How NMO Has Changed MeI have always been a mover. Sitting still for too long makes me antsy. Even before I was diagnosed with NMO, I had other illnesses that caused disability, but I... By Monica Jones2 min readBookmark for laterReactions 0 reactions Comments1 comments
The Sumaira Foundation Distributes Five $25,000 Research GrantsThe Sumaira Foundation recently announced that it has awarded five grants, each in the amount of $25,000, to further research into NMOSD and other similar inflammatory neurological conditions. The Sumaira... By clay-wade3 min readBookmark for laterReactions 0 reactions Comments1 comments
My Journey With NMO Part 3: When It Gets DarkI was on top of the world and was really growing as a person. I thought I beat the fear I was experiencing and believed this disease was on a... By Dan Marino4 min readBookmark for laterReactions 0 reactions Comments0 comments
Asks the Advocates: NMO and the Next 10 YearsHere's what they had to say: "There are so many things about NMO that I hope change in the next 10 years. The first thing that I hope changes is... By Editorial Team 6 min readBookmark for laterReactions 0 reactions Comments0 comments
In America: What's That?The In America survey is now closed. Medical gaslighting, misdiagnosis, and finding solid and close-knit communities. These are some experiences you, the Neuromyelitis-Optica.net community, have given a voice to. Living... By Editorial Team 2 min readBookmark for laterReactions 0 reactions Comments0 comments
My Journey with NMO Part 2: Journey Into FearFear can be your worst enemy and can destroy everything around you. It can make you choose some choices that aren't in your best interests. Fear can make you act... By Dan Marino3 min readBookmark for laterReactions 0 reactions Comments0 comments
Bad Experiences with Medical CareBeing a person of color in the United States, particularly a black woman, I'm very familiar with being treated differently. It's unfortunate, but that's the hard truth. This is the reality... By Shekita Green4 min readBookmark for laterReactions 0 reactions Comments3 comments
My New "Normal" with NMOSDI'm moving into the second year of my NMO diagnosis. It may seem like it was a long time ago to everyone around me. I, on the other hand, feel... By Shekita Green3 min readBookmark for laterReactions 0 reactions Comments1 comments
Assembling Your Best Healthcare TeamOne of the first steps in managing your NMO is assembling the best healthcare team for you. Having the support of friends, family, and significant others can be beneficial in... By Editorial Team 3 min readBookmark for laterReactions 0 reactions Comments0 comments
FDA Approves Drug for Pre-Exposure Prevention of COVID-19The U.S. Food and Drug Administration (FDA) has authorized a new drug that may help prevent COVID-19. It is called Evusheld (tixagevimab co-packaged with cilgavimab).1-3 Evusheld is not authorized for... By Editorial Team 3 min readBookmark for laterReactions 0 reactions Comments0 comments
Ask the Advocates: How Do You Explain NMO?We asked our advocates how they explain what NMO is to the people in their lives. Here's what they had to say: "When I was first diagnosed, I had a... By Editorial Team 3 min readBookmark for laterReactions 0 reactions Comments0 comments
There is an Elephant in the HouseThroughout this process of living with NMO, mental health has been like the silent elephant in the house for my family. As a mother of two young boys, a wife... By Aldelly V.3 min readBookmark for laterReactions 0 reactions Comments0 comments
Ask the Advocates: What Does Community Mean to You?We asked our advocates what having an online NMO community means to them. Here's what they had to say; "I cannot stress the importance of having an online community for... By Editorial Team 5 min readBookmark for laterReactions 0 reactions Comments0 comments
Dealing with Loss after NMOThere are a ton of things that I was attached to before I had an NMO attack. I was a person who would dress up, wear heels, and strut my... By Shekita Green3 min readBookmark for laterReactions 0 reactions Comments0 comments
Social Media and Chronic IllnessI'm an 80s baby. You know, the era of cool kids? Kidding. I remember when my dad came home with clunky equipment one day. As soon as I saw it... By Shekita Green3 min readBookmark for laterReactions 0 reactions Comments0 comments
Let's Talk NMO Attacks and Hospitalizations Part 3"When I go to the hospital I have to keep in mind that NMO although is becoming more recognized, it is still rare and not everyone, including doctors, are aware... By Editorial Team 2 min readBookmark for laterReactions 0 reactions Comments1 comments
Want to share your NMO story? Start here!"I want to share my story but I don't know... I don't even know where to start." If this sounds like you, you're not alone. I've heard had many conversations... By jada-walton3 min readBookmark for laterReactions 0 reactions Comments0 comments
Frequently Asked Questions (FAQs) About NMONeuromyelitis optica spectrum disorder (NMO) is a rare inflammatory disease of the central nervous system (eye nerves, spinal cord, and brain). It is sometimes also called neuromyelitis optica or NMO... By Editorial Team 7 min readBookmark for laterReactions 0 reactions Comments0 comments
Do Factors Like Race and Age of Onset Predict Long-Term NMO Effects in Kids?Experts have been working hard to learn more about the progression of neuromyelitis optica spectrum disorder (NMOSD or NMO). In adults, some research has suggested that the age of the... By Editorial Team 3 min readBookmark for laterReactions 0 reactions Comments0 comments
My Honest Letter to NMODear NMO, I’m wondering why I was chosen to be a victim of such a horrific disease. I know I’m a strong person, both mentally and physically. But I’m tired... By Aldelly V.3 min readBookmark for laterReactions 0 reactions Comments0 comments