My Daughter's Diagnosis Prepared Me for MineBeing diagnosed with NMO has been quite the journey for me. It took 3 years after I initially began getting sick to officially be diagnosed with the correct illness and...Reactions0reactionsComments5 comments
Traveling With NMO: TipsFor those who have live with NMOSD for awhile, or for those who have been recently diagnosed, it can be hard to adjust to traveling long distances. Along with long...Reactions0reactionsComments0 comments
OMG! They’re Just Like Me!Like many, I felt very alone when I received my NMO diagnosis. It was a disease that I had never heard of, so surely no one else could be living...Reactions0reactionsComments0 comments
What's in Avery's Bag?You never know what you might need to have on you to make life with NMO all the easier. Let's take a trip into Avery's bag and see what she...Reactions0reactionsComments0 comments
Shekita Meets a New ProviderMeeting a new provider can be an intimidating experience. Unfortunately, many providers aren't familiar with NMO or how it's treated, which can force folks who live with NMO to become...Reactions0reactionsComments2 comments
Visiting the NMO ClinicThe hospital in my city does not have a NMO specialist, NMO nurses or an NMO team. My neurologist is an MS specialist but is still very supportive when it...Reactions0reactionsComments0 comments
Let's Have a Drink!I come from a culture where alcohol is very present in everything we do. If there is a birthday, baby shower or any type of gathering, alcohol is almost always...Reactions0reactionsComments0 comments
Wait! The Internet Said I’m Dying!Do you ever wonder if that pain in your side is part of your condition? Or that itch? Or the migraine? How about those restless nights? Or that random fever?...Reactions0reactionsComments0 comments
Recovery Isn't a Race: It's a MarathonWhen I first started outpatient physical therapy in 2014 with Sarah, my physical therapist, I could not get out of my bed by myself let alone stand up. Over the...Reactions0reactionsComments0 comments
Dealing With Brain Fog as a StudentBeing a student alone is very difficult. On top of that, having a chronic illness and extreme brain fog makes things even more complicated. From what I can remember, even...Reactions0reactionsComments4 comments
Let’s Talk Doctors and Advocating for YourselfHow many times have you gone to the doctor with a complaint, only to be told there is nothing wrong? I’m sure that it has happened to us all at...Reactions0reactionsComments0 comments
The 2024 Social Health Awards ProgramEditorial Note: Nominations for 2024 are now closed. We are very excited to announce the launch of the 2024 Social Health Awards program! The Social Health Awards is an awards...Reactions0reactionsComments0 comments
Special Assistance When Traveling“The Air Carrier Access Act (ACAA) is a law that makes it illegal for airlines to discriminate against passengers because of their disability. The Department of Transportation is responsible for...Reactions0reactionsComments2 comments
Let's Talk AbleismIt's 2022 and somehow we're still having conversations about ableism. With all the technology and resources available today, I can't help but to feel like this conversation should be a...Reactions0reactionsComments0 comments
My First Trip After My NMO AttackI'd spent 7 months recovering from my first attack. It’s been two months since I've been off steroids and I had finally gained the tiniest bit of confidence back. I...Reactions0reactionsComments4 comments
Nursing Homes, Rehab Centers, and an Accurate DiagnosisAfter spending three months in the hospital, I was discharged and sent to a nursing home. Thank God I was only there for a week, because I hated that place...Reactions0reactionsComments0 comments
My First Ramadan with NMOSD: My Experience with FastingRamadan is the ninth month of the Islamic year and is considered very special within the Muslim community. During this month, Muslims fast from dawn to dusk, which is known...Reactions0reactionsComments0 comments
We Asked Aldelly 23 Questions: Introducing Our New Video SeriesAs we know, NMO is an exceedingly rare disease. When you meet someone who also lives with NMO, it's only natural to want to know everything about them and how...Reactions0reactionsComments0 comments
NMO, My Spinal Cord Stimulator, and Bowel and Bladder IssuesIn 2017, after I had my first attack, I was left with a spinal cord injury that consists of lesions from my brainstem to my t12 spine, which is about...Reactions0reactionsComments5 comments
My Long Journey to a Diagnosis: Part 1I have grown to love sharing my journey. At first becoming paralyzed was a hard pill to swallow. I could not believe that my independence was taken away from me...Reactions0reactionsComments0 comments