Hali's Journey with NMOSD Part 4: A Proper DiagnosisEditor's note: This article is part of a multi-part series. To read part one, click here, to read part two, click here, and to read part three, click here. I... By Haleemah Sarwar3 min readBookmark for laterReactions 0 reactions Comments0 comments
What Are You Staring At?When you live with NMO, it's possible you might need to use assistive devices like a wheelchair or walker to get around. Unfortunately, being disabled in public far-too-often invites unwarranted... By Aldelly V.1 min readBookmark for laterReactions 0 reactions Comments0 comments
AcceptanceLooking back on the day I was diagnosed with NMO, I realize it was all a whirlwind of emotions and pain, both physically and mentally. When you’re diagnosed with any... By Avery Allmond3 min readBookmark for laterReactions 0 reactions Comments0 comments
Hali's Journey with NMOSD Part 3Editor's note: This article is part of a multi-part series. To read part one, click here, and to read part two, click here. The first week in the hospital was... By Haleemah Sarwar3 min readBookmark for laterReactions 0 reactions Comments2 comments
Shekita's NMO Life HacksHave you ever wanted some tips for coping with the pins and needles feeling that accompanies nerve pain? Are you curious about after-shower routines that might help reduce your pain?... By Shekita Green1 min readBookmark for laterReactions 0 reactions Comments2 comments
Take the Health and Media Habits Survey!The Media Habits Survey is now closed. Thank you for your interest! Managing a chronic condition is not easy and can be physically and mentally exhausting. What types of media... By Editorial Team 1 min readBookmark for laterReactions 0 reactions Comments0 comments
Our Advocate Created a Handy NMO Patient Information FormFrom my experience, hospitalizations and NMO go hand-in-hand. My relapses never seem to happen during “normal business hours," so my neurologist often advises me to seek medical treatment through the... By Chelsey Tucker2 min readBookmark for laterReactions 0 reactions Comments1 comments
Bladder Issues, Ladies?One of the most common symptoms we, women living with NMO, suffer from is recurrent UTIs (unitary tract infections) due to many reasons. Whether an overactive bladder, bladder retention, or... By Aldelly V.3 min readBookmark for laterReactions 0 reactions Comments2 comments
My Journey with NMO Part 6: New Hopes and BeginningsEditor's note: To read part five of Dan's story, click on this link. The year was 2017 and it had already started with a not so please try bang. There... By Dan Marino3 min readBookmark for laterReactions 0 reactions Comments0 comments
Ask the Advocates: How to Cope with NMO-Related HeadachesWe asked our advocates how they cope with headaches. Here's what they had to say: "For as many years as I’ve had symptoms of NMOSD, I’ve also been the un-lucky... By Editorial Team 8 min readBookmark for laterReactions 0 reactions Comments0 comments
Hali's Journey with NMOSD Part 2: Feeling Afraid, Losing HopeEditor's note: This article is part of a multi-part series. To read part one, please follow this link. Mentally, I was exhausted. I was only 19, I loved my life... By Haleemah Sarwar3 min readBookmark for laterReactions 0 reactions Comments0 comments
Hali's Journey with NMOSD Part 1: No Relief, No AnswersI had just turned 19 two weeks earlier and was working as a soft playworker at my new childcare job. On the 9th of August 2021, unexpectedly I developed a... By Haleemah Sarwar3 min readBookmark for laterReactions 0 reactions Comments0 comments
[Closed] Leisurely Self-Care Kit Giveaway!Happy NMO Awareness Month! Let's celebrate with a giveaway! This year we're focused on making sure you SHINE! Nothing helps us shine more than some self-care. That is why we're... By Editorial Team 1 min readBookmark for laterReactions 0 reactions Comments0 comments
NMO Awareness Month: Our Time to SHINE!March is NMO Awareness Month! Now more than ever, let us come together and use our voices to bring more awareness around the importance of NMOSD. Unfortunately, due to NMO... By jada-walton2 min readBookmark for laterReactions 0 reactions Comments0 comments
Strategies for Coping with a Rare Disease like NMOWhen you are diagnosed with a rare disease like NMO, you might feel overwhelmed about what to expect. Because few people have NMO, there may be a lack of information... By Editorial Team 3 min readBookmark for laterReactions 0 reactions Comments0 comments
Let It Out, Then Keep It Moving Part 1I just need to vent. I need to speak my truth and say out loud what’s building up inside of me to anyone willing to listen. So here it goes... By Shekita Green2 min readBookmark for laterReactions 0 reactions Comments0 comments
Ask the Advocates: Coping with PainWe asked our advocates how they cope with the pain that comes from living with NMO. We also asked what tips or advice they'd provide to others. Here's what they... By Editorial Team 9 min readBookmark for laterReactions 0 reactions Comments0 comments
My Journey with NMO Part 5: Realizing I Had a ProblemEditor's note: To read part four of Dan's story, click on this link. This was the year that things would shape up in my life. I was working again and... By Dan Marino3 min readBookmark for laterReactions 0 reactions Comments0 comments
Through Sickness and in HealthYou know that part of the wedding ceremony when you hear “in sickness and in health, to love and to cherish, till death do us part”? For those of us... By Aldelly V.2 min readBookmark for laterReactions 0 reactions Comments0 comments
My Journey with NMO Part 4: Darker RealityLet's revisit where we left off: My vision had been diminished by an attack, after four months my disability insurance through my employer was over, and I said that I... By Dan Marino4 min readBookmark for laterReactions 0 reactions Comments0 comments