Combating MRI AnxietyThat first MRI was taken upon my initial NMOSD attack. What they told me was that I would be in a big...reactionscomments
NMOSD and The Impact On Our CaregiversNMOSD affects everyone who lives with the disease in different and often awful ways. Where do I start? You lose a version...reactionscomments
Immunosuppressants: What's the Point?There is a standard plan of care when you are diagnosed with NMOSD. It's very straightforward. Get diagnosed, get on steroids until...reactions2comments
Food Poisoning With A Suppressed Immune SystemLiving with a suppressed immune system is hard. Especially as a student, going to university, taking public transport and eating out for...reactionscomments
OMG! I Found My NMOSD Community!Like many, I felt very alone when I received my NMOSD diagnosis. It was a disease that I had never heard of...reactionscomments
Talking About NMOSD: An Elephant In The HouseThroughout this process of living with NMOSD, mental health has been like the silent elephant in the house for my family. As...reactions2comments
A Handy NMOSD Patient Information FormFrom my experience, hospitalizations and NMOSD go hand-in-hand. My relapses never seem to happen during “normal business hours," so my neurologist often...reactions3comments
The Challenges of Seronegative NMOSDNeuromyelitis optica spectrum disorder (NMOSD) can have a variety of different symptom types, severities, and patterns. Since each person's experience with NMOSD...reactions1comment
Eating Healthy Without Breaking the Bank!As we all know, managing your nutrition as someone who lives with NMOSD is super important. Some people with NMOSD who have...reactionscomments
The Nitty Gritty of Living with NMOSDNMOSD is a rare disease. That means that finding a doctor who can treat you will not go without difficulty. The bigger...reactions5comments
Visiting The NMOSD ClinicThe hospital in my city does not have a NMOSD specialist, NMOSD nurses or an NMOSD team. My neurologist is an MS...reactions1comment
Things I Wish I Knew When I Was First DiagnosedBeing newly diagnosed with neuromyelitis optica spectrum disorder (NMOSD) can be scary, but staying optimistic is key. I remember feeling shocked, lost...reactions1comment
Frustrated With NMOSD Vision LossSome days I forget I have vision issues due to NMOSD, and some days I feel like it’s thrown in my face...reactionscomments
Moving Through NMOSD ChallengesI just need to vent about NMOSD challenges and frustrations. I need to speak my truth and say out loud what’s building...reactions1comment
A Dark NMO Future Created by My MindThe future: sometimes things get better and sometimes they get worse. We have our ups and downs and everything in between. One...reactionscomments
Worsening Vision Confirmed By Eye TestsIt had been a little over a year since my last visit and I was excited for new contacts. My eyes have...reactionscomments
My Journey with NMO Part 2: Journey Into FearFear can be your worst enemy and can destroy everything around you. It can make you choose some choices that aren't in...reactionscomments
Wait! The Internet Said I’m Dying!Do you ever wonder if that pain in your side is part of your condition? Or that itch? Or the migraine? How...reactionscomments
Living With A Suprapubic Catheter and NMOSDDeciding to get a suprapubic catheter for a wheelchair-bound person like myself, with my neurogenic bladder with severe UTIs, was a no-brainer...reactions3comments
From Misdiagnosis To NMOSDWhen friends learn I have an autoimmune disease they often ask when and how I was diagnosed. My response: “Which time?” Getting...reactions2comments
