[Closed] Leisurely Self-Care Kit Giveaway!Happy NMO Awareness Month! Let's celebrate with a giveaway! This year we're focused on making sure you SHINE! Nothing helps us shine more than some self-care. That is why we're...Reactions0reactionsComments0 comments
NMO Awareness Month: Our Time to SHINE!March is NMO Awareness Month! Now more than ever, let us come together and use our voices to bring more awareness around the importance of NMOSD. Unfortunately, due to NMO...Reactions0reactionsComments0 comments
Strategies for Coping with a Rare Disease like NMOWhen you are diagnosed with a rare disease like NMO, you might feel overwhelmed about what to expect. Because few people have NMO, there may be a lack of information...Reactions0reactionsComments0 comments
Let It Out, Then Keep It Moving Part 1I just need to vent. I need to speak my truth and say out loud what’s building up inside of me to anyone willing to listen. So here it goes...Reactions0reactionsComments0 comments
Ask the Advocates: Coping with PainWe asked our advocates how they cope with the pain that comes from living with NMO. We also asked what tips or advice they'd provide to others. Here's what they...Reactions0reactionsComments0 comments
My Journey with NMO Part 5: Realizing I Had a ProblemEditor's note: To read part four of Dan's story, click on this link. This was the year that things would shape up in my life. I was working again and...Reactions0reactionsComments0 comments
Through Sickness and in HealthYou know that part of the wedding ceremony when you hear “in sickness and in health, to love and to cherish, till death do us part”? For those of us...Reactions0reactionsComments0 comments
My Journey with NMO Part 4: Darker RealityLet's revisit where we left off: My vision had been diminished by an attack, after four months my disability insurance through my employer was over, and I said that I...Reactions0reactionsComments0 comments
How NMO Has Changed MeI have always been a mover. Sitting still for too long makes me antsy. Even before I was diagnosed with NMO, I had other illnesses that caused disability, but I...Reactions0reactionsComments1 comments
The Sumaira Foundation Distributes Five $25,000 Research GrantsThe Sumaira Foundation recently announced that it has awarded five grants, each in the amount of $25,000, to further research into NMOSD and other similar inflammatory neurological conditions. The Sumaira...Reactions0reactionsComments1 comments
My Journey With NMO Part 3: When It Gets DarkI was on top of the world and was really growing as a person. I thought I beat the fear I was experiencing and believed this disease was on a...Reactions0reactionsComments0 comments
Asks the Advocates: NMO and the Next 10 YearsHere's what they had to say: "There are so many things about NMO that I hope change in the next 10 years. The first thing that I hope changes is...Reactions0reactionsComments0 comments
Rare In America: What's That?The Rare In America survey is now closed. Medical gaslighting, misdiagnosis, and finding solid and close-knit communities. These are some experiences you, the Neuromyelitis-Optica.net community, have given a voice to...Reactions0reactionsComments0 comments
My Journey with NMO Part 2: Journey Into FearFear can be your worst enemy and can destroy everything around you. It can make you choose some choices that aren't in your best interests. Fear can make you act...Reactions0reactionsComments0 comments
Bad Experiences with Medical CareBeing a person of color in the United States, particularly a black woman, I'm very familiar with being treated differently. It's unfortunate, but that's the hard truth. This is the reality...Reactions0reactionsComments3 comments
My New "Normal" with NMOSDI'm moving into the second year of my NMO diagnosis. It may seem like it was a long time ago to everyone around me. I, on the other hand, feel...Reactions0reactionsComments1 comments
Assembling Your Best Healthcare TeamOne of the first steps in managing your NMO is assembling the best healthcare team for you. Having the support of friends, family, and significant others can be beneficial in...Reactions0reactionsComments0 comments
FDA Approves Drug for Pre-Exposure Prevention of COVID-19The U.S. Food and Drug Administration (FDA) has authorized a new drug that may help prevent COVID-19. It is called Evusheld (tixagevimab co-packaged with cilgavimab).1-3 Evusheld is not authorized for...Reactions0reactionsComments0 comments
Ask the Advocates: How Do You Explain NMO?We asked our advocates how they explain what NMO is to the people in their lives. Here's what they had to say: "When I was first diagnosed, I had a...Reactions0reactionsComments0 comments
There is an Elephant in the HouseThroughout this process of living with NMO, mental health has been like the silent elephant in the house for my family. As a mother of two young boys, a wife...Reactions0reactionsComments0 comments