactions0reactionsComments2 comments
Hali's Journey with NMOSD Part 4: A Proper DiagnosisEditor's note: This article is part of a multi-part series. To read part one, click here, to read part two, click here, and to read part three, click here. I...Reactions0reactionsComments0 comments
What Are You Staring At?When you live with NMO, it's possible you might need to use assistive devices like a wheelchair or walker to get around. Unfortunately, being disabled in public far-too-often invites unwarranted...Reactions0reactionsComments0 comments
AcceptanceLooking back on the day I was diagnosed with NMO, I realize it was all a whirlwind of emotions and pain, both physically and mentally. When you’re diagnosed with any...Reactions0reactionsComments0 comments
Hali's Journey with NMOSD Part 3Editor's note: This article is part of a multi-part series. To read part one, click here, and to read part two, click here. The first week in the hospital was...Reactions0reactionsComments2 comments
Shekita's NMO Life HacksHave you ever wanted some tips for coping with the pins and needles feeling that accompanies nerve pain? Are you curious about after-shower routines that might help reduce your pain?...Reactions0reactionsComments2 comments
Take the Health and Media Habits Survey!The Media Habits Survey is now closed. Thank you for your interest! Managing a chronic condition is not easy and can be physically and mentally exhausting. What types of media...Reactions0reactionsComments0 comments
Our Advocate Created a Handy NMO Patient Information FormFrom my experience, hospitalizations and NMO go hand-in-hand. My relapses never seem to happen during “normal business hours," so my neurologist often advises me to seek medical treatment through the...Reactions0reactionsComments1 comments
Bladder Issues, Ladies?One of the most common symptoms we, women living with NMO, suffer from is recurrent UTIs (unitary tract infections) due to many reasons. Whether an overactive bladder, bladder retention, or...Reactions0reactionsComments2 comments
My Journey with NMO Part 6: New Hopes and BeginningsEditor's note: To read part five of Dan's story, click on this link. The year was 2017 and it had already started with a not so please try bang. There...Reactions0reactionsComments0 comments
Ask the Advocates: How to Cope with NMO-Related HeadachesWe asked our advocates how they cope with headaches. Here's what they had to say: "For as many years as I’ve had symptoms of NMOSD, I’ve also been the un-lucky...Reactions0reactionsComments0 comments
Hali's Journey with NMOSD Part 2: Feeling Afraid, Losing HopeEditor's note: This article is part of a multi-part series. To read part one, please follow this link. Mentally, I was exhausted. I was only 19, I loved my life...Reactions0reactionsComments0 comments
Hali's Journey with NMOSD Part 1: No Relief, No AnswersI had just turned 19 two weeks earlier and was working as a soft playworker at my new childcare job. On the 9th of August 2021, unexpectedly I developed a...Reactions0reactionsComments0 comments