Articles

I come from a culture where alcohol is very present in everything we do. If there is a birthday, baby shower or any type of gathering, alcohol is almost always...

Do you ever wonder if that pain in your side is part of your condition? Or that itch? Or the migraine? How about those restless nights? Or that random fever?...

When I first started outpatient physical therapy in 2014 with Sarah, my physical therapist, I could not get out of my bed by myself let alone stand up. Over the...

Being a student alone is very difficult. On top of that, having a chronic illness and extreme brain fog makes things even more complicated. From what I can remember, even...

How many times have you gone to the doctor with a complaint, only to be told there is nothing wrong? I’m sure that it has happened to us all at...

Editorial Note: Nominations for 2024 are now closed. We are very excited to announce the launch of the 2024 Social Health Awards program! The Social Health Awards is an awards...

“The Air Carrier Access Act (ACAA) is a law that makes it illegal for airlines to discriminate against passengers because of their disability. The Department of Transportation is responsible for...

It's 2022 and somehow we're still having conversations about ableism. With all the technology and resources available today, I can't help but to feel like this conversation should be a...

I'd spent 7 months recovering from my first attack. It’s been two months since I've been off steroids and I had finally gained the tiniest bit of confidence back. I...

After spending three months in the hospital, I was discharged and sent to a nursing home. Thank God I was only there for a week, because I hated that place...

Ramadan is the ninth month of the Islamic year and is considered very special within the Muslim community. During this month, Muslims fast from dawn to dusk, which is known...

As we know, NMO is an exceedingly rare disease. When you meet someone who also lives with NMO, it's only natural to want to know everything about them and how...

In 2017, after I had my first attack, I was left with a spinal cord injury that consists of lesions from my brainstem to my t12 spine, which is about...

I have grown to love sharing my journey. At first becoming paralyzed was a hard pill to swallow. I could not believe that my independence was taken away from me...

Editor's note: In a previous article, Aldelly discussed having surgery to install a baclofen pump to help treat spasms. To read that article, please click here. On November 2, 2020...

The future: sometimes things get better and sometimes they get worse. We have our ups and downs and everything in between. One of my biggest problems is that I worry...

There is a standard plan of care when you are diagnosed with NMO. It's very straightforward. Get diagnosed, get on steroids until the attack is under control, and then proceed...

I had my first infusion in January. I was so happy to start a preventative treatment so I could finally get off steroids. The steroids had horrible side effects including...

Deciding to place a baclofen pump in my body wasn’t an easy decision, but it was a necessary one. Due to the severe spasms I was experiencing, I had run...

You must be thinking what good could come from getting a rare disease? Well, shockingly, one positive thing has happened to me after getting the dreaded news that I have...