I Took a Shower TodayTaking a shower when you live with NMO is a big deal. Few people understand why taking a shower could be an...reactions1comment
Understanding the Impact of NMO: Misdiagnosis, Mental Health, and CommunityWe collected information about the experiences of 61 people living with NMO in the 1st Annual NMO In America survey. NMO is...reactions1comment
Don't Forget About You!Oftentimes when going through a difficult transition, like adjusting to life with NMO, we tend to forget about ourselves. We forget that...reactions2comments
My Daughter's Diagnosis Prepared Me for MineBeing diagnosed with NMO has been quite the journey for me. It took 3 years after I initially began getting sick to...reactions5comments
Traveling With NMO: TipsFor those who have live with NMOSD for awhile, or for those who have been recently diagnosed, it can be hard to...reactionscomments
OMG! I Found My NMOSD Community!Like many, I felt very alone when I received my NMOSD diagnosis. It was a disease that I had never heard of...reactionscomments
What's in Avery's Bag?You never know what you might need to have on you to make life with NMO all the easier. Let's take a...reactionscomments
Shekita Meets a New ProviderMeeting a new provider can be an intimidating experience. Unfortunately, many providers aren't familiar with NMO or how it's treated, which can...reactions2comments
Visiting The NMOSD ClinicThe hospital in my city does not have a NMOSD specialist, NMOSD nurses or an NMOSD team. My neurologist is an MS...reactionscomments
Let's Have a Drink!I come from a culture where alcohol is very present in everything we do. If there is a birthday, baby shower or...reactionscomments
Wait! The Internet Said I’m Dying!Do you ever wonder if that pain in your side is part of your condition? Or that itch? Or the migraine? How...reactionscomments
Recovery Isn't a Race: It's a MarathonWhen I first started outpatient physical therapy in 2014 with Sarah, my physical therapist, I could not get out of my bed...reactions3comments
Dealing With Brain Fog as a StudentBeing a student alone is very difficult. On top of that, having a chronic illness and extreme brain fog makes things even...reactions4comments
Let’s Talk Doctors and Advocating for YourselfHow many times have you gone to the doctor with a complaint, only to be told there is nothing wrong? I’m sure...reactionscomments
The 2024 Social Health Awards ProgramEditorial Note: Nominations for 2024 are now closed. We are very excited to announce the launch of the 2024 Social Health Awards...reactionscomments
Special Assistance When Traveling“The Air Carrier Access Act (ACAA) is a law that makes it illegal for airlines to discriminate against passengers because of their...reactions2comments
Let's Talk AbleismIt's 2022 and somehow we're still having conversations about ableism. With all the technology and resources available today, I can't help but...reactionscomments
My First Trip After My NMO AttackI'd spent 7 months recovering from my first attack. It’s been two months since I've been off steroids and I had finally...reactions4comments
Nursing Homes, Rehab Centers, and an Accurate DiagnosisAfter spending three months in the hospital, I was discharged and sent to a nursing home. Thank God I was only there...reactionscomments
My First Ramadan with NMOSD: My Experience with FastingRamadan is the ninth month of the Islamic year and is considered very special within the Muslim community. During this month, Muslims...reactionscomments
