Hali's Journey with NMOSD Part 1: No Relief, No AnswersI had just turned 19 two weeks earlier and was working as a soft playworker at my new childcare job. On the...reactionscomments
Steroids and What They Do To MeAs NMO warriors, we need medications when we have flare ups or attacks or whatever you want to call them. These medications...reactionscomments
My NMO Misdiagnosis Journey, Part TwoRead the first part of Shekita's NMO misdiagnosis journey here. ER visits can be traumatizing, especially if you are not getting results...reactionscomments
My Mental Health and Journey with NMOFrom the beginning of my NMO diagnosis until now, I’ve recorded every major portion of my rare disease health journey - from...reactions3comments
How NMO Changed My Perspective on Mental HealthPrior to my NMO diagnosis, I never took my mental health seriously. I was always told by doctors to basically "get over...reactions2comments
What Is Trauma-Informed Care?Traumatic experiences can be life-changing. It is well known that these experiences can have long-term health effects. In addition to mental health...reactions1comment
The Voice Saying, "It’s Not Real"Being diagnosed with NMO, I’m sure we've all felt and heard from our peers that what was happening to us wasn’t real...reactions2comments
Is There a Link Between Alopecia and NMO?Neuromyelitis optica (NMO) is an autoimmune disease. This means it is caused by the immune system mistakenly attacking the body. It typically...reactionscomments
NMO Treatment and AnemiaNeuromyelitis optica (NMO) does not have a cure. But there are treatments aimed at preventing attacks or reducing relapses. Unfortunately, sometimes these...reactions1comment
NMO In The Eyes of A 9-Year-Old: Before My DiagnosisMy daughter was 2.5 years old when we left Australia. She, her daddy, and I returned to our hometown in India in...reactionscomments
Anemic NMOFor months I was experiencing an increase in my NMO symptoms. While I communicated this to my neurologist, I had no new...reactions3comments
1 Whole Year On Rituximab: ReflectingIt has been a whole year since I’ve been on rituximab as my NMO preventative treatment. I’m so grateful for the opportunity...reactions1comment
The Black Rare Disease ExperienceI read an article the other day, and it told a detailed story about being Black and having a rare disease. That’s...reactions2comments
Frequently Asked Questions (FAQs) About NMONeuromyelitis optica spectrum disorder (NMO) is a rare inflammatory disease of the central nervous system (eye nerves, spinal cord, and brain). It...reactionscomments
Recovery Isn't a Race: It's a MarathonWhen I first started outpatient physical therapy in 2014 with Sarah, my physical therapist, I could not get out of my bed...reactions3comments
My Rare Disease Nonprofit - How I Started the Couch Pennies FoundationI watched the YouTube makeup artist Tallia through her entire journey from the minute she posted her first video to the very...reactions1comment
How my Suffering from NMO Impacted my DaughterI had just gotten out of the hospital. I informed my daughter that 2nd dose of the Corona vaccine had triggered the...reactions5comments
Goodbye and Hello AgainAfter being diagnosed with NMO, change has been very scary to me. It took more of my vision with every attack. With...reactions3comments
[Closed] "NMO Warrior" YETI® Mug Giveaway!The "NMO Warrior" YETI® Mug Giveaway is now closed. Thank you for your interest! Happy NMO Awareness Month! This year, we are...reactions1comment
Bipolar 2, Exposure Therapy and NMOSomething never felt quite right when I was diagnosed with NMO at 19. This was before I was diagnosed with bipolar 2...reactionscomments
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