My Journey with NMO Part 2: Journey Into FearFear can be your worst enemy and can destroy everything around you. It can make you choose some choices that aren't in...reactionscomments
Wait! The Internet Said I’m Dying!Do you ever wonder if that pain in your side is part of your condition? Or that itch? Or the migraine? How...reactionscomments
Living With A Suprapubic Catheter and NMOSDDeciding to get a suprapubic catheter for a wheelchair-bound person like myself, with my neurogenic bladder with severe UTIs, was a no-brainer...reactions3comments
From Misdiagnosis To NMOSDWhen friends learn I have an autoimmune disease they often ask when and how I was diagnosed. My response: “Which time?” Getting...reactions2comments
Moments Leading Up to My NMO DiagnosisAnxiety, fear, desperation, confusion, and craziness were the heaviest feelings present in me in early 2016 before my NMO diagnosis. I was...reactions7comments
An Advocate Was BornIn May 2016, I received my NMO diagnosis over the phone. “You have something called neuromyelitis optica, and we must treat you...reactionscomments
B12 and Vitamin D Deficient With NMOSDLiving with NMOSD isn’t easy. Throughout the years I’ve learned that the most important part of navigating my health is listening to my...reactions2comments
Finding the Correct Rehab Team for My NMOMy hopes and dreams of one day getting up from my wheelchair and walking freely are partly kept alive by my rehab...reactions7comments
Traveling with NMOSD: My Top 5 TipsLiving with neuromyelitis optica spectrum disorder (NMOSD) doesn’t mean you have to say no to adventure. It just takes a little more...reactionscomments
Ask Our Community: NMOSD and Heat SensitivityIncreases in body temperature can worsen symptoms of neuromyelitis optica spectrum disorder (NMOSD). This worsening of symptoms with heat is called Uhthoff’s...reactions1comment
Self-Care After RelapseAfter my NMOSD diagnosis and on the road to recovery, my family has been the biggest rock. Especially my mom. She has...reactionscomments
My NMOSD Relapses Are Slow BurnersMy first neuromyelitis optica spectrum disorder (NMOSD) attack seemed to happen rapidly and dramatically. Although I had known something was wrong for...reactions1comment
First NMOSD SymptomsDiagnosing neuromyelitis optica spectrum disorder (NMOSD) can be very challenging. Symptoms of rare diseases often go overlooked, and many doctors are unfamiliar...reactionscomments
Dealing with the Rarest of RareSo here I was on the 5th the day of my ICU stay, waiting for some news on the numbers of tests...reactionscomments
Neuromyelitis Optica and the Neuropathic ItchOne of the most troublesome symptoms of my NMOSD is neuropathic pruritis or neuropathic itch. It occurs due to damage to neurons...reactions11comments
The Neuropathic ItchNeuropathic itch is a somewhat common symptom in people who live with neuromyelitis optica spectrum disorder (NMOSD). NMOSD is a nervous system...reactions4comments
Simplicity and What NMO Does to ItBeing diagnosed with NMO changes your life in so many ways, including how you live day-to-day. Something as simple as doing dishes...reactions1comment
Vacation Tips With NMOHaving a a medical condition like neuromyelitis optica (NMO) can sometimes make traveling a little difficult, or possibly a little uncomfortable. So...reactionscomments
Intimacy and NMO: Tips and TricksThe conversation around NMO and intimacy can often be seen as taboo, but let's be real: it needs to be had. Here...reactions1comment
I Took a Shower TodayTaking a shower when you live with NMO is a big deal. Few people understand why taking a shower could be an...reactions1comment
