Community Views: MisdiagnosisBecause neuromyelitis optica spectrum disorder (NMOSD) is a rare disease, misdiagnosis is common. It can take months or years to get an accurate diagnosis. Symptoms often overlap with those of...Reactions0reactionsComments1 comments
Brain Fog and MeI stood in an unknown place unable to understand where I was. Why was I there? Why was this place filled with too many people? The noise and all the...Reactions0reactionsComments2 comments
Is It or Isn’t it? Flare-Up EditionLife can be many things. It can be filled with joy, love, and happiness. Life can also bring darkness, tears, stress, and fear. It can bring you luck and it...Reactions0reactionsComments1 comments
Sponsored: Congratulations on Taking the Next Step Toward Being a Powerful NMOSD Advocate!By AMGEN You just gained more resources to help take control of your NMOSD! Based on your answers, you may also receive information about treatment advances that are tailored to...
Sponsored: The Right Tools Can Help You on Your NMOSD JourneyBy AMGEN Living with neuromyelitis optica spectrum disorder (NMOSD) is challenging, but taking an active role in your health can be an empowering part of your journey. Gaining tools to...
The Night Before My InfusionPart of being diagnosed with neuromyelitis optica spectrum disorder (NMOSD), zero-negative, is being limited to what types of treatments there are. I was recommended to go on Rituximab, every six...Reactions0reactionsComments1 comments
The Choice To Accept MyselfThe beginnings of my neuromyelitis optica (NMO) journey led to the loss of one eye. I started noticing changes in my husband's behavior around this time, too. I chose to...Reactions0reactionsComments1 comments
Getting Started on the Neuromyelitis-Optica.net CommunityWelcome to our Neuromyelitis Optica Spectrum Disorder (NMOSD) community! Not sure where to start? We're here to help you find exactly what you're looking for. The Neuromyelitis-Optica.net community contains reliable...Reactions0reactionsComments1 comments
Vacation Tips With NMOHaving a a medical condition like neuromyelitis optica (NMO) can sometimes make traveling a little difficult, or possibly a little uncomfortable. So in this article, I want to try and...Reactions0reactionsComments0 comments
Keeping Your Medical Records OrganizedKeeping track of your medical records is essential for your health, especially when you or your loved one has neuromyelitis optica spectrum disorder (NMOSD). With organized medical records, you can...Reactions0reactionsComments0 comments
Telling My NMO Story Can Be PainfulThere was a point in my health journey when it’s just bothersome to constantly get questions about my neuromyelitis optica (NMO) diagnosis. While I love advocating for NMO and sharing...Reactions0reactionsComments0 comments
First NMOSD SymptomsDiagnosing neuromyelitis optica spectrum disorder (NMOSD) can be very challenging. Symptoms of rare diseases often go overlooked, and many doctors are unfamiliar with signs of NMOSD. The Neuromyelitis-Optica.net community answered...Reactions0reactionsComments0 comments
Coping With Brain Fog and Fatigue"I just read that last chapter, why can’t I remember what happened?" "I’ve never missed a deadline and I just forgot a major one!" "I feel like I’m slogging through...Reactions0reactionsComments0 comments
Filter Out the NegativeThere is a saying about tough times: you get to see the true colors of everyone around you. I had seen tough times, and I had seen how people reacted...Reactions0reactionsComments0 comments
The Physical and Emotional Toll of SteroidsMy last neuromyelitis optica (NMO) attack was roughly eight years ago. It was my most terrifying attack yet. At that point my right eye suffered a lot from an ignored...Reactions0reactionsComments0 comments
Parenting with NMOSDThe hardest situation to deal with is a chronic disease like neuromyelitis optica spectrum disorder (NMOSD) that continues to debilitate you, to the point of not caring who is watching...Reactions0reactionsComments2 comments
My Rituxan ExperienceI want to share a piece of my journey with you, a journey that has been significantly altered by one little bottle of Rituxan. That bottle might not look like...Reactions0reactionsComments0 comments
NMOSD Made Me Say Goodbye to High HeelsEvery time I’m asked at a physical therapy consult, “What’s your goal?” my answer is almost always to walk - in high heels. Before my neuromyelitis optica spectrum disorder (NMOSD)...Reactions0reactionsComments0 comments
I Miss the Joy of RunningBefore neuromyelitis optica spectrum disorder (NMOSD), my whole life I was an athlete. When I got to high school, I decided I was going to play basketball since the basketball...Reactions0reactionsComments1 comments
Understanding NMOSD LesionsNeuromyelitis optica spectrum disorder (NMOSD) affects the central nervous system. The brain, spinal cord, and the optic nerve are some of the parts of the central nervous system. Since NMOSD...Reactions0reactionsComments0 comments
