Our Advocate Created a Handy NMO Patient Information FormFrom my experience, hospitalizations and NMO go hand-in-hand. My relapses never seem to happen during “normal business hours," so my neurologist often advises me to seek medical treatment through the...Reactions0reactionsComments1 comments
Bladder Issues, Ladies?One of the most common symptoms we, women living with NMO, suffer from is recurrent UTIs (unitary tract infections) due to many reasons. Whether an overactive bladder, bladder retention, or...Reactions0reactionsComments2 comments
My Journey with NMO Part 6: New Hopes and BeginningsEditor's note: To read part five of Dan's story, click on this link. The year was 2017 and it had already started with a not so please try bang. There...Reactions0reactionsComments0 comments
Ask the Advocates: How to Cope with NMO-Related HeadachesWe asked our advocates how they cope with headaches. Here's what they had to say: "For as many years as I’ve had symptoms of NMOSD, I’ve also been the un-lucky...Reactions0reactionsComments0 comments
Hali's Journey with NMOSD Part 2: Feeling Afraid, Losing HopeEditor's note: This article is part of a multi-part series. To read part one, please follow this link. Mentally, I was exhausted. I was only 19, I loved my life...Reactions0reactionsComments0 comments
Hali's Journey with NMOSD Part 1: No Relief, No AnswersI had just turned 19 two weeks earlier and was working as a soft playworker at my new childcare job. On the 9th of August 2021, unexpectedly I developed a...Reactions0reactionsComments0 comments
[Closed] Leisurely Self-Care Kit Giveaway!Happy NMO Awareness Month! Let's celebrate with a giveaway! This year we're focused on making sure you SHINE! Nothing helps us shine more than some self-care. That is why we're...Reactions0reactionsComments0 comments
NMO Awareness Month: Our Time to SHINE!March is NMO Awareness Month! Now more than ever, let us come together and use our voices to bring more awareness around the importance of NMOSD. Unfortunately, due to NMO...Reactions0reactionsComments0 comments
Strategies for Coping with a Rare Disease like NMOWhen you are diagnosed with a rare disease like NMO, you might feel overwhelmed about what to expect. Because few people have NMO, there may be a lack of information...Reactions0reactionsComments0 comments
Let It Out, Then Keep It Moving Part 1I just need to vent. I need to speak my truth and say out loud what’s building up inside of me to anyone willing to listen. So here it goes...Reactions0reactionsComments0 comments
Ask the Advocates: Coping with PainWe asked our advocates how they cope with the pain that comes from living with NMO. We also asked what tips or advice they'd provide to others. Here's what they...Reactions0reactionsComments0 comments
My Journey with NMO Part 5: Realizing I Had a ProblemEditor's note: To read part four of Dan's story, click on this link. This was the year that things would shape up in my life. I was working again and...Reactions0reactionsComments0 comments
Through Sickness and in HealthYou know that part of the wedding ceremony when you hear “in sickness and in health, to love and to cherish, till death do us part”? For those of us...Reactions0reactionsComments0 comments
My Journey with NMO Part 4: Darker RealityLet's revisit where we left off: My vision had been diminished by an attack, after four months my disability insurance through my employer was over, and I said that I...Reactions0reactionsComments0 comments
How NMO Has Changed MeI have always been a mover. Sitting still for too long makes me antsy. Even before I was diagnosed with NMO, I had other illnesses that caused disability, but I...Reactions0reactionsComments1 comments
The Sumaira Foundation Distributes Five $25,000 Research GrantsThe Sumaira Foundation recently announced that it has awarded five grants, each in the amount of $25,000, to further research into NMOSD and other similar inflammatory neurological conditions. The Sumaira...Reactions0reactionsComments1 comments
My Journey With NMO Part 3: When It Gets DarkI was on top of the world and was really growing as a person. I thought I beat the fear I was experiencing and believed this disease was on a...Reactions0reactionsComments0 comments
Asks the Advocates: NMO and the Next 10 YearsHere's what they had to say: "There are so many things about NMO that I hope change in the next 10 years. The first thing that I hope changes is...Reactions0reactionsComments0 comments
Rare In America: What's That?Medical gaslighting, misdiagnosis, and finding solid and close-knit communities. These are some experiences you, the Neuromyelitis-Optica.net community, have given a voice to. Living with neuromyelitis optica is that, and so...Reactions0reactionsComments0 comments
My Journey with NMO Part 2: Journey Into FearFear can be your worst enemy and can destroy everything around you. It can make you choose some choices that aren't in your best interests. Fear can make you act...Reactions0reactionsComments0 comments